I Am.

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The following words were written at 2:11am this morning. I couldn’t sleep at all last night with the whirling of thoughts and words in my head. In attempts to show what grief looks like at all times, I’m not going to edit or change anything I said last night. You’ll even see the scribble out of one word and the underline of another.

I wish…

I wasn’t writing this. I wish loss never happened. I wish Jensen was sleeping silently soundly in his crib. I wish wishes came true, then I’d bring our babies back for you and me.

I remember…

Only hearing 4:25 and feeling something I’ve never felt before. I remember the emptiness when I arrived home. It took place where Jensen had made his home for the past thirty-eight weeks and two days. That emptiness spread from his sacred spot and traveled in my veins to my heart, my brain, and even to my toes. I remember the second that emptiness and numbness turned to unbearable pain, that still hasn’t went away.

I could not believe…

Those six words that came out of the doctor’s mouth. Even worse, I couldn’t believe the confirmation of them with the silence of his birth.

If only…

I knew what I do now. Maybe I could have saved you. If I couldn’t have saved you, I would’ve changed the moments after your birth. If only there were one kiss or sweet whisper of ‘I love you.’

I am…

Jensen’s mom. I am on a raft of love in the sea of grief. I am Danielle and I’m learning how to journey and survive life after loss.

 

Consciously Becoming.

Danielle before didn’t realize how terrible this world could be. Of course there were bad things to happen to her, but not to the magnitude of a child dying… to anyone she knew. She was carefree and loved adventure. If an opportunity arose where she could go somewhere, anywhere, she wouldn’t look back. Maybe she didn’t have her life figured out completely, but it was okay; she had the whole future.

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This was Danielle with Jensen, she felt like her life was starting to fall in place. She was happy and planned her future for her son. In this picture she was in Gettysburg and Jensen was just now moving. Which made her really sick, but she smiled with every movement. She planned on teaching him all she could about the world. There were times where she was scared because she didn’t know exactly what was going to happen, but she knew they would make it through. She was hopeful. Jensen made her feel like she had her place in the world. At the moment in the picture, she was on top of the world. Nothing could bring her down. Danielle was consciously becoming a mother each and everyday. Everything was right.

Then, it all changed when his heart stopped beating.

Danielle after Jensen is still a mother. I’m in survival mode every second of the day. Some days I don’t understand how I’m still alive and it doesn’t scare me to have those thoughts. I don’t want to welcome the upcoming days or listen to the clock ticking. Almost all of me is broken and then there’s a tiny bit of my taping myself back together. Most of the time I’m confused, but I’m working through it.

In this moment, I’m tired. I haven’t wanted to do anything all day, yet I had to. My heart feels like it’s beating really weak. I keep smelling Jensen’s candle, which makes me smile and want to cry at the same time. This is normal and how most things are for me lately. In my mind, I look like a Picasso painting. Some part of me wishes I could draw so I could show others how I think I am, but I can’t. My hair is fluffy from my shower and I honestly look like a new mom, without the baby physically here. I’m probably a mess to the outside observer, but like I said, I’m surviving.

Jensen’s death has changed me, not for better or worse. It just has. I can’t be carefree anymore, not that I haven’t tried. My natural ability to plan everything has just went out the window. I would say I don’t have any fear. It’s my belief that fear comes from being afraid to be harmed or killed. I just don’t find anything to be as scary as what’s happened to Jensen. My scariest day in my life has already happened, what could be worse? Here comes that bad karma my way.

It’s hard to imagine me being Danielle before Jensen now that he’s gone. There are times I wish I didn’t know this pain, but I wouldn’t give up not knowing Jensen for that. Maybe I wish I could have a little part of the carefree attitude back. What do I mean by that? I want to be able to go somewhere without fear of having an anxiety attack. It’d be nice to be able to accept any opportunity given to me without the fear of being judged or second guessing myself. Maybe that’s ignorance and maybe I want that innocence back. But I would still have it if Jensen never died.

With all this pain and heartbreak, I still love myself in a different way than I knew possible. I love my strength for being able to get up everyday, even when I don’t think I can. I love that my body was able to grow and nurture Jensen. I love seeing my feet when I look down because they remind me of his. I love that even through pain and heartache, I can still smile and even laugh. I love that I can allow myself to feel and grieve. I love that I’m not giving myself an endpoint to be done with this all. Most of all, I love being Jensen’s mom.

Through all my life experiences, I’m consciously becoming the person I’m supposed to be, even if I don’t know who she is.

Sounds, Seasons, & Scents.

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Fall reminds me of Jensen.

The smell of the crisp air and the leaves changing from green to red to orange. He kicked me for the first time last fall. I remember that quickening and fell more and more in love with him. When I would walk and have the leaves crunch under me, I’d always press on my belly so I could feel him more. Usually when I’d place my hand there he’d float by real quick. The doctor always had a hard time finding him because he would be rolling in there. But I was able to see and hear his heartbeat every few weeks. It was perfect. This time last year, I was blissfully happy with how the world was turning around me.

I’ll never forgot those moments in my life and the fall will always remind me of them.

This summer I felt him with the waves of the water. He’s in every movement with nature. From the gentle breeze of the wind to the wings of a bird flying around. I get lost in my thoughts when I’m outside, not listening to anything and thinking of him. It’s all the dreams I wish I would have had with him there; raking up all the leaves and having him jump in them, getting dirt everywhere, and being soaked from the rain. In those moments I’m out there, I can just let them flood into my mind.

Music was always Jensen’s favorite thing. No matter the song, he’d literally dance away. His heaven is probably songs playing nonstop. There would be no silence or stillness around him, nothing like the way his body came into the earth like.

When I connect with him and his memory here, I listen to Of Monsters and Men. I’m sure when people are walking by my house they hear it playing loudly and me singing along. That’s what Jensen and I would listen to in the car, with the windows down. I felt they sounded like sweet lullabies to calm him. But when he wanted to dance, I’d put Usher on. He would move all around when he heard Usher. On the days where I can smile, I’ll put that on. It helps me enjoy it more when I can imagine Jensen’s spirit dancing all around me.

Pearls of Wisdom.

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Today marks two-hundred days since Jensen’s birth.

It’s a crazy feeling knowing how many days have passed and comparing it to how I felt when I was two-hundred days pregnant with him. I can remember it like yesterday, but it feels so long. From then to now, I’m a completely different person. Which is completely understandable and it’s okay to just be this person I’m becoming.

But that’s another topic coming up on Capture Your Grief.

There’s so many pearls of wisdom I’ve come to know. I find comfort in E.E. Cummings poems and works. I’m constantly reading Lexi Behrndt’s blog, Scribbles and Crumbs. Emily Long’s books are always at arm’s length away from me. Every morning I read posts from Still Mothers and Still Standing. Those are just a few that are popping in my mind right now. Yet, they all bring me wisdom and comfort, even in the smallest ways. They let me know I’m not alone and many words that I’ve read have expanded my mind. I wish I could go and thank every single person that shares their story. It’s so brave and helps so many.

The past week I’ve been rereading and reflecting on a lot of what I’ve written in the past two-hundred days. There are so many words I’ve written that I forgot about. Just like the quote in the picture above, ‘It’s okay to just be.’ That would be my advice to anyone that has lost a child. Just being is sometimes the best we can do. No matter what you have or need to be in that moment, as long as you’re being gentle with yourself and protecting your heart.

Tonight I have planned something special, just something small. I’m having a little fire and writing Jensen a letter from me. Then I’ll throw it in the fire and have the smoke deliver him my message of love. I’ll be the best mom I can today, that’s all I can do to just be.

Relationships.

Today I’ve been reflecting on relationships that have begun and ended since losing Jensen; both so important to my grief journey and support system. There were moments today where all I wanted to focus on was what I don’t have and others where I could only think about what I’ve gained. They kept twisting and pulling at my heart. I had to take a break from these thoughts and started to do things to heal my heart. Then, I looked across the room and saw the relationship I’ve worked on every day since I could remember.

The relationship with myself.

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Picture from my lovely shoot on October 15th with Eloise’s mom, Abigail.

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Healing Therapies.

Breathe in, one, two, three, four.

Breathe out, one, two, three, four.

I remember when deep breathing and counting were going to help heal the supposed worst pain of my life: giving birth. Even during my labor with Jensen, I don’t think I needed anyone counting for me. The contractions didn’t hurt, but I wanted some normalcy while I delivered him so silently. After he came into the world my body started healing, but emotionally, I didn’t even know how to begin healing. I was in pain and my brain instantly went into shock trying to protect the influx of emotions. During that time, I had to focus on healing my body by sleeping and trying to eat. That was the best I could do.

When I had to focus on emotional healing, I was lost. I felt alone and didn’t even know where to start. For the first few weeks, I just sat and stared into the nothingness. Everything felt numb and black. Even now, I can’t recall those moments or it just spirals out of control. The second week I looked in Jensen’s hospital bag. A brochure fell into my lap about online and in-person support groups. From there, I found You’re Not Alone – Love Letters from Loss Mom to Loss Mom, so many blogs journeying through others’ losses, and support near me. I read and read through so many pages, learning about how other’s heal. I realized how much reading through their words had helped me.

Then I decided to write Jensen’s story and share.

It felt so healing to write his name. To let the whole entire world know about him and his impact on my life. I needed to share the good, the bad, and the ugly. There would be a lot of ugly, but love always paved the way for the good. Six months later, it’s one healing therapy that I do every single day.  Usually with hot tea in my mug and candles lit throughout the whole house. Sometimes I want to share with the world and others, I keep it between Jensen and I. I haven’t missed a day of writing since that two-week mark. Getting all my emotions out on paper, or laptop, has let me sort through it everything.

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As much as I wish writing could just heal me and I’d be perfectly back to normal, that’s not how grief works.

Talk therapy has done so much good for me.

One of the hardest things I’ve done post loss was making an appointment to a therapist. I did not want to ‘be weak’ and talk to a counselor. The first time seeing her, I was terrified. Then being able to say his name, talk about how I was feeling out loud, and not feel judged was healing. It encouraged me to go to my first in-person support group, then the second. I spend a lot of time with talk therapy, six times a month to be exact. Sometimes, like this month, I’ve gone to other groups or events where I could talk more about Jensen. It’s been one of the most healing therapies I’ve done in my life after loss. This journey is so lonely and knowing there’s so many people to support me is, well, bittersweet. It breaks my heart knowing these amazing, strong women have felt this way and are able to channel that to help me and so many other moms going through loss. Reaching out and letting others know you need help, is the hardest thing I’ve ever done, but it’s helped.

There’s no rulebook on what to do after your child dies. That’s what makes finding these healing therapies so individual and hard for people to narrow down. I believe it’s trial and error. What works for me, might not work for the next person and that absolutely fine. I will say, if you are a support person reading this and wondering how to help your loved one, the most healing therapy someone can help with is saying their child’s name. It’ll open the line of communication between you two and might help find what the other person needs to heal.

I’d also like to say one more thing, losing a child takes a lifetime of healing. Please be patient with them or yourself and never feel like they or you need to put your grief on a timeline. Loss moms and dads are trying to figure out their new normal and how to move forward with their life. Be gentle with our hearts, we’re doing our best to find our healing therapies.

Even if it begins with breathing in and out.

Sacred Space.

Space seems so scary sometimes.

In the early weeks, it felt like all I had was space suffocating me; the space Jensen was supposed to occupy. Especially when he was first-born and I only had his nursery items and all his clothes. I didn’t have any remembrance items, besides what the hospital gave me, but I couldn’t even look at his prints at first. When I moved into my house, I kept seeing where I planned on having his pack-n-play and swing. The walls were empty and all I could imagine is what his newborn pictures would look like. It was hard in those beginning weeks of creating a home that I imagined my son growing up in, without him. Then I put his big silver J up that was supposed to be in his room.

Seeing his J everyday made me smile and feel like he was where he was supposed to be. From then came his pictures, the Painted Name Project print, and the most perfect footprints all over the walls. Everywhere I look there are pieces of Jensen that belong. I turned my whole house into my sacred space. I’ve added in silver birds and elephants to represent me sending messages to Jensen and how I’m not alone in this grief. My house makes me feel safe and comfortable. Even though he’s not here, he fills our home and that couldn’t make me happier.

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The space that felt so daunting in the beginning brings me so much solace now. It’s what I search for when the waves of grief are pulling me down and what I look at when they have subsided.  His candles are always on, like a lighthouse, leading me to the shore.

I wouldn’t call my home a shrine to him. My house is exactly how it would be if Jensen were here, minus the amount of toys. Although there will never be any pictures that show him growing from the day he was born, I see the progression of his life when he was here and the impact of his life since he’s been gone. My sacred space is all about him, just like it would have been if he was sleeping in my arms now.

This space that seemed so scary in the beginning has become a place I can call home.

Lemons & Lemonade.

So, I’m going to break the rules on today’s prompt. Chalk it up to having an emotional morning or just a horrible past six months, my mind is letting me delve into the ‘lemonade’ I’ve made since Jensen’s been born.

This prompt was inspired by a new show, ‘This Is Us,’ where a couple was pregnant with triplets. Long story short, one of the babies died (either shortly before or during birth) and the doctor was talking to the dad about baby loss and how you have to continue on for your family after this tragedy happens. He spinned the saying, ‘When life give you lemons you make lemonade,’ and added on to it with his own personal story of loss. There was also a line about (along the lines of), even given the sourest lemon you can make something resembling lemonade. I probably should have re-watched before I started typing, but as I said, emotional morning.

When I first saw the video, I thought, yes this is it. This analogy is perfect, everyone should see this. Until it weighed on my heart a little more; maybe I just know how to sour everything. I kept thinking, yes this works for life and can be applied to loss, as it was presented in the show. There’s a point, I think, in the loss journey that you there’s more positive than negative. People are able to see all the good they’ve helped bring into the world in honor of their babies and to help others out. I understand the analogy perfectly and believe one day I’ll even be able embrace it.

Right now, I can’t.

I’m not saying there’s no positives ever in my life after loss, but right now it’s very hard to see. Instead of sticking exactly to this prompt, I’m going to keep the analogy used, but share it in a way that represents the grief journey I’m going through.

To make lemonade, a person needs water, lemons, and sugar. The water is the base of the whole drink, you add in lemons to give the sour punch, and then end off with the sweetness of the sugar. Obviously, right? When we talk about it metaphorically, lemons are always given to us when life isn’t going our way. Jensen’s death has been the biggest, sourest lemon ever given to me. Since we’ve been molded to only see the sour part, we don’t look beyond the lemon. An outside person might believe I can use the lemon and make it ‘somewhat resembling’ lemonade. I’m challenging you to relook at this.

Instead of thinking of me getting the biggest, baddest lemon, think of it like the sugar has been taken away. Before, there was such much sugar that even if I got another lemon, I could just sweeten the rest up. Without sugar in lemonade, it’s just really sour lemon water. I can keep squeezing and making the most out of all the lemons ever given to me, but without that one ingredient, it’ll never be the same.

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‘Walk for the Angels.’

One in four pregnancies end in loss.

My heart knows that fact, but even with online support, it’s hard to see that statistic in person. Maybe that’s why when I heard over six hundred people registered for the God’s Tiny Angels ‘Walk for the Angels,’ my heart skipped a beat. It was still just a number until I saw the line of people waiting outside the church to register. Even then it still didn’t click.

Yesterday was my first remembrance walk since Jensen has been born. I made big orange and navy buttons with a white J in the middle. We went out and bought bright, orange bandanas. I needed to be prepared for the day because I didn’t really know what to expect. It would be the first time I was around a huge amount of people who have been effected by loss, not just the small groups I was used to. There would be a lot of stories and emotions all in one room that I had to be aware of. I probably should have warned my family and Frank about those raw emotions that radiate off.

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Then there we were, in the sea of people in an ocean of grief.

The board members of God’s Tiny Angels spoke of sharing, healing, and helping. Their pillars of support and what they strive to do. I cried as the spoke knowing that each of those have shaped my grief journey. Jensen and I’s support heard those words for the first time, that didn’t come out of my mouth. They heard and they saw love, loss, and the magnitude of how many people are touched by angels. I think the heaviness of sadness was felt by everyone there, but we could surrender ourselves to that emotion and let hope flow in by walking for them.

Each step of the walk, I kept thinking of taking the steps for Jensen. He’ll never be able to take the steps for himself, but he had so many people there for him. As did all the babies gone too soon. The walk was peaceful and hundreds of balloons floated above our heads, symbolizing Jensen and all of his friends being with us. I also thought of the walk as journey of grief too. Although we have to take our steps to move forward, there are always people around to help us keep walking. AND we are always surrounded by our angels.

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As we got back to the church and went to the courtyard to release the balloons, I really could see how many people were there. Families grouped together with their buttons representing their child and packs of pink, blue, and white balloons everywhere you looked. Music was being played and we were asked to release our balloons and messages of love to the clouds, knowing our babies would see them. We let go of our pack of blue balloons with the glimpses of orange lettering on the cards. They danced up to the clouds, not alone, but with all the other balloons from each family. In that moment, it clicked. Each of those hundreds of balloons represented a baby gone and a family whose life was changed forever.

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I watched Jensen’s balloons until I couldn’t see them anymore. Tears fell down my cheeks, the release of love and loss is therapeutic. Although I couldn’t see the balloons dancing in the wind anymore, I knew he still saw them. He grabbed them and played with the balloons in awe. Maybe he was read those messages, but he already felt the warmth of the love we have for him. That’s all he’s ever known.

Surrender & Embrace.

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I’m in a constant state of falling apart and picking up the pieces.

From the minute I was being wheeled out of my hospital room, I let myself surrender to the heaviness of sadness. The unfairness of leaving without Jensen was overwhelming. I wanted to scream, but no sound came. Instead, tears flowed so freely and I couldn’t stop them even if I tried. While we were in the elevator, I kept opening and closing my eyes wishing that when I did it I would finally wake up from this nightmare. When I sat in the front seat of the car on the way to my parent’s house, I felt like I was in a vacuum. In this vacuum, there’s no outside noise or reason. There’s just me and my uncontrollable thoughts. After we got home, I realized that I would never be able to fight off the pain and sadness. I promised myself that I would accept whatever feelings and emotions came my way.

I surrendered myself to sadness, anger, pain, depression, and even joy.

Sometimes I wish I didn’t. There are moments in life where feeling everything so intensely isn’t ‘acceptable’ or ‘normal.’ Yet, they’re right there. Sadness and pain are always reachable for me. Almost everything in my life right now can be set back to, ‘If Jensen was here.’ I love being able to imagine it, but breaking down at a restaurant when they ask how many people are eating and I always have to say one less than what’s in my heart, is unacceptable. Those moments I can breathe through. In the few other times where I’ve felt like I had to hold it back and tried to force another certain emotion, grief came back around in a few hours times; one-hundred times worse. Worse as in, the emotions were just more intense where I literally can only lie there.

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