Tag Archives: Pregnancy and Infant Loss Awareness

The Forgotten Kindergartener.

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It’s back to school time.

Backpacks are filled up. Kids are excited to meet their new teachers and see their friends. Parents are watching their kids grow and learn. The elementary schools are getting a new group of students: kindergarteners.

They’re giddy and so cute. Moms and dads are snapping pictures with their kids walking into their school, in front of the door, or the school sign. It’s how it’s supposed to be.

Kindergarten teachers see their classroom fill up. Every desk is filled. They start to remember their students’ names and smiling faces. A huge classroom full of kindergarteners exactly where they’re expected, needed, and wanted.

But, I have the forgotten kindergartener.

There wasn’t a school list sent out to me. I didn’t get to prepare him to be away from me all day. No first day of school pictures or the last hug goodbye. There will never be ay more growth or learning or anything.

We don’t get to meet his teacher or have them remember his name or smiling face. He won’t get to run to my car in the pickup line and tell me all about his day.

He won’t wake up the next day and join his new friends for day two, three, or ever.

Because I have the forgotten kindergartener that I’ll always remember.

As much as I’m happy to see all the smiling back to school pictures this year, I’m really sad the one little boy’s pictures I want to see won’t be there. I’ll never get to see his smiling face or hear him talk.

Every day I know this fact, but it’s days like what was supposed to be his first day of kindergarten that it just hits a little harder.

Child loss and the grief that comes along does not just go away with time. You get stronger as a person, but it still is the most pain I’ve ever felt. Especially when you remember all that they should be and what you wanted for them.

Even though I didn’t really know how much I’d feel before Jensen’s first day of school, Mila and I did some positive things in his name.

We actually got the kindergarten supply list. A few days ago, we went out and bought what was on the list to donate a backpack. Mila helped pick out the different supplies and knew we were donating them for Jensen because some other little boy might need those supplies.

I packed them up with care, with Mila’s help and we went on our way to donate the backpack.

As hard and sad as it was, I’m always thankful to do things to honor Jensen and his life. This is definitely one that I hope to be able to do every year for him.

No matter what or how many years it’s been… I’ll always remember my baby boy.

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Jensen is FIVE.

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I always need a few days after Jensen’s birthday to collect all my thoughts.

Five feels really big. He should be half a decade old. That realization is hard to wrap my mind around. Then I remember, I have to live the rest of my life without him. It’s a mix of seeing Mila grow older and knowing five holds so much that really brought me to a dark space this year.

Not that every year isn’t hard because having your child die really sucks.

Anyways, Jensen’s actual birthday was everything it needed to be. We still celebrate his birthday and I probably always will.

This year, I wanted to do an activity a five-year-old would love to do. So, we went to the zoo.

I want to go over how much we loved the Cleveland Zoo in a future post, but it was a huge part of Jensen’s fifth birthday. It would be silly not to share the highlights of the day.

My favorite part of going to the zoo was that all the animals were out. Since it was a cooler day, they were playing and being active. The big cats were all out and not napping. Even the bears were out of their caves and showing off.

Honestly, I thought of Jensen’s birthday eve book. We read On the Night You Were Born by Nancy Tillman. In the book, the animals were all dancing the night the baby was born. It felt like the animals were out at the zoo for Jensen. I know that sounds silly, but those little connections are my only ones to him.

As with anything during child loss, I also wondered what animal Jensen would like seeing the most at the zoo. At five, he’d definitely have a favorite. Part of me felt like he’d have liked the red pandas the most. I wonder if he’d want his face painted too. Just those little things that constantly pop up.

I’ve finally realized it’s okay to have those sad moments in a happy day. Grief and happiness coexist in the strangest way, especially on their birthdays.

Of course we had dippin’ dots at the zoo!

After the zoo, we went out to eat.

There were a few birthdays that got celebrated and it was hard because Jensen didn’t get that. Mila is at an age where she wants to sing along with everyone else’s birthday celebrations when we go out. Yet, we didn’t get one for her brother at the restaurant.

I often wonder what Mila thinks of those types of things. It’s just our life, but it’s just something I think about.

When we got home, we had family over to celebrate Jensen and his birthday. There was ice cream cake, singing, and bubbles. Everyone said his name and that will always be the greatest gift of all.

Just knowing Jensen is remembered and loved brings me such happiness.

Throughout his birthday, I received so many birthday messages and love. I can’t thank everyone enough for that. The love that surrounds him and his memory is so beautiful.

I don’t know what this year of grief looks like. Whenever I try to plan something, it feels like it gets a little derailed.

One thing I want to do in honor of Jensen this year is a backpack drive to donate to a local school. Since he’d be a kindergartner this year, I feel like that would be a beautiful way to honor him. The closer we get to the summer, the more details and information I’ll have on this.

What I do know is that as we dive into year five, he is still so loved and missed.

I think about my little boy every single day. He is the reason I keep going forward and shapes the way I parent Mila. Jensen is a part of our lives in all ways. Even though he isn’t here with us doesn’t mean he isn’t in our hearts.

No matter how many years pass, I’m so proud to be his mom.

The Blanket of Grief.

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Almost five years after losing Jensen, grief feels like a blanket of snow.

It comes out of no where and all of the sudden. There’s a sense of beauty to it mixed with the coldest you’ve ever felt. Once you start to get used to it, it melts away and the season changes. Grief is complicated and is always reshaping itself.

I’ve never thought of it as snow or the winter season, usually just the ocean waves as it comes and goes. This year feels different though.

Somehow, it doesn’t feel like all this time has passed. Maybe the weight of time and the part of life I’m in has made me feel this way. When I saw Jensen’s angel covered in this literal blanket of snow, I somehow felt the instant beauty and cold at once.

Grief, for me, has its seasons. I can tell when I’m close to important dates or I’m beginning to feel it more heavily now with his upcoming birthday.

It’s beautiful to look at the love I will always have for Jensen. Mila adores talking about him and seeing his picture. The way he touched our lives in such a short amount of time will always be so touching. Love and grief are so intricately intertwined.

Then when it all comes down and lingers, the weight of the cold and loss settles.

His absence is so heavy. I cry knowing I’ll never have him again or Mila will never be able to play with her brother. Then, five years feels like such a short amount of time compared to how much longer I have without him.

These thoughts make me feel cold and alone. There’s no real protection from the cold and snow. You can put layers on or go inside, but it’s still out there until it’s time to go away.

Just as you start tackling it, the sun starts to shine a little. The world gets a little warmer and the weight of that season of grieving lightens up. Grief is always there. Always. Somehow you get stronger and can carry it through what’s going on then.

You always remember the sting of the cold, but you can live in the warmth of summer.

At this point in my grief, I go through my seasons of heaviness. I think about his loss and the hurt surrounding it. When I can move forward through the coldness, I still always carry him with me. I think about him walking through life with me and picturing his smile. He would want me to smile when I think about him.

I miss Jensen every single day, but the love and guidance he brought me is something I’ll always treasure. Five years later, and I’m just starting to get to this new season of grief.

It takes time and a lot of work, but summer will be here again. Then you don’t have to feel the constant, overwhelming weight of the blanket.

The Night the World Changed

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The rhythmic beeping of the hospital machines kept the rush of the room grounded in one place. There are people surrounding me. All the faces I love keep looking at me, but none of their comforting smiles are here. The nurses and doctors have solemn looks on their faces. Their mouths are moving, but I can’t hear what they are saying.

I can’t move and the light above me is blinding. All my body feels numb except the pressure in my belly. It is time and I am terrified.

There is only one option that I have and it’s the not one I ever wanted to choose. Reality is coming back to me. Everyone’s voices are becoming clearer and the beeping isn’t the only thing I can hear. My doctor, the one I’ve been seeing for over six months now, is telling me to breathe and to push. I remember the classes, but they never told me this would be an option. How can I keep going when I don’t know what’s going to happen next?

My body is more in control now than my mind. I’m holding my breath and everyone is counting. I feel him, but it’s not really him anymore.

Somehow, I’m still taking deep breaths and pushing on to the next moment. I know this will all be over soon, but I’m stuck in a place where I wish this was just it. There was no way I could turn back time, but navigating the future will be too hard. I get lost in my head during the moments of breathing. The beeping brings me back to the present.

“I can see his head. Only one more push and you’re here.”

My partner is staring at me. I can tell he’s scared too. The light is just so bright and I have to close my eyes to gain the strength to do this last act of love.

I push and I feel him enter the world. The room is silent and I feel empty. Isn’t there anyone that can say anything? I need someone to talk, to break the silence besides that dreaded beeping. As I look, I see them holding him. The one person I had been dreaming about for months, but I’ll never have him again.

“Does he have all his fingers and toes?”

It’s the only thing I can think to ask. I need some normalcy in this moment that’s anything, but normal. I hear a tiny yes. Still, no one knows what to say. They take him away from me, to the room next door. I want to get up, but I can’t.

Everything is getting cold. My eyes feel tired and I am weak. The room around me goes dark and I do too.

The beeping rings in my ear. I wake up. There’s just one nurse in my room. She sees that I’m awake and asks me if I need anything. The sun is starting to peak through the blinds. Somehow the world has continued on. I look at her and tears begin to fall from my eyes.

I feel her arms wrap around me and her calming shushing fills the room. She tells me he is beautiful as my hand covers my flattened belly. I wanted it all to be a horrible nightmare.

Time is passing quickly and slowly at the same time. I’m still crying into my nurse’s chest as she describes every detail of him to me. He has blond hair and the shape of my face. His hands are big and toes are long. There were pictures taken of him, but she is telling me about his pouty lips.

The door opens and I feel her retreat. Somehow, it’s time for me to already go home. My family packs up my belongs and the grief bag that someone slipped in my room. There’s an elephant that’s poking out and I hold on to it as I get seated into the wheelchair.

I see the room that he’s still in. He’s alone and I’m leaving him. Maybe he’s with me, but in a different way. All I know is I’m leaving and the world is swirling around me.

There isn’t the steady beeping on the car ride home. I walk in my room and see baby stuff with no baby to bring home. Life has ended for him and me too. All I can do is lay in bed and try to sleep.

Maybe when I wake up, this will all go away and maybe when I sleep, I’ll see him.

Pregnancy and Infant Loss Remembrance Day.

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In 1988, Ronald Reagan declared the month of October to recognize the grief of parents who have lost a child. October 15th became the day to remember them. Since then, at 7pm no matter where you are in the world, a wave of light is held in honor of all the babies gone too soon.

All growing up, I didn’t know about pregnancy and infant loss. I didn’t realize there was a whole month dedicated to parents who were hurting and grieving their children. It wasn’t until Jensen had died that I even knew what grief really was. Since then, I know this heartache and I’ll never forget what October means to so many of us parents.

On this day and every day, I will continue to say his name and tell his story.

His name is Jensen. He was born April 5, 2016 in a quiet room, full of people who love him. Although he never made a sound, his life and presence here has always filled my heart and the space around me. He loved music and showing off on scans. I loved reading to him and wondering how he would look.

He may not physically be here, but he’s ever present in our lives. We continue to say his name and hang his picture. There are continued bonds that let us never forget his impact. It’s sad that he’s not here anymore, but I’m so happy that we had him in our lives for just a little bit.

I wish I never knew this type of loss. Some part of me wishes I was the naive girl I was before, but I’ll never be her again. I’ll always wish for a world full of Jensen. The questions that have circled my head over and over again continue to do so. I can picture him at the age he would be and wonder if he would have been a good baby and toddler and now child.

Every day I wish I could see Mila play with her big brother. She has so many questions about him and it breaks my heart every time I have to tell her he can’t come home. Sibling grief is difficult and they feel so deeply at a young age. I know he’s guiding her and loving her from afar, just as she does him.

We just miss and love him so much.

So, tonight, at 7pm, we’ll be lighting our candles at home to keep the wave of light going. If you’re home, i’d urge you to light one too. If not for Jensen or a child that’s close to you, for all the other babies that were taken far too soon.

Dear Fellow Bereaved Mothers,

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I feel like it’s been awhile since we’ve talked, but I see all of you and your babies gone too soon.

Whether this is your first Bereaved Mother’s Day or fiftieth or somewhere in between, I want you to know that your child and the way you mother them is not unseen. I know some days are harder than others and maybe you’re in a long line of hard ones, but you are doing the best you can do. Please reach out on this day or any of the difficult ones you have. There are so many of us here to remember our babies with and to lift each other up when we need it most. And if you’re having a good, gentle day, I’m so happy those moments are here for you. You are so deserving of them.

I’m so sorry that we know this deep of a loss and the tidal waves of grief that comes after. There’s nothing quite like it. On the other hand, there’s love. That love you feel for them, oh, it’s so powerful. This love powers through death, not that anything could tear apart the love a mother has for her child.

Like everyday, say their name. Share a memory about them with someone who knew them or someone new. I know how proud you are of them. They’re proud of you too.

So today, and everyday, I want you to know, I see your motherhood and your child matters and is loved by many. And you, beautiful mother, for as much love as you pour out, there is so much coming your way.

Love,

Danielle

Forever Jensen’s Mom

At the beginning…

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At the beginning,⁣
darkness was ever present. ⁣
Then, he showed me light. ⁣

It’s the start of a new month and with May brings a lot of different things. One, that I’ve tried to do since Jensen has been born, is May We All Heal.

Usually I end up starting strong, then something pops up and I get off track. Since we’re stuck at home, I’m hoping to be creative each day and maybe even have Mila join in.

Today, I wrote a haiku. I’m not the best at poetry, but I felt like this poem spoke to my heart. Losing Jensen was the hardest moment of my life and the grief after has been life changing. It was all darkness, but slowly, he’s led me to healing and becoming stronger through love.

I’ll forever be grateful for him.

April… We Meet Again.

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Amidst everything happening in the world and the personal things too, I’ve not been looking forward to April. It’s the fourth one since everything changed. That feeling of grief climbing out of my chest is present.

Some part of me thought this April would be different with the coronavirus, Mila being a lively almost two year old, and dealing with things happening closely to me that I can not control. Yet, here I am. The last few days, it’s weighed on me more heavily. I just can’t believe it’s been another year without him.

I’m trying to be positive, but it’s just unfair. All the things I ‘should’ be doing for Jensen are more present around these days. I keel thinking about how much different quarantine would be with him. Life in general just would be… different. It’s so hard to explain. There’s no word or explanation that would make sense to other people. Here we are almost four years later and I can’t quite find the words to describe how sucky it is to not have your kid with you.

Mila helps. I’m weary of typing that because it’s unfair to her and parents who can’t or choose not to have more children; but she helps me. She makes me smile and I remember April is her month too. Jensen wouldn’t want her to be sad or for us not to celebrate how beautiful this month is even though it’s filled with sadness too. I know Mila senses the sadness. She’ll come over and flash her smiles, stroke my face, and just give me a kiss. I know deep down he picked her out for me.

One thing I’ve learned through it all is we’ll make it. Somedays you just have to take it second by second, but we’ll survive.

Like I’ve said in the past, the days leading are always worse than the actual day. Grief makes anticipation feel like dread. This past weekend, Mila hasn’t felt well and I was scared that it’d roll into April. So when she woke up fever free and happy, I knew it’d get easier.

We actually went and picked up a picnic table/bench that we’ll probably use frequently in the next few months (social distancing was practiced). She’s immediately taken a liking to it and it just makes me feel better. Finding happy moments when everything feels heavy makes the day a little nicer.

I’m hopeful April’s will get easier. I’m hopeful that I’ll start celebrating them again. I’m hopeful that Jensen’s day will be seen as happy and I won’t be as sad. I know I’ll always carry the grief and heaviness of losing him, but I’m getting to a part in my journey where it can coincide with happiness simultaneously.

Today I’m just grateful for Jensen, Mila, and watching her cheesy fingers throw Cheetos to Max. I’m hopeful for peaceful April’s and breakfasts our on our new picnic table. This year, I’m ready for April and going into year five of grieving.

Dear Jensen,

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I’ve really slacked this year.

There was a time I wrote a letter to you every night. They were what I depended on – for so long. It felt like my one connection to you. Sometimes I felt like I didn’t write my day or thoughts down, then you wouldn’t know what was happening. When Mila came and I didn’t have a moment to write to you everyday, I felt broken. Like such a failure, but I started to realize… you were with us, always.

My ‘slacking’ hasn’t just been with your letters, it’s been with writing in general. ESPECIALLY for Pregnancy and Infant Loss Awareness Month. I used to post and write every.single.day but this year has been so different with what life has in store. Maybe next year will be another story.

As the days, weeks, months, years have passed, there have been constants. I miss you every single day. Sometimes I just find myself wondering what color your eyes were and how you would be with Mila. When I get overwhelmed with her antics, I think of how much I wanted them with you to settle myself. That’s another constant, picturing you. Always. The longing and wondering can hurt, but they bring me comfort too. Most of all, my biggest constant is loving you.

I’ll never be able to accurately describe my love for you. It’s different form loving Mila or family or anyone really. There’s so many levels. The memories. The loss. The remembering. The surviving. The… you. Through it all, you affect every aspect of me and how I handle situations I find myself in. It’s sort of insane how one baby, one son, the one you have changed my life, forever. And all of it’s centered from the love I have for you.

Thank you for choosing me to be your mom. I couldn’t imagine my life without the time I spent with you. Thank you for making me a better person. Thank you for showing me how deeply I can love. Thank you for helping teach me how to hold on to the good moment and breathe through the bad.

I promise to keep doing the best I can do, while holding you in my heart everyday. I wish I could’ve had more time with you. I wish I could see your eyes looking into mine and feel your hand holding mine.

You are one of my favorite parts of myself and I’m so proud to call you my son.

I love you so much.

Your mama.

Family Portrait – Capture Your Grief

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This is my family: Mila, Jensen, and I.

Our family portraits will never look ‘normal,’ but they’re perfect to me. They’re still full of love and an actual representation of who we are as a family.

Story time.

I was being brave today. This whole month I’ve felt exhausted. In the middle of potty training Max AND Mila (yes, I will post those adventures soon), doing school work, and trying to get back in the swing of subbing, plus everything else, I found myself neglecting what actually means a lot to me… Capture Your Grief. Every October I’ve done my best with it and this one, I just have been doing what I can do.

When I saw today’s prompt, I told myself I was 100% participating and going to get a picture of us. I picked out Mila and I’s outfit and Jensen’s bow. We grabbed our fall stuff and a big blanket to take outside. For like 15 minutes, I was in the backyard finding the perfect spot while rigging a stand up for my phone to sit…

I wanted it to be perfect with a fall background and all of us looking in the camera. Let’s just say… that didn’t happen.

Toddler’s aren’t the best at taking direction and Max wouldn’t sit still and Mila kept taking Jensen’s bow off and it seemed impossible to run back and get us all set up in time in a matter of ten seconds.

Did I feel a little defeated? Yes. But, I looked at Mila and held Jensen bear close to me and realized the most important people in my life didn’t care about a picture. They cared about me and know I’m doing my best. I let grief and stress and feeling like a bad mom get the best of me. It happens to all of us and that’s okay.

After my moment, I squeezed Jensen bear again and got Mila to come sit with us. I was going to get this picture no matter what and what’s wrong with a selfie?

This is our life. It’s three and a half years of grieving and a year and a half of parenting after loss. It’s one full of love and craziness. One that the only thing I’d change is having Jensen physically here with us.

I love our little family portrait today. My littles are in my arms and close to my heart. I’m smiling and everything is going to be just okay.

Kisses for Jensen.