In 1988, Ronald Reagan declared the month of October to recognize the grief of parents who have lost a child. October 15th became the day to remember them. Since then, at 7pm no matter where you are in the world, a wave of light is held in honor of all the babies gone too soon.
All growing up, I didn’t know about pregnancy and infant loss. I didn’t realize there was a whole month dedicated to parents who were hurting and grieving their children. It wasn’t until Jensen had died that I even knew what grief really was. Since then, I know this heartache and I’ll never forget what October means to so many of us parents.
On this day and every day, I will continue to say his name and tell his story.
His name is Jensen. He was born April 5, 2016 in a quiet room, full of people who love him. Although he never made a sound, his life and presence here has always filled my heart and the space around me. He loved music and showing off on scans. I loved reading to him and wondering how he would look.
He may not physically be here, but he’s ever present in our lives. We continue to say his name and hang his picture. There are continued bonds that let us never forget his impact. It’s sad that he’s not here anymore, but I’m so happy that we had him in our lives for just a little bit.
I wish I never knew this type of loss. Some part of me wishes I was the naive girl I was before, but I’ll never be her again. I’ll always wish for a world full of Jensen. The questions that have circled my head over and over again continue to do so. I can picture him at the age he would be and wonder if he would have been a good baby and toddler and now child.
Every day I wish I could see Mila play with her big brother. She has so many questions about him and it breaks my heart every time I have to tell her he can’t come home. Sibling grief is difficult and they feel so deeply at a young age. I know he’s guiding her and loving her from afar, just as she does him.
We just miss and love him so much.
So, tonight, at 7pm, we’ll be lighting our candles at home to keep the wave of light going. If you’re home, i’d urge you to light one too. If not for Jensen or a child that’s close to you, for all the other babies that were taken far too soon.
Why does it seem like every time I come to write here it feels like forever since the last time that I have? Maybe because it has been.
In the last few weeks, I’ve turned a whole year older, started back college classes, and am working full time. So, technically I haven’t had a lot of time to write, but I’m missing it. My goal for twenty-seven (how old I am) was to blog three times a week. Guys, I already failed! But, you can always start fresh.
The last time I wrote, I shared that I started back with therapy. I’m still going strong with it and it’s been helping in a lot of ways. In others, I still have a lot of work. Rome wasn’t built in a day though. Therapy has given me a lot to think about: past traumas, my grief, and my future. I should say, it’s given me constructive ways to think about all of it. Anxiety forces you to think of all those things, but I’m starting to see how I can still function and think about those things too.
Two weeks ago, I sort of had a full circle moment. My therapist and I are going through my trauma timeline. It sounds a lot more… scary… than it actually is. It’s still a little scary though. On that particular day, we talked about Jensen.
I found out… it’s still really hard to talk about the events of that day and the weeks following.
Duh, right? You don’t just wake up one day and are completely healed when your child dies. It doesn’t work like that. Shouting that to everyone that thinks it does. I’ve told Jensen’s story to so many times: out loud, writing it down, and in my head. Earlier in my grief, I was getting more comfortablewith used to talking about his death and all my emotions after to other people. It’s been a little while since I have and I didn’t realize how big of a difference it was.
When my therapist asked if I was alright sharing about Jensen, his death, and how I handled things after, I told her yes with no inkling that I would be… weeping during it all. Yes, weeping.
I told her about my pregnancy and how hard it was emotionally on me. When we got to the day we found out he died, I went into detail about how my stomach just dropped and it felt like I was dead inside. I skipped around on the actual details of the birth because I felt my throat closing up. The post emotions of his birth and funeral and life after were hard to talk about too. It was just so difficult to bring back all those feelings and put myself back in that place again. That talk and just thinking about how traumatic his death was and still is has really.. re-affected me?
So many times parents are told they’re going to be better with time after losing their child. I’m not going to disagree in the fact that everyday life gets easier. It does. Your routine changes and life still goes on. That sounds harsh and I wouldn’t have wanted to hear that in the first few months after, but it’s true (for me). I think when outside people see parents after loss reemerging into their routine or job or whatever, they think it’s all ‘better.’ On the outside, they’re complying with society and not being outwardly upset.
For me, I can see my switch. I have to do what I have to do to work and do school and parent Mila and whatever else may need done. When I’m out in the world, I’m not as quick to snap that my son’s dead to people that say things. I’m more aware that the world isn’t really… sensitive to dead babies or uncomfortable grief. It’s not a settling thing at all, so I get that. I don’t bring Jensen up in every conversation anymore. When someone leaves him out or forgets him, I internalize it. I still feel the hurt, but I try to make others feel.. better.
BUT (!!!) it still hurts. I’m functional, but I still miss Jensen with every ounce of me.
I can tell you certain comments sting and having someone not mention or forget about him feels so awful. Talking about it all with my therapist made me realize what I (and so many people) went through was the worst thing ever.
The silence. The decisions. The hollowness. The tears. The solitude. The grief.
I think I got into the routine of being a mom to Mila and life, that I put those emotions on the back burner. I let the outside, ‘it gets better,’ get to me. Letting everyone else be comfortable in my child dying has put my real emotions, trauma, and heartbreak in an unaccessible place; until it has to come up.
Through the teary session and the last two weeks, I’ve definitely given myself more credit for all I’ve endured through losing Jensen. Our minds try to protect itself from all that pain. I’m thankful for that, truly. I guess I just wanted to say through this whole thing is I miss him and I’m proud of where I am today.
I think it’s also been a productive thing to feel all of these emotions again. Jensen would be starting preschool this year, which I haven’t talked about with anyone. I’ve been suppressing a lot of things lately (thanks exhaustion). Sharing Jensen with someone new and showing my love for him and how I care for him now has helped this stage of healing. I know I’ll always feel this emotional response when talking about him and it’s okay. It’s okay to be sad he’s not here, just like it’s okay to celebrate his life.
There isn’t a rule book about losing a baby or child at any age. If you haven’t been through it, you know nothing about it. That loss and hole in your heart doesn’t get easier, it just gets lighter to carry through time.
Here’s Jensen’s story if you’ve never read it or would like to read it again. I wrote it in 2016 and have been thinking about rewriting it again to see how I remember it almost five years out. If I do, you can bet I’ll share it here.
Okay, so, I’ve already failed writing every day in May.
Instead of writing, like I wanted to, I’ve either been outside, redoing things in my house or making DIY Mother’s Day crafts. With all the stuff happening in the world, it’s still nice to just connect with Mila and me to do heartwork and do the things that make us happy.
This week, we went on a hike. It’s the first one of the year and the first time Mila has been out of town for two months (or however long we’ve been locked down). We both love to be outside and the fresh air was so relieving. There are local trails around us and we drove about twenty minutes to this one, the Norma Johnson Center. We’ve had pictures done there before and it’s such a beautiful location. There were a decent amount of people on the trails, but everyone gave each other space and were friendly too.
While we were walking we had a little project, I saw (online) a color recognition scavenger hunt for toddlers and knew we had to try it. Since Mila is liking more colors than just green, I thought it’d be fun to use this while we walked too. She loved walking to the top of the hill and playing in the little kid area. I loved watching her search for the colors. We found the easy ones first but got stuck on blue. She kept saying blue, blue, blue, over and over again, while she was looking. It was so cute and I could tell she was a little disappointed we didn’t find a blue item.
The colors we did find were perfect. She was so proud of all of them and when we were done with our walk, she wanted to touch them all again and show them off. Watching her learn and just become this little, smart person is one of the best feelings ever.
We probably spent an hour in total out there. It wasn’t terribly long, but it was just what we needed.
When I started writing today, I thought I should look back on the May We All Heal prompt for the day… it’s Unexpected Gains. The days Mila and I have are typically always good. She’s a toddler so she definitely has her moments. Every day with her is a gift. Losing Jensen was the hardest thing I will ever have to go through. Even with all the bad in his death, he and Mila helped me find these unexpected gains. Through grief, I’ve found days where I’m lost in the moment. I still have Jensen in my heart and mentally place him where he should be, that’ll always be the case. But completely unexpectedly, I can value joy and peace again. I never thought I’d get that back. Somehow, they both have gifted me this monumental gain and, really, another chance at living fully.
I would one-hundred percent recommend getting outside and even out of your backyard to give your head some space during this time. We’ve felt rejuvenated since our little hike and it’s given us a little push to get a lot of things done this week. As I said, we’ve worked on some DIY Mother’s Day gifts that I want to post on here, so be on the look out!
At the beginning, darkness was ever present. Then, he showed me light.
It’s the start of a new month and with May brings a lot of different things. One, that I’ve tried to do since Jensen has been born, is May We All Heal.
Usually I end up starting strong, then something pops up and I get off track. Since we’re stuck at home, I’m hoping to be creative each day and maybe even have Mila join in.
Today, I wrote a haiku. I’m not the best at poetry, but I felt like this poem spoke to my heart. Losing Jensen was the hardest moment of my life and the grief after has been life changing. It was all darkness, but slowly, he’s led me to healing and becoming stronger through love.
Early on in your life, you’ll learn that not everyone’s journey to motherhood looks the same. You’ll know that there are moms everywhere around you, even when you can’t see their children. There are some babies us moms carry in our hearts.
You wore one of your ‘little sister’ shirts today. It’s something I am so proud you get to wear because your big brother means the world to me; and so do you. Death cannot steak these titles from you both. You are always connected and have an angel watching over you. Even though we talk about Jensen everyday and integrate him in our daily routine, there is an extra special reason you wore this shirt… today Bereaved Mother’s Day.
I think it’s hard to explain why Bereaved Mother’s Day is important. Why not just ‘celebrate’ everything next weekend? Well, in the past I’ve done that too. Today, for me, is when I can allow myself to grieve. I cried when I woke up, when I put that onesie on you, and now as I’m writing this watching you sleep in my lap. Grief is hard, but this is apart of my motherhood. If I never lost your brother, I wouldn’t know about this day. I wouldn’t know about the many different paths to motherhood. Sometimes I wish I didn’t, but this is how life is now. Loss moms everywhere can share their stories, let each other know we’re not alone, and help educate others.
Being your and Jensen’s mom is my favorite title for myself. Motherhood is the most rewarding and sometimes heartbreaking experience I’ve been through. On this day, I get to mother Jensen in a way that can help others and myself. I also get to mother you on these Jensen days to make you a more compassionate person.
I promise to always mother you in the best way I can. Just as I promise to mother your brother in the ways I can too.
Thank you and Jensen for giving me this title and allowing me to be your mother.
Today’s May We All Heal prompt needed to stray away from the letters in writing your sister. It’s actually not the prompt, more as the actual day. I need to share you.
The fifth of every month will forever be yours in my eyes. Today’s monthday marks twenty-five months or two years and a month since you’ve been born. It also shares your sisters three week mark. But today, I needed to write to you.
You’ve seen me throughout this entire journey: the good, the bad, and the ugly. There have been times of complete isolation. It felt like no one in the world knew what was going on in my brain. No one had ever lost you of the relationship we had, so in my mind they’ll never understand. But around this time two year ago, you helped me find the loss community. That isolation turned into healing because I realized there were people grieving their child and I wasn’t this crazy person.
Since your sisters been born… there’s a different type of grief isolation. I try to be my happiest for her and live in each moment. Although it’s only been three weeks with her, I haven’t been able to write your nightly letter. That’s so hard on me. Once I get this routine down, I’ll be able to start up again. I’ve noticed myself keeping my emotions down too. When I put your sister down to sleep and I try to, they all come up.
Maybe it’ll be this way forever. I just want to find a good medium with it all and for you to know you’re always being thought about.
I hope heaven is a celebration everyday and that you stay close to your sister and I as we honor you and motherhood this weekend. You’re always walking with me. I know you make yourself known to Mila too.
If a person could feel their mother’s emotions in the womb, you’d know all about anxiety.
I never used to be an anxious person before. Of course I worried about trivial things all children and teenagers face, but nothing like I’ve experienced now.
The first time I had an anxiety attack is when we found out Jensen had Down syndrome. I didn’t expect any ‘abnormalities’ in any of the tests with him. In my naive mind, nothing bad ever happened to babies or pregnant women. You probably think that’s crazy since you know how paranoid I am about pregnancy in general. Anyways, after those results, I couldn’t catch my breath and it felt like the world was sitting on my chest. After a few days, that anxiety went away. He was mine. I would do anything in my power to give him the bed of everything. So, I did what I do best and prepared.
It wasn’t until a few months later that I had my second ever anxiety attack. When we found out Jensen was gone, I fell apart. I guess it was like a major life attack. My blood pressure spiked, my vision went black, and I couldn’t catch my breath. Life felt like that for months after abs sometimes still does…
Nothing traumatic had ever happened in my life before that. I didn’t have any reason to worry about things before. My mind didn’t overwork. Then, as with everything, my world flipped upside down.
I worried every time my phone rang or if someone didn’t text back quick. Then I went through a stage where I didn’t care about anything. My anxiety flipped-flopped like that until I got pregnant with you. Then a new type of anxiety slapped me in the face: pregnancy after loss.
Everyday I woke up wondering if this would be the day you would be gone. When you hit big enough, I’d poke my belly until I felt you moving, then could breathe for a little while. I didn’t sleep much. My mind went through every horrible scenario. At every appointment, I asked my doctor if this anxiety was good for you and that I just needed you to be born alive. They knew all about Jensen so they didn’t think I was extra crazy for bringing it up each time.
With your birth, the anxiety of my body failing ended. You were here and in my arms. The longer you looked at me, the less I felt that anxiety.
Now that your here, I worry about other things, but it’s different. I’m not sure how to explain it.
As a mom and especially a loss mom, I’ll always have anxiety. I worry about you when you sleep, when I’m in the shower, or anytime I’m not holding you. It’s just because I love you so much and want you to be safe.
I hope you never experience the trauma and anxiety I went through with stillbirth. Even though I would never trade your brother or my time with him, I wouldn’t wish the aftermath of the mental madness of child loss on anyone. With that being said, when you are feeling anxious about whatever you’re going through during your life, I’ll help you make it through. I’m always here to listen and if you want my advice I’ll give it to you. One of my jobs for the rest of my life is to comfort you, even when you’re a grown woman facing this big world.
One of the things Jensen taught me that I’m able to teach you is that we can make it through anything. All it takes is a lot of love and a little patience.
This is how we began this morning. A walk around the big block before it got too hot. You love being outside and I love hearing the birds, that reminds me so much of Jensen, all around us.
Beginnings used to be one of my favorite things. They mark the start of a new adventure. A way to learn more about the world and yourself. Beginnings were awesome.
The beginning of my motherhood is my favorite. When I found out I was pregnant with your brother, I was full of joy and hope for the future. Of course I was scared about certain things, like how crazy different my life would be after he was born and if I was going to be good at the whole mom thing. My heart told me I’d be just fine though and your brother always made me feel so calm. He made this beginning so sweet, I couldn’t have asked for anything better.
What I didn’t realize about beginnings was they sometimes were born out of really horrible situations.
The end of my pregnancy and Jensen’s birth was the start of my grief journey. I didn’t expect my motherhood to lead me to this point, but I was thrown in to this world where babies died and moms had to live without their children for the rest of their lives. It’s so hard.
In that beginning, you wouldn’t have recognized your mom. I know you’ve felt me sad or when I’ve had an anxiety attack, but this was different. Nothing could make me smile. A cloud of grief and shock clung to me everywhere I went. My days and nights meshed together by sleep and tears. I wouldn’t wish the beginning on any person in the world. I hated that my wonderful beginning with your brother brought me here, but I fought not to let grief and depression and everything else I was feeling stop me from remembering him with the light he brought to my life.
A little over a year after Jensen was born, a new beginning happened: pregnancy after loss. When I found out I was pregnant last spring, I felt like I could hope for the future again. Unfortunately, this hope lasted for a short amount of time. This beginning and end sort of go together. But it brought me to the next one, which gave me you.
I wish Jensen could physically be experiencing the beginning of your life here with us. A big part of me thinks he was there picking you out before I even knew you’d be with me.
If he’s taught me anything I could pass down to you, it’d be that no matter how hard things get, you have to keep moving forward. You don’t ever have to move on from something, ignore any of your feelings, or forget, but you have to keep going for whatever reason. You have this beautiful gift of life that so many don’t even get a chance to have. I know that probably sounds like a lot of pressure, but I want you to know how special and lucky you truly are, so would your brother. Take it from your mom, who has encountered some of the worst beginnings, that you are going to do great things in this world. When things go wrong in life (and they sure will) you can start a new adventure or begin again.
You always have me and your brother cheering you on. And I promise you’ll never be alone through any of your beginnings.
This is my second year participating in the project. Last year was definitely a learning process for me in participating with the community and making something that reflected my grief, motherhood, and of course Jensen. I wrote a little post to introduce my flag and explain the meaning behind it, here. This year, I’ve been a little more relaxed with my flag. I had one design in mind, but when I went into the craft store, that idea went out the window and I came up with something so fitting.
I’m not going to share the whole flag and it’s meaning until next week, but I wanted to show some snippets of the flag while I was creating today. Also, I wanted to give you all some tips if you’ve saw the project, but have been weary of committing. Hopefully this can inspire you to be apart of this great project and day.
Check Out CarlyMarie’s Page for Information
CarlyMarie is a beautiful loss mom who has been in the community for ten years now. She does all sorts of projects through the year to helped bereaved parents with their grief and honoring all our children. This page is going to give you the complete background of what the project stands for and how it came to creation. It also gives you a great starting place when it comes to purchasing items for your flag. Such as, the dimensions of the fabric you’ll use and videos of how others have made prayer flags.
Also, it includes event links and social media hashtags to connect you more to the community and see what everyone else made.
The possibilities are endless when it comes to creating a prayer flag for your child. Whatever you can think of, you can create. I know it.
Last year, Jensen’s ‘J’ initial was the highlight of the flag. Incorporating their name or their initials is a perfect way to add a big touch of them. I also used his colors, blue and orange to focus on. These colors were used in his nursery and for my baby shower. You could possibly use a color you identify your child with or any theme. Another item I incorporated last year was flowers. I always picture Jensen sending me flowers and it was so peaceful adding them. If you get signs from your child, such as feathers or butterflies, add them. This is the fun part of seeing how all our babies are different.
This year, I’m mainly using his colors and buttons… so excited to share what everything means next week.
Don’t Overthink Your Design
I was guilty of this last year. Sometimes (most of the time) I can be a perfectionist; I’m a Virgo, enough said.
You know your child better than everyone else. Whatever you choose to add to your flag will be perfect no matter what. Everyone is in different stages of their grief too, which will be apparent in each and every project. Listen to that creative voice in your head and jump in.
Here’s something else not to worry about, if you don’t find an item that you had pictured in your mind, don’t compromise, but don’t let it drag you down. You will be surprised of what you can create. For me, it’s always way better when it’s done than what I had originally planned.
The hard fact is we never wanted to be in this position of making a prayer flag for our child. There are hundreds of things we should be doing for them instead. Sometimes projects like these can be overwhelming depending on where you are in you’re journey. Believe me, I understand.
I urge you to try it though.
It is so heartwarming to be making something for them. This is one way we can still parent them and show our love. Working with your hands is so healing and, for me, it’s fun to actually hold items that remind me of Jensen. I put on some Jensen jams and rocked away with my glue gun in hand. Try to smile and even have fun while creating.
Embrace the Community Cheering You On
Whether you decide to share you flag publicly or keep it private, we’re all here for you, always. There are times when we don’t feel confident in what we’re doing, especially after loss. There are people, like me, that are here to encourage you to keep going and just to listen.
As I mentioned above, there’s usually an event page on Facebook that participants can share their flags with each other. It is such a supportive space to share and hear others stories. I would recommend joining in on this; when I find the event page, I will definitely post on Jensen’s Page. Another social media platform I recommend for the Day of Hope and just with grief in general is Instagram. Last year there were hundreds of moms (and dads) posting their flags and everyone had such kind words.
Just some ending reminders…
The Day of Hope – Prayer Flag Project is on August 19th.
If you want to know more information, check out the event page, here.
There’s still time to participate and make a beautiful prayer flag.
We’ve made it to the end of this May journey. I can’t believe the month’s already over, it feels like it just started! Another month of loss and love down and a whole lifetime to go.
Today’s prompt is ‘future,’ but I’ll get to that in a little bit. I want to reflect on the May We All Heal Project and talk about what I took from it. It is so beautiful every time there’s an opportunity to come together as a community and share parts of our journeys. We’re able to learn so much more about each other, our different paths of grief and healing, and (my favorite part) about our children.
For me, there were prompts I loved to write about and others I dreaded the day I saw the prompt list. Even though I spill my heart every time I write, there are still parts I’m afraid to talk about. Hmm, I guess afraid would be the wrong word. Sometimes I’m afraid of opening up a part of my grief that I didn’t know was there. Which sounds absolutely ridiculous, but that’s how it is.
There are always talks about triggers.
I find myself battling a wide range of triggers every day. It was no different this month. Coming off Jensen’s birthday and all the emotions that came with his day, May was hard. I’m exhausted by the grief and really making myself think hard about each prompt helped, but it was draining. In truth, I keep comparing this to Capture Your Grief in October. I loved that project, but I remember right around halfway, I was beat. So many emotions going into the holiday season and being at the sixth month mark, it was hard. For some reason I thought May We All Heal would be easier on me?
Altogether, I think this experience was helpful to me. I was able to connect with different moms than before, which was nice. It’s always heartbreaking to me to know there’s another mom that is in pain, but I’m glad we’re all here to help each other.
That’s kind of my take away for this month.
Now to the future…
As always, I like to plan for the upcoming month. It helps me keep track of where I am. I have a name project I want to do this next month, which will be fun for me. That’ll be here in a few days, so keep your eyes out. Father’s Day is this month, which is different for me since Jensen’s dad and I don’t really talk anymore. BUT I have my family and my dad to celebrate and I know Jensen would want to be there for his grandpa.
There’s also a big surprise I have for you all. I’m not sure when I’ll be filling you guys in on it, but maybe this next month? Very nervous about it, but I hope it’ll turn out well.
As always, I’ll be writing (not everyday) and sharing on Jensen’s page (everyday). No matter what happens in life, I’ll always share this journey with you guys. Jensen is the biggest part of me and I want to continue sharing him with the world. Everyday I live my life for him. I’ll continue taking the steps he’ll never take and that’s how it is.