#WhatHealsYou

When someone breaks a leg (literally), healing could include surgery, rest, and physical therapy. It could take years for the deep pain of the break to feel like it was almost back to normal. Sometimes, the person might even have a limp for the rest of their life. No matter what you’ve done to heal the leg, it’ll never go back to what is was before.

In a crazy way, that’s kind of how grief and healing after losing a child works.

Obviously, one is physical pain and the other is a lot more complicated than that. But, it’s easier to explain something familiar to an unfamiliar situation. Instead of healing a broken bone in the ways I’ve said, for grief I’ve found ways to soothe myself, I rest a lot, and I go to therapy and support group throughout the month. Shock has fizzled out and there are days were I can feel something else besides deep pain.

I can’t tell the future or how my journey of grief and healing will go. There’s not a right way to live after losing a baby. If we keep on the analogy of breaking someone’s leg compared to grief, at physical therapy a person has to find what makes them want to learn how to walk again. Some like the bike and others like the treadmill. With grief, I’ve had to find things that are gentle on my heart. Those soothers are hard to find when everything looks so bleak, but they’re there… I promise.

For me, it’s a few things.

Leo and Poe can make me smile when I feel like nothing else can. They give me motivation to get up every morning and feed them to start my day. Leo gets himself into crazy antics almost every hour, like jumping on top of the shower curtain. Poe, who usually doesn’t want to be held, will come sit on my lap and let me cuddle on him everyday. His purrs are so loud and deep. They both let me care for them in a way I didn’t think I would ever care for anything again.

Hot tea, reading, and writing have saved me. When I can’t stop crying or when I can’t relax enough to sleep, I go to these each time. The aroma of the tea calms me, reading occupies my mind, and writing gets out all my thoughts. I’ve said over and over that it’s been therapeutic to me and that has been so healing. During those times, I feel like time stops and quickens at once. Getting lost in time is sometimes the only thing I know how to do to help.

Human connection. A huge generalization, but so important. I couldn’t imagine being locked up or stashed away somewhere completely alone. Friends, family, and the loss community have been there in different, but important healing ways. There’s understanding from those who have walked my shoes, encouragement and literally being dragged from places by my family, and a sense of trying to understand from friends. Even though grief is so individual, knowing I’m not alone in this journey through all the facets of my support, have helped me soothe and heal.

The last and most important is Jensen and love. I can’t imagine my life without Jensen being in it, which is probably weird to say since he’s not physically here, but he’s all around me. There are days when the only word that helps me is his name; I write it over and over again. I think of all the days I had with him and how the days were filled with joy. Seeing his face each and everyday calms me. He is all I’ve ever wanted. When I look at his urn with his candle lit, I feel a sense of peace. Warmth floods the room and it feels a lot like love. A mother and child’s love is unbreakable. Sometimes I can imagine it wrapping around my heart and trying to put the pieces back together. Love is what makes my world keep turning. It’s what allows me to get up in the morning to feed Leo and Poe. It’s what flows in and out when I read and write. It’s why human connection is even there. More importantly, it’s all Jensen knows and has.

Love is what heals me.

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‘Walk for the Angels.’

One in four pregnancies end in loss.

My heart knows that fact, but even with online support, it’s hard to see that statistic in person. Maybe that’s why when I heard over six hundred people registered for the God’s Tiny Angels ‘Walk for the Angels,’ my heart skipped a beat. It was still just a number until I saw the line of people waiting outside the church to register. Even then it still didn’t click.

Yesterday was my first remembrance walk since Jensen has been born. I made big orange and navy buttons with a white J in the middle. We went out and bought bright, orange bandanas. I needed to be prepared for the day because I didn’t really know what to expect. It would be the first time I was around a huge amount of people who have been effected by loss, not just the small groups I was used to. There would be a lot of stories and emotions all in one room that I had to be aware of. I probably should have warned my family and Frank about those raw emotions that radiate off.

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Then there we were, in the sea of people in an ocean of grief.

The board members of God’s Tiny Angels spoke of sharing, healing, and helping. Their pillars of support and what they strive to do. I cried as the spoke knowing that each of those have shaped my grief journey. Jensen and I’s support heard those words for the first time, that didn’t come out of my mouth. They heard and they saw love, loss, and the magnitude of how many people are touched by angels. I think the heaviness of sadness was felt by everyone there, but we could surrender ourselves to that emotion and let hope flow in by walking for them.

Each step of the walk, I kept thinking of taking the steps for Jensen. He’ll never be able to take the steps for himself, but he had so many people there for him. As did all the babies gone too soon. The walk was peaceful and hundreds of balloons floated above our heads, symbolizing Jensen and all of his friends being with us. I also thought of the walk as journey of grief too. Although we have to take our steps to move forward, there are always people around to help us keep walking. AND we are always surrounded by our angels.

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As we got back to the church and went to the courtyard to release the balloons, I really could see how many people were there. Families grouped together with their buttons representing their child and packs of pink, blue, and white balloons everywhere you looked. Music was being played and we were asked to release our balloons and messages of love to the clouds, knowing our babies would see them. We let go of our pack of blue balloons with the glimpses of orange lettering on the cards. They danced up to the clouds, not alone, but with all the other balloons from each family. In that moment, it clicked. Each of those hundreds of balloons represented a baby gone and a family whose life was changed forever.

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I watched Jensen’s balloons until I couldn’t see them anymore. Tears fell down my cheeks, the release of love and loss is therapeutic. Although I couldn’t see the balloons dancing in the wind anymore, I knew he still saw them. He grabbed them and played with the balloons in awe. Maybe he was read those messages, but he already felt the warmth of the love we have for him. That’s all he’s ever known.

Beautiful Mysteries.

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The sun is just starting to peek through the curtains beside my bed. I lay there, waiting for the day to start. Thoughts rush through my mind of what all I need to do and how messy the house has been. Then I hear it, the tiny steps sneaking into my room. I stay still because the next part of my morning is my favorite.

He climbs up the bed and lays right beside me. I pretend to sleep by closing my eyes and then feel the tap on my shoulder. His impatience builds up as he starts playing with my hair and whispering in my ear.

“Good morning, mommy. I lub you!”

I tickle him and give him a big kiss. The sound of his laughter fills the house. In that second there isn’t anymore worry to what needs to be done during the day or how messy the house is. I take in his big smile and his dirty blond hair, just a little bit too long. His eyes are squished up as he laughs. He throws his head back as he laughs and then when he stops, he gets serious. Every time he gets serious he asks for one thing…

“Mommy, I’m hungry. Can we have ‘nana pancakes?”

His eyebrows raise, waiting for me to answer. Before I get the words out of my mouth, I smile, and he jumps off the bed and runs to the kitchen. One more big breath and stretch to start my day. Sometimes I don’t even get that, he’ll plea for me to come in and I can’t say no to him. As his sits on his chair at the island, I can see his black and white pajamas are getting a little shorter. He’s growing faster than I can keep up with.

He helps me mash-up the bananas and stir in the eggs. When I pour the cinnamon in, he yells ‘STOP,’ whenever he feels like there’s the perfect amount in the bowl. I ask him if he had any dreams last night, while I pour the batter in the pan. He speaks with his hands and his voice gets louder and louder as he explains them. His imagination grows along with him. He finishes explaining each and every character in his dream, just as I flip the last pancake on the plate.

I place his in front of him. He gives me the look as if I’ve forgotten something, but I know what he wants. His pancake needs cut so he can easily eat them, but he usually asks me for a specific shape. This morning he wants triangles and he’ll get them. He smiles as he eats each one of his triangle banana pancakes.

“Mama, you are the best nana pancake maker!”

The morning continues with him playing under his tent as I pick up after him. He’s so curious and inquisitive, but I answer each question he asks me. I see him figuring out the world around him and as I’m in awe of this little human who is all mine, my mind keeps going back to one though. This is my heaven and I know as he grows, there will be one day where these mornings cease. For now, I will soak up every second of him at this age.

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Myths.

Life after loss is all about discovery. Discovering healing and how to keep surviving each day. There are good discoveries and there are bad. Most of the bad are from myths that our society have compiled about grief and child loss. I’m going to do my best to debunk some of these myths and probably ramble a lot.

I’ve narrowed it down to the four that really get under my skin. They all kind of loop in with one another, but they are all things I’ve heard. I’ve also wrote about all of them before which really helps show the progression of my grief journey.

Happy debunking.

Myth One | Everything happens for a reason.

Before loss, I found comfort in this statement. In my logical mind, there had to be a reason for everything that happened. It was just be pandemonium if there was no answer to each thing that happened in the world. There had to be a lesson or something we could learn from everything that happened in life.

Then Jensen died.

There is no a reason a baby should die. I can remember searching within myself, thinking if I did anything wrong. Even if I had some sort of bad karma, there still isn’t any way that Jensen’s death would solve anything. His death didn’t happen for a reason. Don’t tell me God needed him and that’s why he died. That’s preposterous, there are a ton of people who die everyday that God can have; not my baby or anyone else’s baby.

Honestly, it just floors me when I hear this. Even if you think there’s a justifiable reason for a baby to die, just don’t say it. It’s not true and something a grieving mother (or any person) needs to hear.

Myth Two | At least you didn’t know him.

Please don’t say this to me, ever. I knew his kicks and when he was uncomfortable. I knew his schedule. I knew his favorite foods. I knew what music he liked. I knew when he was annoyed and didn’t want to participate for the ultrasound tech. I knew he loved to hear people talk about him. I knew he loved being read to. I knew everything about my son.

Just because he didn’t live outside the womb doesn’t mean he didn’t exist or that I couldn’t know him.

I understand it’s a different sense of knowing a person. Jensen was only a baby and I didn’t know him as a toddler, or as a child, or as a teenager, or as an adult. I don’t know what kind of person he would have turned out to be. That’s just a fact, but to say I didn’t know him at all hurts and disregards him as the little human he was. Even though I don’t know for sure who he would have become, I can imagine and dream of that. Tomorrow’s prompt dives into the beautiful mystery he is and I’m excited to share that with you all.


Myth Three | Grief follows five steps in an orderly fashion.

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We all are told and know the telltale stages of grief: Denial. Anger. Bargaining. Depression. Acceptance. In the stages of grief, we’re only supposed to be in each for a designated time and then find acceptance in all of it and move on with our lives. If we stay in one stage longer than an another, we’re not grieving ‘right.’ Or if we go from anger to depression and back to anger again, we didn’t do something right. We already prejudge our grief before we even start grieving. There’s this list of stages that we’re supposed to follow and when we don’t, we look down on ourselves, just as others do. But we’re not talking about each stage or the ones I’ve been in and tangoed with over and over again. There are many posts I’ve written about grief and the stages.

Still, it’s ridiculous to expect someone to follow grief in a timeline or a specific order. Grief is so individualized and different things let different individuals heal. Honestly, there are days where I’m still in denial that I have to live the rest of my days without Jensen. I’m twenty-three years old, let’s say I die at seventy years old, that’s forty-seven years I have to live without my son. I am in denial about that. I’ll expand that thought with the next myth. Then I have days where I’m in a complete rage. I could break plates and punch anything around me. There are times I scream at my cats if they meow because I just have so much anger built up. Then I go to bargaining and guilt. Depression is always there, so these stages make no sense for me.

I’ve left out acceptance for a reason. It’s supposed to be the end all of grief and it’s really not. For me, I feel like there’s different stages of acceptance. I’ve half-heartedly accepted Jensen’s death. Half-heartedly because I know he’s never coming back, but I don’t like it and I’m not comfortable with that fact. So there’s that slight acceptance. Right now, I can’t accept that I’m going to live for decades without him. It’s sad and heartbreaking. I don’t like it, but that’s grief and trying to process everything.

When I hear I’m not grieving correctly or if you think someone’s not, just know it’s their journey and process. Their heart will lead them to where they need to be at that particular time. Trying to rush them through their grief will only hurt them in the long run.


Myth Four | Time heals all wounds.

I feel like every last attempt to comfort me leads to this phrase and I hate it the most. Maybe because when the conversation gets to this point I’ve already lost hope with talking about Jensen and I know they’ll never understand.

Time sucks. I feel when time passes, I’ll become stronger and be able to be productive in my own ways. There won’t be a time where I go back to Danielle before Jensen and I don’t want to go back to her. Maybe in time the pain won’t be as intense? I don’t know. Thinking towards the future has been really difficult for me lately, so I’ve just stopped. As I was saying before, I keep thinking of living all these years without Jensen. He’s gone. The life I planned is gone. It’s overwhelming and to think as time as a savior, I just can’t think that way.

Maybe I’m just feeling defensive right now at this point with my grief. I don’t want time to slip away, but I also want it all to end quickly. It’s just strange. Do I want my life to get to a point where I’m excited for things again? Yes. But that doesn’t erase the pain or the hole in my heart. That hole will never get smaller.

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Time passing isn’t comforting to me nor do I know if it’ll heal me. Right now it’s a huge myth to me in my six months into grief. My wound is still deep and open, it’s one that will take a lifetime of healing.

Empathy.

Before I begin this post, I want to show the difference between empathy and sympathy. I think a lot of people think they’re the same thing, but they’re very different from each other.

empathy – the ability to understand and share the feelings of another.

sympathy – feelings of pity and sorrow for someone else’s misfortune.

The first time I thought I understood what empathy really meant was in college. I remember the professor telling us her sister’s story; I won’t tell her story, but it deals with the loss of a child. My professor said to feel empathy you had to put yourself in the other person’s shoes and somehow understand those feelings.

Then she said, ‘I could never imagine losing a child, therefore I can’t have the full understanding of empathy for her situation.’ Continue reading

Six Months.

I didn’t know how the world could keep turning  when Jensen was born. When the sun rose a few hours after his silent entrance in this world, I wanted to scream and pretend he was still safe inside of my belly. Then when I woke up the next morning at home, feeling empty and alone, and realized the world is going to keep turning. No matter how much I protested.

When the first week rolled by, I couldn’t comprehend that time just blew past. It went was just gone, just as Jensen was and I could never get any of it back. All the days mashed together and I thought maybe I would be able to distinguish days in the following months. My mind had to be able to compartmentalize and get back on track.

I was so wrong in that assumption.

Somehow it’s been six whole months. Six months since Jensen was born and I last felt him. I wish this wasn’t my life. If I could choose, I’d have a happy six month old smiling at me right now, instead of me typing this post. I would give anything to have him here with me and sharing his big, growing cheeks with you all.

But I can’t.

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Support Circles.

Before I begin on today’s prompt, Support Circles, I’d like to take a second and just wish Jensen a very happy twenty-sixth week in heaven. This week brings on the big six month mark, but I like to acknowledge the weekday since it’s meant so much to me. I’m having an extremely rough time with the six month milestone, so I’m using today to ease into tomorrow. As I light my candle for Jensen tonight and tomorrow, I will light another for all our angels. I hope each of them are able to see the light and feel love’s warmth.

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When I think about support, my heart tears in two. The one side is full of love from so many people who hold me up, remember Jensen, and make feel like I’m not crazy. Then the other is cold and empty from the support I thought I would have on this journey. This is what makes talking about support so hard. I wish I was able to stitch both halves together and just fill my whole heart with the support I have, but it’s hard not to be bitter and think of the other side. Here’s another BUT, I’m not focusing on the bad today because there is so many people that have shown me love that I cannot thank enough.

I’ve written and rewrote this multiple times. No words will ever encapsulate my gratitude to those who have supported me and said Jensen’s name. I am going to try my very best!

To you who was there when we heard the news.
To you who rushed from Jensen’s room to get to the hospital.
To you who was there as soon as you could and stayed the whole night.
To you who heard the silence instead of the loud cries.
To you who went to his funeral.
To you who first reached out and welcomed me into this community.
To you who shared your and your angel’s story.
To you who sent me your words to let me know I wasn’t alone in my thinking.
To you who met me for lunch, even though I was so nervous to go.
To you who encouraged me to write.
To you who saw them first.
To you who showed me what was best to say to a mother who has been grieving silently for years.
To you who wrote his name so beautifully.
To you who made me feel so proud of him.
To you who let me find my voice.
To you who did not judge.
To you who saw Jensen’s pictures and exclaimed how beautiful he is.
To you who know the part of my story that I regret the most.
To you who welcomed me in many groups.
To you who made me smile.
To you who will answer any text at any time.
To you who gave me a chance.
To you who reminded me that I wasn’t alone.
To you who listened to Jensen’s story.
To you who have followed along our journey.
To you who have heard my voice.
To you who lets me cry.
To you who dries my eyes.
To you who has a huge part of their heart in heaven.
To you who walks with me in grief.
To you who celebrates his life.
To you who is reading now.
To you who says Jensen’s name.

I say thank you, to you who continues to support Jensen, me, and our story.

There’s one more person that I would like to take a second to thank.

Also, wanted to say thank you so much to the Share Your Mother Heart group. You all have been a HUGE support to me throughout all of this. Each of you have encouraged me to keep writing, even on my darkest days.


Support Links and Pages I Follow Closely:

Still Mothers

Mother Your Heart

Invisible Mothers

God’s Tiny Angels

Precious Parents

Sweet Pea Angel Gowns

Lettered Hope

Addison’s Army

 

 

What It Felt Like.

It was a cool Monday afternoon in April. The sun was shinning, but the wind made me chilly even though my pregnant belly usually made me hot. We sat in the doctor’s office, waiting to go in the back to see Jensen dancing around as he usually did. He was a little quiet that morning, I wrote it off to him not having much room. We impatiently waited. I knew the doctor wanted to discuss inducing me and having Jensen before his due date. Although I wanted him in my arms as soon as possible, I really wanted him to have those final three weeks for his brain to develop even more.

My name was called and I was escorted to the room where I would see Jensen every Monday.

The ultrasound tech who was usually very chatty and made jokes was suddenly silent. I unknowingly tried to break the silence and she brushed my comment off to go get the doctor. At that second, I knew something was wrong. The doctor came back placed the wand on my belly again, then set it down. Then he said it and the world around me turned to static.

“I’m sorry. There’s no heartbeat. Do you understand what that means?”

I couldn’t catch my breath or speak, so I nodded my head. My mind was so full and empty at the same time. It was telling me that this could be due to faulty equipment or maybe he was just turned funny. I just had felt him move the night before and I saw him just the past Thursday. It couldn’t be true. Babies just don’t die at thirty-eight weeks. He couldn’t have died.

But he did.

When we got to the hospital they confirmed his heart had stopped beating, not once, not twice, but three times I saw him laying there motionless. I had to see it to believe it. At this point, I hadn’t started crying. My body and mind was in shock. It was falling from the greatest high in my life. After the third time they told me my son was dead, my blood pressure spiked so high that my vision was black and my arms were numb. For some reason the nurses didn’t understand why it would be spiking? I had to be preeclamptic, they said. No, that wasn’t it. Turns out your blood pressure goes up when you find out death had creeped inside you and stole your son from you.

Death stole him and the future I planned with him.

Then my mom came in the room and it all hit. I didn’t have to feel strong when she got there because she was the strong one. Even with her tear-stained cheeks, she held me up and retold me everything the nurses and doctors said. That’s when the tears hit and they didn’t stop falling until they told me I needed to walk to the room I would deliver him in. Her familiar voice that helped me learn everything I knew made my brain realize Jensen wasn’t ever coming home with me.

What did it feel like to know my son was dead?

It felt dark and almost like the world around me was crumbling. I was in complete shock and went through each stage of grief (minus acceptance) all in a short of time. The world had betrayed me. There was so much anger and sadness and loss of hope flowing through my veins. I wanted to scream, but I couldn’t. My brain knew he was gone, but he was right there in my belly. His weight was so heavy as I laid on the hospital bed. He was right there and I would never be able to have him.

I felt completely broken and betrayed.

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Often, I wonder how I didn’t go completely insane with all that information. Some would tell me it was strength and I will tell you it was anything but. It was love. The love I had for my son and the love he reciprocated back. I felt him all around me. In those moments I felt that because he was right there in my belly, but in actuality his spirit surrounded me and kept me glued together. Even on the worst day of my life, love guided me.

In the midst of being completely broken and betrayed, I felt the love that only comes from a mother and her precious child.

In the Ashes of September.

I’ve never been one to wish away time.

Even when I was super pregnant with Jensen and my feet were so swollen. I happily waddled around and was so blissfully happy that everything seemed so perfect. Honestly, I didn’t even have a countdown for his arrival. His due date, April seventeenth, was always in the back of my mind, but each day was so special with him.

For the first time in my life, I wished time away. I wished September would have ended two weeks ago. It’s been a month full of pain and change. There were many days I just sat and thought of loss and death. I’ve had my darkest thoughts this past month; times I wanted to literally rip the skin off my body to feel some relief. Tears fell so freely and there were only bits of relief. As bad as this month was, no month, from forever on, will ever compare to April, but this September comes in second.

At the beginning of the month, I posted a blog: The Promise of September. I wish I would have listened to my gut instincts that I had on that day. The words I wrote even doubted good things to come. They were full of fear for the future. It’s like I knew deep down that this month would be another month that would change my life, just in all the ways I never thought.

“The promise of change scares the living hell out of me.”

Those words are ringing in my ear. September kept its promise of change and I’ve felt that living hell each day.

But I’m going to let you all in on a secret, no matter what happens to me in the months to come, nothing will compare to the pain of losing Jensen. I am a survivor. No matter how hard it is to be left or hurt or beat down, if my heart can still beat after Jensen’s stopped, I can take everything else. Death has creeped inside of me and stolen away the one person who I would have given the whole entire world. If I could survive that, I can survive whatever else this cruel life has to throw at me.

Once another beautiful mother told me, us loss mommas were like phoenixes. I might have posted about this before, but it holds true during these bad days and months. My soul and insides have caught on fire and burned out, just leaving ashes behind. But I’m rising from those ashes. For Jensen, for me, and for our story, I will rise and wish away the remaining hours of September to be stronger for October.

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Just another reminder that tomorrow is the beginning of Pregnancy and Infant Loss Awareness Month! I will be posting every single day with the prompts from Capture Your Grief. Hopefully, you all can follow along and share your stories as well.

 

Twenty-Five Weeks.

It’s the twenty-fifth Tuesday.

One-hundred and seventy-five days since Jensen was born.

Jensen’s big day of the week and honestly today was busier than any other Tuesday I’ve had since he’s been born. The morning was really rushed and stressful. Leo and Poe were being trouble makers, we were in a rush to work out, and then I had therapy. Even when that was done, I was only home for a bit to go get supplies for the house and then finally eat. Today was just more rushed than I like my Tuesday’s to be. I honestly didn’t know if I’d write tonight since I posted a lot my feelings yesterday. I know I have a lot of Jensen and grief feelings going on write now, but I can’t make sense of them. Maybe at the end of this.

Then I figured everyone would have heard enough from me after my video chat with Emily Long, from Invisible Mothers, about love, loss, and figuring out life through grief. Which if you didn’t see and would like to, you can see it here. It was nice to be able to talk and actually speak what’s on my mind with words coming out of my mouth and not just directly on the screen. I am so very thankful she asked me chat with her to share with other loss moms and just feel what we’re feeling. Honestly, I didn’t re-watch it. I’m so afraid to hear my voice. I promise there’s good stuff on there and if you want to see me talking, it’s the perfect video to see.

But BIG things are happening.

This Tuesday is also the last Tuesday of the month of September, which means October is almost here. As I said in yesterday’s post, October is Pregnancy and Infant Loss (PAIL) Awareness Month, which is a pretty big deal. Especially since this is my first October without Jensen and knowing what else October holds besides Breast Cancer Awareness. It’s going to be an emotional month in general. October fifth is also Jensen’s six monthday, which I just cannot fathom. I’d do anything to be playing and picking out Jensen’s, at six month old, Halloween costume….

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