In 1988, Ronald Reagan declared the month of October to recognize the grief of parents who have lost a child. October 15th became the day to remember them. Since then, at 7pm no matter where you are in the world, a wave of light is held in honor of all the babies gone too soon.
All growing up, I didn’t know about pregnancy and infant loss. I didn’t realize there was a whole month dedicated to parents who were hurting and grieving their children. It wasn’t until Jensen had died that I even knew what grief really was. Since then, I know this heartache and I’ll never forget what October means to so many of us parents.
On this day and every day, I will continue to say his name and tell his story.
His name is Jensen. He was born April 5, 2016 in a quiet room, full of people who love him. Although he never made a sound, his life and presence here has always filled my heart and the space around me. He loved music and showing off on scans. I loved reading to him and wondering how he would look.
He may not physically be here, but he’s ever present in our lives. We continue to say his name and hang his picture. There are continued bonds that let us never forget his impact. It’s sad that he’s not here anymore, but I’m so happy that we had him in our lives for just a little bit.
I wish I never knew this type of loss. Some part of me wishes I was the naive girl I was before, but I’ll never be her again. I’ll always wish for a world full of Jensen. The questions that have circled my head over and over again continue to do so. I can picture him at the age he would be and wonder if he would have been a good baby and toddler and now child.
Every day I wish I could see Mila play with her big brother. She has so many questions about him and it breaks my heart every time I have to tell her he can’t come home. Sibling grief is difficult and they feel so deeply at a young age. I know he’s guiding her and loving her from afar, just as she does him.
We just miss and love him so much.
So, tonight, at 7pm, we’ll be lighting our candles at home to keep the wave of light going. If you’re home, i’d urge you to light one too. If not for Jensen or a child that’s close to you, for all the other babies that were taken far too soon.
Okay, so, I’ve already failed writing every day in May.
Instead of writing, like I wanted to, I’ve either been outside, redoing things in my house or making DIY Mother’s Day crafts. With all the stuff happening in the world, it’s still nice to just connect with Mila and me to do heartwork and do the things that make us happy.
This week, we went on a hike. It’s the first one of the year and the first time Mila has been out of town for two months (or however long we’ve been locked down). We both love to be outside and the fresh air was so relieving. There are local trails around us and we drove about twenty minutes to this one, the Norma Johnson Center. We’ve had pictures done there before and it’s such a beautiful location. There were a decent amount of people on the trails, but everyone gave each other space and were friendly too.
While we were walking we had a little project, I saw (online) a color recognition scavenger hunt for toddlers and knew we had to try it. Since Mila is liking more colors than just green, I thought it’d be fun to use this while we walked too. She loved walking to the top of the hill and playing in the little kid area. I loved watching her search for the colors. We found the easy ones first but got stuck on blue. She kept saying blue, blue, blue, over and over again, while she was looking. It was so cute and I could tell she was a little disappointed we didn’t find a blue item.
The colors we did find were perfect. She was so proud of all of them and when we were done with our walk, she wanted to touch them all again and show them off. Watching her learn and just become this little, smart person is one of the best feelings ever.
We probably spent an hour in total out there. It wasn’t terribly long, but it was just what we needed.
When I started writing today, I thought I should look back on the May We All Heal prompt for the day… it’s Unexpected Gains. The days Mila and I have are typically always good. She’s a toddler so she definitely has her moments. Every day with her is a gift. Losing Jensen was the hardest thing I will ever have to go through. Even with all the bad in his death, he and Mila helped me find these unexpected gains. Through grief, I’ve found days where I’m lost in the moment. I still have Jensen in my heart and mentally place him where he should be, that’ll always be the case. But completely unexpectedly, I can value joy and peace again. I never thought I’d get that back. Somehow, they both have gifted me this monumental gain and, really, another chance at living fully.
I would one-hundred percent recommend getting outside and even out of your backyard to give your head some space during this time. We’ve felt rejuvenated since our little hike and it’s given us a little push to get a lot of things done this week. As I said, we’ve worked on some DIY Mother’s Day gifts that I want to post on here, so be on the look out!
It’s been almost exactly four years since your first Bereaved Mother’s Day. I know… it hurts. You’re not sure what happens next or how you’re even supposed to go on after everything has happened. If I could somehow go back in time and just sit with you, I would. I’d listen and let you talk about Jensen, letting you cry or smile or however you felt in those moments. It’s what you needed then and you still need it now.
I’m sorry we had to find out what loss and grief was all about; especially losing him. There’s been so many times in the last year where I’ve thought how I wish I could go back and take those moments for you.
If there’s one thing I’ll always be thankful you did, it’s starting this.
Our memory is awful now; four years of grief will do that to a person. Its been awhile since I went back and read anything from that first year. The way we write… I can read through it now. We’re harder now. When we talk about Jensen or how bad death hurts, it’s a lot more blunt. There’s a blog post we listen to now and they say, “fuck politeness,” pretty often. We’ll get there, I promise. Anyways, I read this post: “Honor Your Motherhood.” Twenty-five whole days of being a mom… you’re doing your best and that’s all that matters.
I remember this was the first time in our life that it was hard to order my thoughts. They rushed around and I couldn’t ever catch them, that doesn’t go away, fyi. So finding a prompt really helped order everything. I’m going to answer them again. Mainly to show future Danielle who’s going through whatever how much we’ve grown and how much she’s grown too.
What does it mean to you to “honor your motherhood?”
Motherhood has changed since that first year… We have Jensen, and we always will. We’ve experiences loss again. We have Mila now too. Since it’s grown and changed, we honor it differently too.
I’m not sure how it is for people with more than one living child, but for us it’s like having a bigger heart. We have Jensen times and we have Mila times. Mila takes up a lot of our time. When she’s awake we’re focused on her and cleaning and taking care of ourselves and keeping up with family and friends and whatever else there is to do. In some ways, the craziness is a way I honor my motherhood with Mila and Jensen. I know this is how he would want us to keep going. It’s funny because even in the craziness of our life, we can always picture where Jensen would fit in.
Honoring our motherhood with Jensen is still one of the most special things. On that first Bereaved Mother’s Day, you did the things to remind you of him. I love that. You helped put Jensen in every room of our home and on our body too. See, that’s a lot in four years. We were a lot more literal in those early days. It was our way to scream to the world that we had him and he means so much. He still does. We honor our motherhood with him by still saying his name, sharing him with Mila (the way she says his name, the cutest thing), and including him in ways that are special to use, but in quieter ways.
Mixing both parts of our motherhood and just by simply moving onward is honoring our motherhood. There’s been so many setbacks in this time period, but you keep going. If that isn’t a strong mother, I don’t know what is.
What would help you feel like your motherhood is being honored?
I remember being so afraid everyone would forget about Jensen. When we first saw this prompt, we wanted everyone to know about Jensen, not necessarily that we were a mom. I think all moms put their child ahead of their wants and needs, but when there isn’t a child physically there, it’s hard to do that. It’s hard for other’s to see and understand that you’re still constantly thinking about your child and wanting the best for them. Honoring our motherhood then felt like making sure our motherhood was concrete. It was, even without him there in your arms. You’re still a mom. That space you hold in your heart and mind for him make you one.
I’m so sorry he wasn’t there to hold and love on. Just like I’m sorry he’s not playing around the house right now.
Honoring motherhood now… gosh, it’s changed so much, but the core of it remains the same. I think we honor it every day. We show up and do our best, mostly with a smile on our face. Mila’s happy, Jensen will never be forgotten, and we have grown. In the calm moments, we take a step back and realize what we have, what we’ve lost, and where we want to go. Wanting to go forward and keep doing better is the best way we honor our motherhood now.
What can you do today, on Bereaved Mother’s Day, to honor your motherhood?
Since Mila’s been born, it feels like Bereaved Mother’s Day is a day to honor our grief in motherhood. I think the best way to honor and connect with that part of motherhood, I’m setting time aside to sit outside and take in the moment. We’ll say his name and look through his pictures with Mila. Maybe I’ll read more of your posts to honor us and this crazy journey we’ve been on.
If I could end with anything or scream through time, I’d let you know that the version of us that you’re living right now is the strongest one. I think future Danielle would agree too. You, we, I, or whatever is easier to conceptualize, will always be Jensen’s mom. Your motherhood will always be valid and honored. I’m sorry that this had to happen to us, but I’m so thankful he’s ours.
I feel like it’s been awhile since we’ve talked, but I see all of you and your babies gone too soon.
Whether this is your first Bereaved Mother’s Day or fiftieth or somewhere in between, I want you to know that your child and the way you mother them is not unseen. I know some days are harder than others and maybe you’re in a long line of hard ones, but you are doing the best you can do. Please reach out on this day or any of the difficult ones you have. There are so many of us here to remember our babies with and to lift each other up when we need it most. And if you’re having a good, gentle day, I’m so happy those moments are here for you. You are so deserving of them.
I’m so sorry that we know this deep of a loss and the tidal waves of grief that comes after. There’s nothing quite like it. On the other hand, there’s love. That love you feel for them, oh, it’s so powerful. This love powers through death, not that anything could tear apart the love a mother has for her child.
Like everyday, say their name. Share a memory about them with someone who knew them or someone new. I know how proud you are of them. They’re proud of you too.
So today, and everyday, I want you to know, I see your motherhood and your child matters and is loved by many. And you, beautiful mother, for as much love as you pour out, there is so much coming your way.
At the beginning, darkness was ever present. Then, he showed me light.
It’s the start of a new month and with May brings a lot of different things. One, that I’ve tried to do since Jensen has been born, is May We All Heal.
Usually I end up starting strong, then something pops up and I get off track. Since we’re stuck at home, I’m hoping to be creative each day and maybe even have Mila join in.
Today, I wrote a haiku. I’m not the best at poetry, but I felt like this poem spoke to my heart. Losing Jensen was the hardest moment of my life and the grief after has been life changing. It was all darkness, but slowly, he’s led me to healing and becoming stronger through love.
Today we made a memory. One that isn’t going to go away any time soon either. I marked Mila’s height on one for the doorways in our house.
Through this little mark, I learned two things. The first, Mila is actually pretty tall. I didn’t realize it until I stepped back and saw how high it was compared to a door. When I see her running around, I still see a little girl. I know she’s getting tall, but wow. The second thing… how much I’ve healed in four years.
I know that probably sounds silly. How does a little mark show growth? For me it’s the permanence of the mark. When I was pregnant with Mila and for so long, I thought I was going to lose her. I thought she was going to die so many times during pregnancy and that first year. Then I thought she’d be taken away with the psychological mind games that were played with me.
It sounds dramatic and overboard, but it’s true. She’s mine and no one can take her away, but I never believed she could stay. I felt like if I let myself believe it, something would happen. It’s been an awful battle. But she’s not going anywhere.
When I look at that little mark, I can picture the next sixteen years of measuring her. You know if she lets me and all. But I’ve never been able to see past so many years ahead. I’ve always thought I just had today. Those intrusive thoughts with parenting after loss are hard and can suck the joy out of everything. I’m really trying though.
We made a memory today and the physical memory is about an inch long. I know when I look back on those hashes, I’ll see Mila wanting me to remeasure her and the shock in her face that mama drew on the wall. I’m sitting here picturing how tall she’ll be next year and thinking I’ll write what she wants to be when she grows up beside them too.
I’m so happy about her growing and progressing. There are so many moments I wish I could pause, but I want her to keep getting older and growing as big as she’ll get. I know what it’s like to not have my child grow and have their hashmark on the doorway. Jensen has taught me so much about life and myself and Mila is teaching me how to move forward and grow. One piece of information doesn’t shadow the other. The light and heavy are always present in my life. I’m just doing my best juggling the both of them and making sure they both know how much I love them.
Amidst everything happening in the world and the personal things too, I’ve not been looking forward to April. It’s the fourth one since everything changed. That feeling of grief climbing out of my chest is present.
Some part of me thought this April would be different with the coronavirus, Mila being a lively almost two year old, and dealing with things happening closely to me that I can not control. Yet, here I am. The last few days, it’s weighed on me more heavily. I just can’t believe it’s been another year without him.
I’m trying to be positive, but it’s just unfair. All the things I ‘should’ be doing for Jensen are more present around these days. I keel thinking about how much different quarantine would be with him. Life in general just would be… different. It’s so hard to explain. There’s no word or explanation that would make sense to other people. Here we are almost four years later and I can’t quite find the words to describe how sucky it is to not have your kid with you.
Mila helps. I’m weary of typing that because it’s unfair to her and parents who can’t or choose not to have more children; but she helps me. She makes me smile and I remember April is her month too. Jensen wouldn’t want her to be sad or for us not to celebrate how beautiful this month is even though it’s filled with sadness too. I know Mila senses the sadness. She’ll come over and flash her smiles, stroke my face, and just give me a kiss. I know deep down he picked her out for me.
One thing I’ve learned through it all is we’ll make it. Somedays you just have to take it second by second, but we’ll survive.
Like I’ve said in the past, the days leading are always worse than the actual day. Grief makes anticipation feel like dread. This past weekend, Mila hasn’t felt well and I was scared that it’d roll into April. So when she woke up fever free and happy, I knew it’d get easier.
We actually went and picked up a picnic table/bench that we’ll probably use frequently in the next few months (social distancing was practiced). She’s immediately taken a liking to it and it just makes me feel better. Finding happy moments when everything feels heavy makes the day a little nicer.
I’m hopeful April’s will get easier. I’m hopeful that I’ll start celebrating them again. I’m hopeful that Jensen’s day will be seen as happy and I won’t be as sad. I know I’ll always carry the grief and heaviness of losing him, but I’m getting to a part in my journey where it can coincide with happiness simultaneously.
Today I’m just grateful for Jensen, Mila, and watching her cheesy fingers throw Cheetos to Max. I’m hopeful for peaceful April’s and breakfasts our on our new picnic table. This year, I’m ready for April and going into year five of grieving.
Parenting after loss is full of ups and downs. There are a lot of days I think of the what if’s and wish to see Jensen and Mila playing together.
Lately, Mila’s been more explorative in how she plays. I showed her how to make a tent by putting a blanket over her little table and she thought it was the coolest thing ever. She’ll play under there for so long and evening puts her animals to bed under there. It’s the sweetest thing ever.
In the back of my mind, I’ve been thinking of Jensen’s teepee I got for him. It was supposed to go in the corner of his room for a little reading area. Since it never got to be put up, it’s been packed away in my basement. This morning, Mila was begging me to get under her little kiddie table and with her, the dog, and I, the table wasn’t cutting it. I decided to be strong and go in Jensen’s corner of the basement to get the teepee.
Honestly, it’s hard. It’s hard to see his stuff that’s never been used and is just there in boxes. Knowing that there’s a live that should have been lived in a corner in my house, truly breaks my heart. I don’t think I’ll ever have the right words to describe what it feels like. But I bet a lot of loss parents know the feeling I’m talking about.
Anyways, I got into his corner and knew right where I was looking. Mila and I brought it back upstairs and I sort of just went into mom mode. Her and I put together this huge 5 foot tall teepee in the middle of the living room. She was shocked to see it and as soon as it was up, she ran right in. Her smile was so big and it just warmed me up.
It turns out Mila, Max, a hundred stuffed animals, and me all fit in this big tent.
Any time Mila has used something of Jensen’s, I’ve never felt regret doing it. She wore some of his clothes, has his crib up, and used his car seat and stroller too. On the other hand, there hasn’t been anything super sentimental she’s used yet. We changed that today and I’m happy to have done it. I let her know this was Jensen’s tent too and he would’ve loved playing in it with her. She nodded and said Jensen’s name, then continued playing.
Jensen will always be her big brother and I’ll always be both of their moms. I don’t think being a loss mom will ever get easier, but I hope learning how to juggle both will. I don’t want Mila to ever think bringing Jensen’s name up or asking questions is a bad thing. Or I don’t want her to be afraid to look at and use his things makes me upset because it doesn’t. It’s just another part of this journey that I’ll figure out.
For now, I’m so proud of the little girl Mila is becoming. She has a brother who will always guide and protect her. Although he might not be here to physically play with her, I know Jensen’s spirit flows through our home. I’m just happy to be here through it all, learning to be the best mom I can.
Parenting after loss isn’t easy, but I’m thankful to be their mother.
There was a time I wrote a letter to you every night. They were what I depended on – for so long. It felt like my one connection to you. Sometimes I felt like I didn’t write my day or thoughts down, then you wouldn’t know what was happening. When Mila came and I didn’t have a moment to write to you everyday, I felt broken. Like such a failure, but I started to realize… you were with us, always.
My ‘slacking’ hasn’t just been with your letters, it’s been with writing in general. ESPECIALLY for Pregnancy and Infant Loss Awareness Month. I used to post and write every.single.day but this year has been so different with what life has in store. Maybe next year will be another story.
As the days, weeks, months, years have passed, there have been constants. I miss you every single day. Sometimes I just find myself wondering what color your eyes were and how you would be with Mila. When I get overwhelmed with her antics, I think of how much I wanted them with you to settle myself. That’s another constant, picturing you. Always. The longing and wondering can hurt, but they bring me comfort too. Most of all, my biggest constant is loving you.
I’ll never be able to accurately describe my love for you. It’s different form loving Mila or family or anyone really. There’s so many levels. The memories. The loss. The remembering. The surviving. The… you. Through it all, you affect every aspect of me and how I handle situations I find myself in. It’s sort of insane how one baby, one son, the one you have changed my life, forever. And all of it’s centered from the love I have for you.
Thank you for choosing me to be your mom. I couldn’t imagine my life without the time I spent with you. Thank you for making me a better person. Thank you for showing me how deeply I can love. Thank you for helping teach me how to hold on to the good moment and breathe through the bad.
I promise to keep doing the best I can do, while holding you in my heart everyday. I wish I could’ve had more time with you. I wish I could see your eyes looking into mine and feel your hand holding mine.
You are one of my favorite parts of myself and I’m so proud to call you my son.
Our family portraits will never look ‘normal,’ but they’re perfect to me. They’re still full of love and an actual representation of who we are as a family.
I was being brave today. This whole month I’ve felt exhausted. In the middle of potty training Max AND Mila (yes, I will post those adventures soon), doing school work, and trying to get back in the swing of subbing, plus everything else, I found myself neglecting what actually means a lot to me… Capture Your Grief. Every October I’ve done my best with it and this one, I just have been doing what I can do.
When I saw today’s prompt, I told myself I was 100% participating and going to get a picture of us. I picked out Mila and I’s outfit and Jensen’s bow. We grabbed our fall stuff and a big blanket to take outside. For like 15 minutes, I was in the backyard finding the perfect spot while rigging a stand up for my phone to sit…
I wanted it to be perfect with a fall background and all of us looking in the camera. Let’s just say… that didn’t happen.
Toddler’s aren’t the best at taking direction and Max wouldn’t sit still and Mila kept taking Jensen’s bow off and it seemed impossible to run back and get us all set up in time in a matter of ten seconds.
Did I feel a little defeated? Yes. But, I looked at Mila and held Jensen bear close to me and realized the most important people in my life didn’t care about a picture. They cared about me and know I’m doing my best. I let grief and stress and feeling like a bad mom get the best of me. It happens to all of us and that’s okay.
After my moment, I squeezed Jensen bear again and got Mila to come sit with us. I was going to get this picture no matter what and what’s wrong with a selfie?
This is our life. It’s three and a half years of grieving and a year and a half of parenting after loss. It’s one full of love and craziness. One that the only thing I’d change is having Jensen physically here with us.
I love our little family portrait today. My littles are in my arms and close to my heart. I’m smiling and everything is going to be just okay.