May We All Heal | Wish

I wish…

I could hear his laughter.

I could know if his nose scrunches when he smiles.

I could see him chase after Leo and Poe. 

I could hold him tight as he falls asleep in my arms. 

I could teach him as a child.

I could hear his protests as a teenager.

I could be nervous the first time he drove a car.

I could help him get ready for prom.

I could cry as I sent him off to college.

I could have a mother and son dance with him.

I could collect all the memories we were supposed to have.

I could have stayed in our little infinity forever.

I could have got him out a week earlier.

I could have taken more bump pictures.

I could live to see a day where there is no loss.

I could take the pain away from every grieving parent.

I could bring their babies to them.

I could still feel blissfully ignorant concerning pregnancy and loss.

I would have held him.

I would have whispered in his ear how much I loved him.

I would have known. 

for all the flowers he would have picked for me.

that I could have seen him wish all his wishes. 

that my house wasn’t empty when I got home.

that he was somewhere for the day and at any moment they were going to drop him off.

he was here.

I wished for a love so big, so strong that nothing could ever come in between us. That wish came true, but I wish death didn’t have to get in the way.

There’s No Excuse Why My Child Died.

I had a miscarriage.

Don’t worry, it’s not even like it was a real baby. Just a clump of cells.

My child was stillborn.

At least you didn’t get to meet them and see them alive.

I watched my child die in my arms after they spent their life in the NICU.

Good thing you didn’t bring them home and get too attached.

My child died from SIDS in infancy. 

These things happen, next time you’ll just have to watch more closely.

I’m in a constant battle with infertility.

Just relax, it’ll happen in its own time.

My child died in child/adulthood.

Be thankful you have all those memories with him/her.

I am a grieving parent.

Don’t worry, you can always try again.

There is no excuses when it comes to a child dying.

Unless you have experienced child loss, do not think there is solution to ‘get over’ or ‘move on’ from a mom or dad grieving. These ‘helpful’ phrases only create more pain.

This grief is uncomfortable. It’s sad, but it’s very real for so many of us. We do not need judged for how we grieve. There is not a timeline. If you wouldn’t say it about any other loss, then it does not need to be said about this type of loss. Our children are very loved and real. No matter if we lost them a day after we found out they were there or after many years.

Please think before you speak, you have no idea the war that we’re battling every. single. day.

Avoiding Situations.

Earlier this month, I talked about Reliving the Moment and how Post Traumatic Stress Disorder (PTSD) is common in moms who have experienced pregnancy/baby loss. In that post, I shared the four major symptoms of PTSD and my experience with the first one. Although right now my mind is blocking when I found out Jensen’s heart had stopped through the day he was born. Moments come flooding in my brain and I can only analyze those small bursts of time. Even though there’s no way to know when I’ll remember more about those two days, I find myself clinging on to the second symptom. For the ease of this conversation, here’s the list once more:

  1. Reliving the event.
  2. Avoiding situations that remind you of the event.
  3. Negative changes in beliefs and feelings.
  4. Feeling ‘keyed’ up or being on the lookout for danger.

When I first decided to talk about PTSD with you all, I didn’t even realize how much the holidays would go right along with the discussion. With Thanksgiving being my first, BIG holiday without Jensen, I didn’t know how I would handle the day or my emotions. Every day has been a test for me, but Thanksgiving and Christmas are really big days. They’re days where I’m supposed to be showing him off to the whole family and they let me know how big he’s getting. It’s the missing out on what his favorite holiday food would be, what his face would look like seeing the shiny ornaments on the tree, and so many countless things that these days bring with children…

As a loss mom, I have to weigh my emotions for family-get-togethers and other type of situations.

For the sake of not going on and on, I’m going to specifically talk about avoiding situations during this Thanksgiving. Maybe in the future I can touch on situations that directly remind me of the day Jensen was born. There’s so many ways this second symptom could go, but I think this is more relevant and timely for right now.

Going to Thanksgiving this year was hard. My family actually had two different ones, one that had all the kids and the other with just adults. Honestly, it was bittersweet to have. It’s nothing against my family, at all, but it sucks that Jensen wasn’t here. That he couldn’t be experiencing his first Thanksgiving with his whole family. I felt horrible, obviously I didn’t go to the first one. I avoided it, completely. There was no strength in me to go or even think about it. The whole night I would’ve pictured Jensen there and there and there. But like everyday since he’s been born, he isn’t physically here. There’s no silly smiles or trying to take all the food off the table. My brain puts it there, but it only makes his absence even more noticeable. I thought the second one would be better.

It wasn’t.

In the morning, I laid out my outfit and did everything I needed to around the house. As the clock kept getting closer to four, my anxiety kept getting stronger. Again, I felt myself wanting to avoid the situation and all the visions I thought I was going to have. Then when I told myself it was okay to have those thoughts, I was terrified to have everything come back to me. I didn’t want to go down the rabbit hole and that’s a really big possibility. My brain has been actively trying to remember those two days. I feel like if I give it a little room to explore my deep thoughts, it’ll play it all out. That scares me, especially because I don’t know if I’m ready for that.  So, logically what does a person do when they’re not ready to face something? They avoid it.

That’s what I did, for a few hours at least. Four came and went, and I still didn’t feel like leaving my bed. Jensen’s urn candle was on and I just kept watching it flicker, wondering what he would want me to do. I was still seeing him eating mashed potatoes and how he would look like at thirty-three weeks. Even sitting here in my room, I could see him dressed, ready to go, and watching me frantically get ready. I saw him in a denim shirt and khaki pants, with his white tennis shoes. Those images came so vividly even with me not at the dinner table. I avoided what I was afraid of for as long as I could. This type of situation of reliving the event, never goes away. I relive the days I was pregnant with Jensen, certain moments of his birth, and each day that he should be here.

When I got to my uncle’s house, I took a deep breath before I walked in. I kept playing with my Jensen bracelet as everyone greeted me. My arms felt empty, I kept thinking how I should be carrying him in his car seat. I’m not going to lie to you guys, it hurt. It felt like my chest was being crushed. This feeling overwhelms me and is usually present in my day-to-day life. Yet, I still made it to Thanksgiving dinner. A plate was given to me and I filled it up to eat. I sat, ate, and talked. There were moments I wanted to cry and there were moments I laughed. I kept wondering why I had avoided going over for those few hours and I wondered about my lifetime of avoiding these situations.

Losing a child brings a lifetime of hurting, dreaming, and avoiding. But with every step and day we continue on, we heal just a little bit at a time. I know how stressful the holidays are and how the PTSD can really hit. Even though I went to Thanksgiving dinner and have certain plans for December, it’s perfectly okay to avoid these days. Grieving is a learning process that we have to figure out each day. If one day you’re ready to face these challenges head on, do it. If the very next day, you just want to stay in bed and avoid everything, you have every right to do so.

You are not alone. These feelings are not strange or weird. Be gentle on your heart. I know how hard this is, just like I know you’re doing your very best.

 

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A little side note to this post…

I’d like to let everyone know that Poe made it home on Sunday. He’s lost a few pounds, but he’s safe and has no injuries. I am so thankful for my community, the positive thoughts that were coming my way, and that Jensen lead Poe back to his home.

 

Beliefs & Spirituality.

I just want to start off saying, this topic brings a lot of emotions when talked about. There have been centuries of wars started over religion and differences in beliefs. This post was not written to harm others or to push what I believe on anyone. I’m not like that and I value differences in opinion. It’s fascinating to hear what other’s think about the world and their spirituality. There’s no right or wrong in what you believe.

Beliefs, spirituality, and faith are as individual as each person or their journey in life. For me, it’s something that’s constantly changed as I’ve experienced different situations or learned more information. When we were young, we didn’t go to church or were pushed to believe in a certain thing. I mean, we celebrated all the holidays and learned about Jesus, but we were able to explore it all in our own time. That meant learning about any religion I could find and even more ideas about the afterlife. Like I said, I found it all so fascinating,

To put it bluntly, I believe in God and the afterlife. Yet, there’s so much more to what I believe than just that.

Before I get into the details, I want to make something clear. I do not find it comforting for people to tell me Jensen is in a ‘better place.’ There’s no better place for him than in my arms. It’s not comforting to know that God needed another angel and He somehow chose Jensen. More than anything else, it angers me and it’s not fair that he died. Believe me, I know he’s a special boy, but his innocent soul deserved to live so much longer. If you hear me talking about him being in heaven or being an angel, it’s because I can. That sounds ridiculous, I know. BUT, until you’ve walked in my shoes and experienced losing my son, you don’t understand what is comforting to me. It’s okay if I say those things because sometimes that’s the only thing keeping me being here. Knowing he’s protecting me and will be there when I die. As I said, faith and this journey is individual.

Now I’ll get back to the prompt.

Yes, I believe in God, but that doesn’t mean I’m angry with Him and it doesn’t mean that my faith wasn’t shattered. Most days, I’m still so mad and don’t understand why this is happening to me. I find comfort in a lot of verses, not all of them. One of my favorites is below, Jessica, from Lettered Hope, made this for me. It comforts me to pray and put my worries on God. If I say I’m praying for you and/or your angel, I don’t mean it in a bad way. It’s what helps me make sense of this loss. I believe God hears me and tells the children in heaven that they’re being thought of. Then I think they can just hear me too. I remember not praying for a few weeks after Jensen died because I was so angry, which was weird because I did a lot of work in the bible when I was pregnant. It was Jensen and I’s routine every night to pray. I can remember screaming till my throat would bleed asking Him why. Why Jensen? I know there’s not a reason for his death and I won’t know until I’m dead. There’s nothing good that can come as a result of Jensen not being here, but I’m being lead into healing through knowing I will be with him again.

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After losing Jensen, I understand how people don’t believe in God, or well any higher power. It’s not fair, especially when we’re led to believe that He put this pain on us. I get it and your beliefs are justified, just as mine are to my understanding of this.

Another belief I have, is in spirit communities; I’ll try not to go too deep into this, unless you’d like to know. When I talk about this, I literally feel crazy. I believe that everyone has a soul and that our souls are connected with those that mean the most to us. Some know this as soul mates, but I believe in a soul community. These souls stay around each other for all eternity and come back here to earth and find each other again. This can be from partners to children to friends, but we’re constantly searching for one another. I think Jensen and I’s souls have been connected for a long time. As any mother, I had a bond with him when I was pregnant, but I get a lot of signs that I know are from him. In my letters to him, I’ve said that we’re two souls who search for each other, but are continuously just out of our reach. Maybe this goes along with not only wanting to see him again, but one day seeing him grow? Who knows, I’m still working on this belief.

The last thing I want to touch on is heaven. I really believe there is a home for us after we die. Maybe we go there to rejuvenate for another life or we stay there forever, both comfort me equally. I think heaven is different for everyone. Sort of like everyone has their own house and inside is what makes their soul happy. It could maybe even be your house transported into heaven, which I wouldn’t be disappointed about! Sometimes I think my heaven will be walking right into my front door and picking Jensen up from his crib. Then just holding him and studying every detail of that moment. We’d never run out of diapers and food. My heaven is just us together in his nursery, watching whatever’s going on outside his window. Hopefully my other family would be there and so would Leo and Poe. But as I said, everyone’s heaven is different.

I often think about Jensen’s heaven. Maybe his is with me and that’s why I always have so many signs. I think he’s with my grandma being held, I have a feeling that would be apart of hers. Maybe he’s growing or waiting for me to get there so I can see that. I hope I can revert back to twenty-two and we can grow together.

Jensen will always be my heaven and I have faith that he’ll be eagerly waiting for his mother’s embrace.

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Myths.

Life after loss is all about discovery. Discovering healing and how to keep surviving each day. There are good discoveries and there are bad. Most of the bad are from myths that our society have compiled about grief and child loss. I’m going to do my best to debunk some of these myths and probably ramble a lot.

I’ve narrowed it down to the four that really get under my skin. They all kind of loop in with one another, but they are all things I’ve heard. I’ve also wrote about all of them before which really helps show the progression of my grief journey.

Happy debunking.

Myth One | Everything happens for a reason.

Before loss, I found comfort in this statement. In my logical mind, there had to be a reason for everything that happened. It was just be pandemonium if there was no answer to each thing that happened in the world. There had to be a lesson or something we could learn from everything that happened in life.

Then Jensen died.

There is no a reason a baby should die. I can remember searching within myself, thinking if I did anything wrong. Even if I had some sort of bad karma, there still isn’t any way that Jensen’s death would solve anything. His death didn’t happen for a reason. Don’t tell me God needed him and that’s why he died. That’s preposterous, there are a ton of people who die everyday that God can have; not my baby or anyone else’s baby.

Honestly, it just floors me when I hear this. Even if you think there’s a justifiable reason for a baby to die, just don’t say it. It’s not true and something a grieving mother (or any person) needs to hear.

Myth Two | At least you didn’t know him.

Please don’t say this to me, ever. I knew his kicks and when he was uncomfortable. I knew his schedule. I knew his favorite foods. I knew what music he liked. I knew when he was annoyed and didn’t want to participate for the ultrasound tech. I knew he loved to hear people talk about him. I knew he loved being read to. I knew everything about my son.

Just because he didn’t live outside the womb doesn’t mean he didn’t exist or that I couldn’t know him.

I understand it’s a different sense of knowing a person. Jensen was only a baby and I didn’t know him as a toddler, or as a child, or as a teenager, or as an adult. I don’t know what kind of person he would have turned out to be. That’s just a fact, but to say I didn’t know him at all hurts and disregards him as the little human he was. Even though I don’t know for sure who he would have become, I can imagine and dream of that. Tomorrow’s prompt dives into the beautiful mystery he is and I’m excited to share that with you all.


Myth Three | Grief follows five steps in an orderly fashion.

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We all are told and know the telltale stages of grief: Denial. Anger. Bargaining. Depression. Acceptance. In the stages of grief, we’re only supposed to be in each for a designated time and then find acceptance in all of it and move on with our lives. If we stay in one stage longer than an another, we’re not grieving ‘right.’ Or if we go from anger to depression and back to anger again, we didn’t do something right. We already prejudge our grief before we even start grieving. There’s this list of stages that we’re supposed to follow and when we don’t, we look down on ourselves, just as others do. But we’re not talking about each stage or the ones I’ve been in and tangoed with over and over again. There are many posts I’ve written about grief and the stages.

Still, it’s ridiculous to expect someone to follow grief in a timeline or a specific order. Grief is so individualized and different things let different individuals heal. Honestly, there are days where I’m still in denial that I have to live the rest of my days without Jensen. I’m twenty-three years old, let’s say I die at seventy years old, that’s forty-seven years I have to live without my son. I am in denial about that. I’ll expand that thought with the next myth. Then I have days where I’m in a complete rage. I could break plates and punch anything around me. There are times I scream at my cats if they meow because I just have so much anger built up. Then I go to bargaining and guilt. Depression is always there, so these stages make no sense for me.

I’ve left out acceptance for a reason. It’s supposed to be the end all of grief and it’s really not. For me, I feel like there’s different stages of acceptance. I’ve half-heartedly accepted Jensen’s death. Half-heartedly because I know he’s never coming back, but I don’t like it and I’m not comfortable with that fact. So there’s that slight acceptance. Right now, I can’t accept that I’m going to live for decades without him. It’s sad and heartbreaking. I don’t like it, but that’s grief and trying to process everything.

When I hear I’m not grieving correctly or if you think someone’s not, just know it’s their journey and process. Their heart will lead them to where they need to be at that particular time. Trying to rush them through their grief will only hurt them in the long run.


Myth Four | Time heals all wounds.

I feel like every last attempt to comfort me leads to this phrase and I hate it the most. Maybe because when the conversation gets to this point I’ve already lost hope with talking about Jensen and I know they’ll never understand.

Time sucks. I feel when time passes, I’ll become stronger and be able to be productive in my own ways. There won’t be a time where I go back to Danielle before Jensen and I don’t want to go back to her. Maybe in time the pain won’t be as intense? I don’t know. Thinking towards the future has been really difficult for me lately, so I’ve just stopped. As I was saying before, I keep thinking of living all these years without Jensen. He’s gone. The life I planned is gone. It’s overwhelming and to think as time as a savior, I just can’t think that way.

Maybe I’m just feeling defensive right now at this point with my grief. I don’t want time to slip away, but I also want it all to end quickly. It’s just strange. Do I want my life to get to a point where I’m excited for things again? Yes. But that doesn’t erase the pain or the hole in my heart. That hole will never get smaller.

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Time passing isn’t comforting to me nor do I know if it’ll heal me. Right now it’s a huge myth to me in my six months into grief. My wound is still deep and open, it’s one that will take a lifetime of healing.

Empathy.

Before I begin this post, I want to show the difference between empathy and sympathy. I think a lot of people think they’re the same thing, but they’re very different from each other.

empathy – the ability to understand and share the feelings of another.

sympathy – feelings of pity and sorrow for someone else’s misfortune.

The first time I thought I understood what empathy really meant was in college. I remember the professor telling us her sister’s story; I won’t tell her story, but it deals with the loss of a child. My professor said to feel empathy you had to put yourself in the other person’s shoes and somehow understand those feelings.

Then she said, ‘I could never imagine losing a child, therefore I can’t have the full understanding of empathy for her situation.’ Continue reading

Twenty-Five Weeks.

It’s the twenty-fifth Tuesday.

One-hundred and seventy-five days since Jensen was born.

Jensen’s big day of the week and honestly today was busier than any other Tuesday I’ve had since he’s been born. The morning was really rushed and stressful. Leo and Poe were being trouble makers, we were in a rush to work out, and then I had therapy. Even when that was done, I was only home for a bit to go get supplies for the house and then finally eat. Today was just more rushed than I like my Tuesday’s to be. I honestly didn’t know if I’d write tonight since I posted a lot my feelings yesterday. I know I have a lot of Jensen and grief feelings going on write now, but I can’t make sense of them. Maybe at the end of this.

Then I figured everyone would have heard enough from me after my video chat with Emily Long, from Invisible Mothers, about love, loss, and figuring out life through grief. Which if you didn’t see and would like to, you can see it here. It was nice to be able to talk and actually speak what’s on my mind with words coming out of my mouth and not just directly on the screen. I am so very thankful she asked me chat with her to share with other loss moms and just feel what we’re feeling. Honestly, I didn’t re-watch it. I’m so afraid to hear my voice. I promise there’s good stuff on there and if you want to see me talking, it’s the perfect video to see.

But BIG things are happening.

This Tuesday is also the last Tuesday of the month of September, which means October is almost here. As I said in yesterday’s post, October is Pregnancy and Infant Loss (PAIL) Awareness Month, which is a pretty big deal. Especially since this is my first October without Jensen and knowing what else October holds besides Breast Cancer Awareness. It’s going to be an emotional month in general. October fifth is also Jensen’s six monthday, which I just cannot fathom. I’d do anything to be playing and picking out Jensen’s, at six month old, Halloween costume….

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Broken.

The majority of time I hear a lot of phrases that are supposed to be helpful, but usually do more harm. I’ve written about it many times before because it really does hurt and those words just swirl in my brain. On top of all those things, I’ve had a really horrible week with Anthony moving out and adjusting to being alone.

I want to be very candid with you all; week twenty-four sucked. The majority of the week was spent in bed, under my covers. There were moments I wanted to rip my skin off to feel relief. Seriously, physical pain would have felt so much better than this mental and emotional anguish. I feel so bad and I know Jensen sees this. What kind of mom sits there and loathes herself? I guess someone could answer with, you’re really not a mom. This week I probably couldn’t have even defended myself and my motherhood…

The very person who would do anything for her son wouldn’t have had the energy to defend my motherhood. Grief has completely broken me.

Today I heard one of the best things since Jensen’s been born:

“He’ll always love and remember you.”

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Twenty-Four Weeks.

When I decided to start blogging about Jensen and life after loss I promised myself I would always do two things:

  1. To honor Jensen by sharing his story and the positive impact he brings to me each and everyday.
  2. Be completely raw and honest no matter how hard.

Today, I unfortunately have to share news that hurts and is ultimately life-changing. Before I begin, I’d like to say this is not wrote in an ill tone or manner. This is real life and a fairly common thing to happen after losing a child.

Anthony and I have decided to go our separate ways to be able to focus on ourselves through our different grief journeys.

It hasn’t been an okay time for me and although I can’t speak for Anthony, I know he’s hurting too. The reality is grief does awful, awful things to a person and their relationship. I don’t think we’re going into this next stage of our lives with a bad taste on our tongues. We’ve been able to identify how each other needs to be able to better themselves and it’s hard, but in this time we have to be apart.

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Painfully Beautiful.

Let me tell you, this month is horrible. The majority of days are filled with heartache and sadness, but in those days I’ve tried my very best to see the light and good. This weekend, I couldn’t see anything but the top of the waves crashing on top of me. I would say the mix of the oncoming six month mark and all the other troubles going on in my life have not helped with my grief. Those stories are for another day. I’ve felt that I haven’t been able to write about what’s going on with me and my grief. Every time I sit down to write the words, they just fly right out the window.

But, I wanted to share with you what happened yesterday. It all started last month when I got an invitation in the mail about a memorial put on by the hospital. Now it feels like that was forever ago, but I had made sure to make sure I planned today for the ceremony. I thought I had everything ready to go, until life happened. There were unforeseeable events that happened this weekend that made me not want to go. Made my grief so much more intense and wanted to stay in bed all day long. Somehow I dragged myself out of bed, put on my most favorite dress, and went to celebrate my Jensen’s life.

When I got there and saw the three big tents and all the chairs, I instantly started crying. I kept thinking about how many babies aren’t with their families. Then it hit me. All the pain I was going through without Jensen. How he wasn’t there with me looking up at me from his carseat. All the memories I wanted to have with him physically here. When did my life involve going to a memorial remembering my child that died?

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