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Anxiety.

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Dear Mila,

If a person could feel their mother’s emotions in the womb, you’d know all about anxiety.

I never used to be an anxious person before. Of course I worried about trivial things all children and teenagers face, but nothing like I’ve experienced now.

The first time I had an anxiety attack is when we found out Jensen had Down syndrome. I didn’t expect any ‘abnormalities’ in any of the tests with him. In my naive mind, nothing bad ever happened to babies or pregnant women. You probably think that’s crazy since you know how paranoid I am about pregnancy in general. Anyways, after those results, I couldn’t catch my breath and it felt like the world was sitting on my chest. After a few days, that anxiety went away. He was mine. I would do anything in my power to give him the bed of everything. So, I did what I do best and prepared.

It wasn’t until a few months later that I had my second ever anxiety attack. When we found out Jensen was gone, I fell apart. I guess it was like a major life attack. My blood pressure spiked, my vision went black, and I couldn’t catch my breath. Life felt like that for months after abs sometimes still does…

Nothing traumatic had ever happened in my life before that. I didn’t have any reason to worry about things before. My mind didn’t overwork. Then, as with everything, my world flipped upside down.

I worried every time my phone rang or if someone didn’t text back quick. Then I went through a stage where I didn’t care about anything. My anxiety flipped-flopped like that until I got pregnant with you. Then a new type of anxiety slapped me in the face: pregnancy after loss.

Everyday I woke up wondering if this would be the day you would be gone. When you hit big enough, I’d poke my belly until I felt you moving, then could breathe for a little while. I didn’t sleep much. My mind went through every horrible scenario. At every appointment, I asked my doctor if this anxiety was good for you and that I just needed you to be born alive. They knew all about Jensen so they didn’t think I was extra crazy for bringing it up each time.

With your birth, the anxiety of my body failing ended. You were here and in my arms. The longer you looked at me, the less I felt that anxiety.

Now that your here, I worry about other things, but it’s different. I’m not sure how to explain it.

As a mom and especially a loss mom, I’ll always have anxiety. I worry about you when you sleep, when I’m in the shower, or anytime I’m not holding you. It’s just because I love you so much and want you to be safe.

I hope you never experience the trauma and anxiety I went through with stillbirth. Even though I would never trade your brother or my time with him, I wouldn’t wish the aftermath of the mental madness of child loss on anyone. With that being said, when you are feeling anxious about whatever you’re going through during your life, I’ll help you make it through. I’m always here to listen and if you want my advice I’ll give it to you. One of my jobs for the rest of my life is to comfort you, even when you’re a grown woman facing this big world.

One of the things Jensen taught me that I’m able to teach you is that we can make it through anything. All it takes is a lot of love and a little patience.

I love you.

Mama

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Intention.

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Each day, I wake up with the hope to make each day the best it can be.

Four days into the new year, I’ve really thought of resolutions and goals for myself to achieve. The problem is since I’ve had Jensen huge chunks of time feel completely overwhelming. For me to set a resolution for the whole year is not possible. It causes me more anxiety than motivation and quite honestly, I don’t need anymore of that in my life.

When I was pregnant with Jensen as 2015 turned to 2016, I only made one resolution: to be the best mom I could be to him. I never imagined leaving the year without him physically with me. My goal for the year seemed impossible since I couldn’t mother my child the way I wanted. As everything with loss, this changed my outlook on how I would ‘celebrate’ all the following new years. Last year, I didn’t even make any. I stayed at home by myself and cried the entire night. Nothing could bring me the happiness I once had and it felt silly to even try to plan for a year knowing how differently they can end up.

This year, I wanted it to be different. I wanted to feel different to how I approached the upcoming year and take control. It’s the one thing I haven’t had throughout this journey, and a huge part of me wanted to take it back. So, since Christmas I’ve taken the time to really think about what I needed out of the year or even just through the day. The word that kept popping up in my head was intention.

Now this may seem like a broad word when it comes to a resolution or word for the year, but it’s what I need to live this life after loss. Each day I want to set my intentions and commit to them. No matter how small or big they seem.

Intention. 

I intend to be the best mom to Jensen I can be.

I intend to be the best person I can be.

I intend to find moments full of him.

I intend to do great things.

I intend to try to find something to smile about every day.

I intend to say his name and share his story whenever I can.

I intend to be.

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Photo by Roxana Soriano Rebolledo

Oh, Christmas Tree.

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Christmas has snuck up on me this year. All the days a jumbling together and I feel like the world is spinning way to fast. Jensen’s stocking is hung and all his ornaments are adorned on the tree. I have a new book to read on Christmas Eve, which I scribbled, ‘Christmas 2017 – Jensen’s Second Christmas in heaven.‘ The lights are twinkling throughout my house and his candle shines bright in front of me. Yet, even though I’ve tried to make this time of year a little more gentle on my heart, I can’t help but focusing on how he’s not here.

I would love to have him sit on Santa’s lap and immediately framed the picture when we got home.

I would love to see him get excited for ‘Ho Ho’ to come and put presents under the tree.

I would love to see him around his whole family tomorrow evening, playing and smiling like he should be.

I would love to just hold him and tell him how much I love him every second of the day.

Grief during the holiday season is not talked about a lot outside of the bereaved. It is so hard to be surrounded by joy when you feel like your insides are breaking down and dying. This time of year will never be the same again. The memories of his time in my belly and opening up his first Christmas book on Christmas morning will always be bittersweet. I just wish it was different for me and so many others.

One of the things that’s gotten me through the last month has been the amazing community that continues to support us loss parents. We all feel so broken, but so many of us are there to help each other power through.

It was my intention to share an ornament the last few days, but obviously I didn’t get to that. I wanted to share the ones I received this year today. They each have touched my heart differently, but have filled my heart. I also want to say, thanks to everyone who has sent Jensen a card. The cards I sent out will probably be late, like I said, it’s been a rough time. But, you are all in my hearts every day. I know there are so many others feeling the way I am, just wanting to make it to the next day.

Without further ado, here are this year’s ornaments to honor the little boy who has my heart:

My favorite mistletoes, handmade by me.

From Xander’s mom, Hayley. From Scared Sidless ornament exchange.

Made by Kathleen. From the Remembering Together Ornament Swap.

Made by Jasper’s mom, Amber.

From Evelyn’s mom, Erica.

From Daniel’s mom, Joan.

Not on my tree, but in my heart:

From Dorothy’s mom, Rachel.

Everlee’s mom, Sarah, honoring Jensen and Huxley.

Christmas Traditions.

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Throughout the year, I love being able to go to different events that support parents who are journeying through pregnancy and infant loss. The holidays can prove to be very difficult and isolating; especially since Christmas is mainly focused on children and New Years marks a different time (or more time away from your child). I am so thankful there is a rich support community near me to offer Christmas and holiday programs.

Last year, I found two that really called to me. One through a children’s hospital that has an amazing support group and the other through the Angel of Hope Christmas Box organization. Both are very different, but still so meaningful. I know it can feel very nerve wrecking to attend an event like this, so I want to share my experiences to give an insight of what happens.

Akron Children’s Remembrance Service

The first service I went to of the holiday season is a more formal one. It was in a theatre with quite a bit of seating. Before the actual day, parents are encouraged to preregister their child’s name and send in a picture so they can be presented in the program and on screen.

There is a huge range of ages in children, which I think is really special. For me, it brings confirmation of other for my motherhood. My son is grouped with children who are young adults. In the service they’re not valued any less or looked on differently just because of their time on Earth. They also have one set of parents each year share their story of loss and love. The past two years, I’ve uncontrollably cried throughout this time. It’s something about being able to connect with another person and know how they’re feeling throughout it.

This year’s was about an hour to an hour and a half long. Every baby’s name was read out loud with a bell that chimed after. It’s grounding to see the big list of name and to see their faces on the screen. So many stories and so much love that remains.

During the service, I sat with my mom. We got there a little late and by that time they had already ran out of candles that were to be lit during one of the songs. Well, my mother decided Jensen couldn’t be the only one there without a light, so she pulled out her lighter and had it shining instead. Little moments like these really let me see how much my family cares. Of course I know deep down they do, just making sure she felt like he wasn’t left out made my heart smile.

Overall, I really enjoyed this service and to see the fact that I’m not alone throughout this.

Angel of Hope

This is my favorite event of the year. Every second Sunday of December this group gets together to honor our children gone too soon. This is where Jensen’s brick is too. The idea is the angel protects those around her while providing hope to those that need it most. I absolutely love reading all the names on the bricks and the little sayings. It’s heartbreaking to see them, but somehow it makes me feel like they’re all connected and together. Since Jensen is cremated and I always have his urn, it’s actually nice to have a place to go too.

The event is outside, so yes it was very cold and windy. My mom and dad went with me, which is always awesome to have both of their support. They need these days as much as I do. Everyday they grieve Jensen’s loss too.

We all meet right in front of the angel and are giving candles to light. This is actually a task in its own to keep them lit with the wind. They go through their program of their background, poems, and stories. I can’t even remember what was said because I was so in the moment. All their words just settled inside. There were tears shred, lots of hugs, and of course flowers given to the angel.

I know I always say this, but seeing the amount of people there and feeling what I am in that moment makes me feel less isolated. It was beautiful seeing everyone’s light too. Lets me know that when they looked down over us, they could see the light just for them.

On Jensen’s brick, I left him flowers. Which I leave because I know he would have always picked them from me. My dad leaves pennies every time he visits too. These are the traditions we have started because of him and I know he will forever be remembered.

Reflect. 

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I have a son that I carry in my heart. I am never without him. Anywhere I go, he goes with me. 

This October didn’t go as I originally planned. I wanted to write each day according to the Capture Your Grief prompts. Life had a way of cutting in. Through pregnancy and infant loss awareness events, my mom being hospitalized, and a lot of work, I wasn’t able to complete them all; and that’s perfectly okay. I did what my grief and I was able to do. For that, I am so proud of myself and the little boy who has motivated me to keep pushing through the days. 

Reflection is important when journeying through grief. Even if it’s just reflecting on the previous day. Since I’m halfway through my second year (which seems absurd), I find myself reflection from last year. I’ve found I’ve grown tremendously. This year, I wasn’t hard on myself if I wasn’t able to post a prompt or a picture. I know others see the love I have for my son and my motherhood is completely valid. Although, I would never say I’m comfortable in my grief or even with what has happened in my life, I’m thankful to see how far I’ve come. I wish with all my might Jensen was here to physically be apart of this journey. 

This month has been a beautiful healing one. It always amazes me how complete strangers can come together and be so supportive, even after all the loss. Before I began writing this post, I went through all my pictures from this month and the ones that moved me the most were the balloon releases and ones with my family. Every release is painfully healing. Each of those balloons mark a child gone too soon and those who grieve their loss. In all the photos I have from them, there’s way too many in the sky. What you don’t see in the picture is the tears and comfort by family and friends. 

I’ve also noticed a difference in myself accepting the change of the month. If you’ve read my blog for awhile, you know the change of the month has been very hard for me throughout my journey. This month, I’m ready for it to end. Which sounds weird since I was looking forward to advocating each day. The thing is I raise awareness about pregnancy and infant loss everyday as I know all parents do. It’s a nice month to come together, but when it ends it doesn’t mean we have to stop talking. With that being said, I’m not ready for the second set of holidays without Jensen. I don’t think that will ever get easier. 

Tomorrow is the first of the holiday season. I’m going to touch on some things then, but with reflecting comes looking towards the future. It’s going to be rough. I’m going into the day with high hopes and have plans to incorporate Jensen that I’ll be sharing. It’s going to be hard seeing kids his age, it always is. I’ve come to a point where I know when to step back and know it’s okay to succumb to that grief feeling. 

No matter what, I’ll make it to the next day. 

I’ll be thinking of those balloons in the sky and what they represent tomorrow. Instead of just seeing the kids trick-or-treating, I’ll also see the ones who aren’t physically there. 

I wish this awareness month didn’t exist and babies didn’t die, but I’m so glad I have you all to walk this journey with. Thank you for letting me share Jensen and I’s story this October and every other time. I’ll always remember the community who lifted me up when I didn’t feel like I’d ever stand again. 

Capture This Moment. 

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Life is full of important moments. Ones you never forget because they’re so happy and others that are so terrible that they replay in your mind over and over. There are ones where you don’t think you’ll make it to the next and feel so overwhelmed. Grief has put a spot light in them all. 

I’ve learned that you have to take each head on. Once you get past the ones that bring pain, you will make it to the next. I promise. 

The moment they told me Jensen was gone the world melted. I never thought I would catch my breath again and yet somehow my body forced air in my lungs. To be honest, I wish the moment before that one, where I was excited to see him, was my last one. I can’t describe the pain in the following hours, days, and weeks that followed. Each day they replay in my head. I wouldn’t wish loss on anyone. 

For Capture Your Grief, I wanted to capture the moment I came back home. It’s right before I see Jensen’s pictures and his urn; both are things that bring me so much comfort. 

My face isn’t important this month. I’ve wore Pregnancy and Infant Loss ribbons everyday in October to advocate and give babies our babies a voice. It’s before I take off my pin and feel as if I don’t have to wear it here to visibly represent the lives that touch me in every moment I have lived after he was born. I place it with my other ones, waiting to be worn tomorrow. 

Collectively, our moments make up our lives. In them all, I am Jensen’s mom. I am an advocate for pregnancy and infant loss awareness. My voice will not be silenced in any moment that comes after this. For the rest of my life, Jensen will never be forgotten. As he is remembered and talked about, he will live and dance freely in those moments.  

A Day to Shine. 

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His light guides me everyday like a lighthouse guides boats into shore. Whenever I’m in the dark, I wonder what he would want me to do and an answer always comes. 

Yesterday I wasn’t able to post for Capture Your Grief. My mother was released from the hospital and I was able to get her settled back home. It has been a tiring four days. It’s taught me lessons I didn’t know existed and calmed worries I thought I would have forever. I honestly thought for the rest of my life if someone was in the hospital for a dire reason, they would die. That’s my past experience. Although my mom was/is in pain, she’s here. I’m so thankful for that. 

During our stay, Jensen did really shine. I wore my pregnancy and infant loss awareness pin and people were asking what it represented. There was also a ton of comments on his footprint tattoo. I felt so proud to tell anyone who asked about him and felt like I was the lighthouse opening up the conversation on his life and this month. 

Jensen will always shine. 

This prompt has also got me thinking towards the Wave of Light happening on Sunday. Last year I felt so connected to the community and throughout the world. It lets all our babies shine collectively. I’m not sure exactly what I’ll be doing. There’s an event in Ohio that I’m thinking about driving to, but it depends on how my mom feels. I might also be speaking on Still Standing’s Facebook page, I’ll make sure to share if I do. If you’re unaware of what the Wave of Light is, in short, it’s on October 15 and whatever your time zone is, you light a candle for your baby/ies at 7pm. There will be a continuous wave of light light that spreads across the world as a result. Make sure to share your pictures on social media. 

Also, a big thanks to Kerstin, Mathilda’s mom, for creating this beautiful graphic for Jensen and I. This community constantly warms my heart and gives me hope. 

Life is Short. 

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For some, it’s much shorter than others. 

Jensen lived thirty-eight glorious weeks. In his lifetime all he knew was love, warmth, and the sound of his mommy’s voice. He danced to Usher and posed for ultrasound pictures. Everyday, he was told how loved and wanted he was. In that time, he grew to be seven pounds, one ounce and nineteen and three quarter inches long. His blond hair was curly and he had ten perfect finger and ten little toes. 

His life was short, but so very beautiful. 

Unfortunately, I found life can be even shorter than thirty-eight weeks, some babies pass much earlier. Ten weeks was never enough with Hux, but it was his and was so full. 

It’s been twenty-four years, one month, and some odd days that I’ve been born. In this time I outlived my child. Their have been lifetimes lived within my belly and I can feel them with every step I take. Sometimes it feels like I have lived a thousand years and other days like I’ve barely made my mark. I get down on myself, constantly, but I think of the life I grew inside me and how he would want me to be happy. 

Life is short. 

I could wake up tomorrow and be gone. We don’t know our destinies or ever predict when we’re going to die. A lot of us know this firsthand, when we learned of our children’s death. Everyday I try to make it a great day and do my best. Whether it’s advocating for baby loss, bettering my future, or taking steps for Jensen, I’m living my life because I know how precious it is. 

A Space Reimagined. 

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There were only two places Jensen’s body was housed after he was born. One was the funeral home and the other is the wing of the hospital pictured above. Every time I drive past the funeral home, my stomach flip flops. I’m not sure if I’ll ever be able to go back in there without the waves of memory hitting me in the face. That’s how I thought my visits to this hospital would turn out too. 

When I was bleeding at ten weeks pregnant this summer, we went to this ER. I was terrified to get bad news and couldn’t believe it when I did. Then a few days later, I had my D&C. I had left without my babies in this hospital, twice. 

I have yet to return to the labor and delivery wing. There are so many memories from the day Jensen was born there that I’ve revisited over and over. They’re hard. I’m terrified to go back and see those same sights or maybe to see a happy experience knowing mine was everything but. After my D&C, I promised myself I wouldn’t come back here unless it was an emergency or if I was ever lucky enough to have another child. 

It’s only been four months since my surgery and on this Tuesday, I got a call that was completely unexpected. 

My mom had to get emergency surgery today. 

Her room’s window faces the labor and delivery wing. I’ve faced it head on and know exactly what room I had Jensen in. Facing that place felt like the scariest thing I could handle today, but it wasn’t. When I had Jensen, although I felt completely hopeless, I was in control of my breathing and physical pain. I’ve never thought of how it would feel to be my mom or dad watching me go through labor knowing Jensen was already gone. Today I know how it feels to be helpless when someone is in pain. 

This hospital was a space reimagined in these moments. The wing that holds my nightmares is just a part of the hospital today. I’ve stared at it and waited for those memories, but the intense feeling of wanting to help my mom not feel pain overrides my fear. Plus, I know Jensen knows his way back here. I feel him and people have mentioned his footprint on me. That’s my sign that she’s going to be alright. 

A place where I have so fear for has shifted in helping heal my mother and I hope it’s much sooner than later. 

Tribe Circle. 

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Technically today’s Capture Your Grief prompt is ‘Sunday Tribe Circle,’ but my Sunday has revolved around self reflection, healing, and resting. This is because yesterday was all about my tribe circle at one of the annual Pregnancy and Infant Loss Awareness walks I go to. 

If you’ve never been to an awareness walk like this, it’s full of conflicting emotions. You’re surrounded by a ton of people who have had similar experiences to you. The room is full with bereaved parents and their support people. In this journey, it’s hard to feel like you belong anywhere or that you’re the only person who’s walking this path. At events and walks like these, you realize you’re not alone at all. On the other hand, it’s devastating. When I arrived yesterday, the line to just get registered was SO long that they had to have two separate ones. It dawns on me that each person has felt this immense loss. All that pain. Yet, somehow they’re able to keep living and moving forward with their child always in their hearts. 

To mark our second year of walking for Jensen, I made another pin. Last year’s was the ‘J’ button with all his colors. This year’s was my meaningful mantra, greatness starts here. (Both pictured above.) It’s a way I can share a little about Jensen with someone just looking at me and the pins. I think it’s also nice for people to see where I am in my grief journey and maybe it will help them out. 


Through my journey, my tribe circle has gotten larger. The group walking for Jensen this year all dawned his mantra ans have helped me heal with each step of my journey. Not only do I have the support of my family and friends, my tribe circle continues online through Facebook and Instagram. Most of these women and men, I would never have met if our children didn’t die. We were complete strangers, but have learned to lean on each other because we all understand. Awhile I go, I posted a graphic that said, ‘find your tribe, love them hard.’ Sometimes I don’t know where I’d be without my support system. It makes me think of all the mothers in the past who were silenced and didn’t know who to turn to. Projects like Capture Your Grief and so many others help the bereaved across the world not be silenced like those before us. 

During the walk yesterday, I was hot and wanted to complain about it feeling like it was constantly uphill. Then I saw all the children walking for their brothers, sisters, cousins, aunt, and uncles and I realized I’m walking for Jensen and the steps he’ll never take. We’re so lucky to be living, even when life and losing our children feels like anything but luck. So, I carried on with Jensen forever being held in my heart. 

When we arrived back to our starting place, we were prompted to take balloons to release to the heavens. I love balloon releases. They are so relaxing and feels like a little part of my grief and sadness is being lifted. It’s such a beautiful sight too. Blue, pink, and white flooded the skies; each representing a child the releaser was walking for. This also visually represents the tribe circle the bereaved community has. We all walk and advocate from our different experiences, but for the same cause and love.