Painfully Beautiful.

Let me tell you, this month is horrible. The majority of days are filled with heartache and sadness, but in those days I’ve tried my very best to see the light and good. This weekend, I couldn’t see anything but the top of the waves crashing on top of me. I would say the mix of the oncoming six month mark and all the other troubles going on in my life have not helped with my grief. Those stories are for another day. I’ve felt that I haven’t been able to write about what’s going on with me and my grief. Every time I sit down to write the words, they just fly right out the window.

But, I wanted to share with you what happened yesterday. It all started last month when I got an invitation in the mail about a memorial put on by the hospital. Now it feels like that was forever ago, but I had made sure to make sure I planned today for the ceremony. I thought I had everything ready to go, until life happened. There were unforeseeable events that happened this weekend that made me not want to go. Made my grief so much more intense and wanted to stay in bed all day long. Somehow I dragged myself out of bed, put on my most favorite dress, and went to celebrate my Jensen’s life.

When I got there and saw the three big tents and all the chairs, I instantly started crying. I kept thinking about how many babies aren’t with their families. Then it hit me. All the pain I was going through without Jensen. How he wasn’t there with me looking up at me from his carseat. All the memories I wanted to have with him physically here. When did my life involve going to a memorial remembering my child that died?

Continue reading

Advertisement

Twenty-Three Weeks.

The memories of the day before and the days following Jensen’s birth have slowly been coming back to me. It’s almost like water coming from the faucet. My brain tries to let a steady stream come out, but sometimes it just comes flooding. I’ve been getting used to the constant flow, yet this past month, it’s came back so fast. Certain things come out of nowhere and it breaks me.

That and the fact that time refuses to stop. I know that probably sounds silly because how can time stop? It’s just going too fast. Me finally getting on a somewhat regular sleep schedule hasn’t helped slow time down. I used to not sleep until three or four then wake up by nine or ten. It felt like the day lasted and I could actually think. No I wake up and go to sleep fairly early so I have more time in the day to get work and life things done. Maybe it’s good for grief, but I hate the fact that I don’t have a five month old baby waking me up.

Which brings me to today. Another Tuesday without Jensen physically getting another week older.

It’s actually a really weird time because the outside world has moved on. A lot of people think I should be ‘moving on’ by now. Almost a half a year and I’m still ‘stuck’ on him. Or when I just post about him because nothing else seems relevant to my life right now. Some days I almost feel bad about revolving my life around Jensen and his time here with me. Then I think, if Jensen was here would I be moving on from him right now? Would I move on from him at a year? Or five years? Or twenty? You can’t move on from a child and I hate that I’m supposed to feel bad about being sad.

Yesterday was a bad day. Monday’s I’m usually in a bad mood anyways because I just don’t want the day to end. So, I didn’t have a good day to start out with. Then I got bad news and I couldn’t stop crying. To try and make me feel a little better, I tried to go shopping. I was met with an associate who told me to ‘turn my frown upside down’ and ‘nothing could make your day bad on this beautiful day.’ Except when your baby dies and you hear things aren’t going they way you thought they would be, you’re allowed to have bad days. Not just one, but a lot. Long story short, I told her my baby died, she gave me an appalled look, and I ended up tears while walking out of the store.

Screen Shot 2016-09-13 at 9.29.14 PM.png

In the past, I’ve shared pictures of what a bereaved mother looks like a various stages of grief. I believe it’s important to see this rawness; especially when I try to keep it together a good percentage of the time. I will admit, I wiped most of my tears off so I could see where to press the button. But, when I walked out of that store, I knew I had to capture that moment. It’s vulnerable to sit in a car crying as people are walking by looking in. Being told to cheer up because there shouldn’t be bad days on such a beautiful day outside is wrong. I know I wasn’t having the best okay day after loss, but the harsh reality someone was having the worst day of their life. Someone’s baby died yesterday and I don’t know them or how many families were effect by loss yesterday, but I do know they’ll be going down this path. There’s days where the sunshine will not heal you. Days where you don’t get to sit at dinner with your partner and attend an amazing support group like I did after this moment. Most times, you can’t pull yourself out of this moment. You don’t know yet that just writing your angel’s name down on paper over and over again can help you. You’re lost and spiraling and an associate trying to do her job ruins your day even more. The point is death happens and people are sad. That’s the unfortunate promise of life. Why should we shame others in sadness when they already feel horrible? Why do we feel the need to fix the unfixable?

But I want to tell you, yesterday taught me an important lesson in my twenty-three weeks post loss. When it feels like the world is turning it’s bad on me, I don’t have to hide those feelings and I can work through them. I’m learning how to catch my breath when I’m drowning. In times of feeling like others look down on my grief or think I’m not ‘moving fast enough,’ I can tell them it’s their opinion and I’m doing what’s best for me. Grief is selfish and I need to continue being selfish for Jensen and I.

Screen Shot 2016-09-13 at 9.38.47 PM.png

There’s Jensen’s name.

Today I shared, “The amount of times I’ve written his name already today is mind-blowing. It’s very therapeutic to just see it over and over again.” One hundred and sixty-one. That’s how many times I wrote his name today. It’s also the amount of days Jensen has been gone. I wrote how the amount of times I wrote his name was mind blowing, but it never crossed my mind that the amount would end up being the number of days he’s been gone. It’s a crazy amount any way you look at it. But it is written and no one can erase his name from that paper. Just like they can’t erase the memories or the impact he continues to bring to my life and the world around me.

Jensen, the second thing I told you this morning will be the second to last thing I tell you again tonight. Happy twenty-three weeks in heaven my sweet, little boy. You are so loved and missed everyday. Your momma will never, ever forget you. The strength you bring to me each and everyday is what keeps me treading. I hope you played with all the other babies and are now being rocked to sleep as the day comes to a close. Let me love swaddle you as you sleep and dance in the clouds.

I miss you.

I love you.

 

The Story Behind the ‘Yellow’ Nails.

There are a lot of days in grief where there is no lightness. Most times I’m drowning in the waves of loss and depression. It’s a dark time in my life, but as always I keep treading. I have to keep going and living life for me and Jensen. Even in the ever-present darkness, there’s moments of light. I’d like to share my latest light moment with you all…

“What color nail would you like?”

“I’m thinking a deeper, yellow color. Still clinging on to the last of summer.”

“Okay, I have the perfect yellow for you then!”

As I washed my hands, I was looking forward to see the beautiful, mustard-yellow color I had envisioned on my nails for the remainder of September. There isn’t one part of me that wants fall to arrive. I kept thinking, I could still see glimmers of summer on my hands. I didn’t have to move forward right now and I was perfectly fine staying in the summer months. After I dried them and walked back to the station, the technician presented me with his perfect ‘yellow.’

Screen Shot 2016-09-11 at 4.05.25 PM.png

I’ll pause for laughter here. No, they’re definitely not yellow. No one that sees color would ever tell me they were yellow. Even if they’re not, this color is so special to me.

This man’s ‘yellow’ was Jensen’s bright orange. When he asked me if I loved the color, I couldn’t tell him no. Of course I love the orange; my Jensen’s color. Was it the yellow I wanted? No, but there it was. It was my sign from Jensen. Him letting me know he’s right there with me and really wanted his mom to have bright orange nails. It’s the color a little boy would most definitely pick out. My little love’s bright orange that’s painted on the wall, that his crib would still be filled with.

Maybe you could say it was a confidence that this guy picked out this orange when I told him to pick out a yellow. Or maybe it’s not? I believe in the feathers, blue and red birds, and dragonflies he sends me. Why would it be ridiculous to believe that this bright orange was anything else other than a sign from Jensen. It made me smile. It still makes me smile as I see them while I type. It’s a good moment. A good moment that will span over the next two weeks.

These ‘yellow’ nails, that some would see as a mistake, are happy little reminders that Jensen is here with me, always.

Five Months.

Screen Shot 2016-09-05 at 12.58.07 PM.png

I usually don’t talk about Jensen’s big hands, just his perfect feet. Sometimes I don’t have the words to describe each of his features, in my mind they’re each just so perfect that there are no words to encapsulate him. This past week, I dove into Jensen’s drawer and looked over his hospital folder. These big, bear hands just reached for me to look more closely. I never realized how ginormous they were until the last time I saw them. We also printed off a few of his pictures to hang around the house and the one that sits next to Anthony really shocked me. His hands looked bigger than they do on his prints. They’re chubby and really long actually. You can’t see that in the prints, so you’ll just have to trust me. Those hands would definitely be bigger than mine. I hope he’d give better high-fives than me too.

Five whole months. He would’ve been using his hands so much by now. Holding his bottle, gripping my fingers hard, and probably flailing them around. I’m sure they’d be right by his face all the time, just like he had them during all the ultrasounds. He would for sure be a thumb sucker, but that’s okay. I can just imagine how he would have grown by now and I would be seeing this beautiful boy with his hand in his mouth and slobber everywhere. Then when he’d get our attention he’d just give us this ornery, big, gummy smile with his hand still stuck in there. I can just picture it…

Honestly, I didn’t imagine me being able to make it to the five month mark without Jensen with me. Sometimes I think my heart is so broken that it’s going to stop too. Kind of like how older couples die just months between each other. I feel like that’s going to be me. Everyday I’m amazed that I wake up, feel it beating, and can get out of bed. The pain of outliving my child stings with every breath I take. I try to fill the house with him each day so I have a reason to smile. Most times I wish I could just stay on my couch curled up in my blanket with all my candles on and just be. Not doing anything, but being warm and present. Those days are necessary most of the time, but I have to get up. I have to work and try to keep living the fullest life I can.

Continue reading

The Promise of September.

It’s been a weird day.

September is here. I keep seeing post full of excitement for fall, the weather getting cooler, and everything pumpkin. The kids are back walking past my house every afternoon. I always loved the idea of being close to the school, now it’s torture. Leaves on the trees are slowly turning and will soon fall to the ground. There’s promises of change surrounds me from every direction. It pressures me to feel it, but everything in my body is telling me to run back to April. Run away from Jensen being five months old here in a few short days. The promise of change scares the living hell out of me.

Screen Shot 2016-09-01 at 11.16.19 PM.png

It’s crazy to be at a point where I remember being pregnant last year and can compare it with now. I guess what I say it like that it doesn’t make sense. It’s easy to compare the physical aspect of my life from last year to now. I was pregnant and happy that Jensen was here and now he’s not. The ‘interesting’ comparison is the train of thoughts. Last year I was constantly thinking for the future and what was best for the little life growing inside me, now I’m thinking of the past. What could I have done better? Why didn’t I take more pictures? I do a good job of making myself feel guilty…

Continue reading

To Danielle at Twenty-Two.

Happy twenty-second birthday. This birthday will bring you joy and hope for the future. It will be busy going to a football game, spending time with your most loved ones, and choosing baby names. Today you found out you are carrying the most precious gift in the whole entire universe. At that second it turned positive, you knew this year for you would be completely different from any before. You would start counting down the days to important pregnancy milestones and planning for the rest of your life. Soak in this happiness, this will be your last birthday that you will be able to freely smile with meaning.

This year you will grow and not just your belly getting bigger and bigger. Your love will grow and be greater than anything you thought was possible. The pride you have for you family and son will burst from the seams. There will be a light in your life that grows with every single beat of Jensen’s heart. He will grow and as you watch him dance across that screen, your smile will grow at each visit. Your little house will have a ceiling and walls up, even a nursery. Instead of your mind focusing in on a single person’s house, it will grow suitable for a small family. Everything around you will be nurtured for the future you came up with, as you woke up on your twenty-second birthday.

November will be the happiest month of your year. You find out the little baby in your belly is a boy, your Jensen. He sits there just like Dad does on the couch. He isn’t shy about being a boy and you’ll soon find out he cooperates for everyone when you ask him to. Even when he’s being the most stubborn little boy for the nurses, when you ask him to move he does. The love you have for each other is unbreakable. You find out his heart is strong and he has hair; the only two things you asked for when you found out you were going to have a baby. Even though you didn’t think you would see Jensen twice a week while you were pregnant, you will be so thankful for that time with him.

There will be so much happiness and love in this year, you will be on the greatest high in your life. Collect those moments as they come and never let them go. You will have bumps while you’re pregnant that you’ll never think you can get over. They are not important. You would’ve got through the, but you didn’t think anything worse could happen. You could never have imagined the alternative. Instead of listening to almost everyone around you, you’ll fight for Jensen. Just as any mother would. No matter the challenges placed in front of you, you will always do what’s best for Jensen and you.

Then comes April. At this point in the year, it’s gone so perfectly. You will be so ready for his arrival, just getting a few more things the weekend before. In the second day of this month, you will joke how you feel like Jensen won’t wait to come out for very much longer. You will be surrounded by Anthony and your family. Love will pour in that weekend. Everything will feel just like it has, until you walk in the doctor’s office on Monday, April the fourth. This is when everything changes. The joy and happiness that you felt on your birthday, this day one year ago, will vanish. Your hopes and dreams will go away and you have to say goodbye to the one, little person that brought you so much light.

On April fifth he is born. You find out he did in fact have hair, looked exactly like you, and never once brought you pain. He’s a perfect baby at seven pounds one ounce and nineteen and three-quarter inches long. All ten fingers and all ten toes are there for you to count. His big cheeks and button nose would have scrunched up to boast a big smile. You made him with love and he looked so peaceful. The day will be static, even as your twenty-third birthday comes. I can’t tell you when that day comes back clear. It hasn’t yet, there’s a chance it never will.

I’ll be honest with you, Danielle. The days, weeks, and months that follow his birth are hard. You’ll plan your son’s funeral, tears come more freely than smiles, and the light is impossible to see. It will hurt to breathe and nothing will scare you anymore. I wish you never had to meet death this year. This isn’t what you wished for as you blew out the candle on top of your sundae. You’ll wish to go back in time, something you never did before. Depression will creep up, self-doubt will happen, and all you will be able to do is survive. There will be people who don’t understand this and you’ll feel alone. A loneliness and emptiness will eat away at your everyday. There will be darkness.

Somehow, you will keep surviving.

Jensen, even in death, is your light. He and all the memories you have with him will keep you going. There’s not a lot of smiles in the last few months of your twenty-second year, but when you do, it’s when you remember him. Many will tell you to find some light in your life and somedays it’s just a flicker. Jensen’s light is so strong, but sometimes grief is pitch black. When you feel like giving up, search deep down. You’ll see his light. No matter how pitch black it is, Jensen’s light never goes out. He never hurt you when he was here and he would never leave you in the dark.

Screen Shot 2016-08-21 at 5.55.44 PM.png

I want you to know that grief does not get lighter, we become stronger. This pain and darkness does not go away. You just learn how to live with it. There will always be an absence in your life, but his presence was so great. Through this year, soak up all the light and happiness you can. Even now, as this year is coming to its close, I would never wish it away. I would never want to forget all this love and each day Jensen was with us. I can say that even through this darkness and pain.

This year you will become a mother of all mothers. One who does not hold her son in her arms, but in her heart. Forever.

Love,

Danielle at almost twenty-three.

Day of HOPE Prayer Flag Project 2016

When you drive by my little grey house with black shutters, you’ll be welcomed by a big pallet chair, flowers, and a big signs welcoming you. Everything is very monochromatic, besides the flowers and one flag that hangs to the right of the chair inviting you to sit. This flag is different. Even though it’s oddly out of place, it feels like it’s right where it should. It hangs behind an angel that sits and protects the house. When the wind blows the frays on the bottom dance. Each part of the flag tell a story and as the frays dance in the wind, it also tells a story of love, loss, and hope.

Screen Shot 2016-08-19 at 2.50.17 PM.png

Continue reading

Fifteen Weeks & The Painted Name Project.

It feels unreal that another week has came and passed. It’s the fifteenth week since Jensen has been born. One-hundred and five days have passed. On day one-hundred, I felt the biggest pain, triple digits was hard to wrap my mind around. How could it seem like it was yesterday when he was dancing and moving all around? Seriously, I don’t understand how all of this can be possible. But each day I wake up and rediscover my reality.

I feel like I could go on and on and on about all I wanted to do with Jensen or how I feel like my whole entire future was stolen away from me. Today I’m choosing to have a positive day, even though I want to hide in bed. I know he continues to guide me each day and protect me. He dances in the clouds each and every Tuesday, while he celebrates getting bigger in heaven. In my heaven, he grows until I get up there with him. Then we both go back to being twenty-two and him just born. When I reunite with him there, I want him to be screaming as loud as he can be. My heaven does not include silence.

In this world, I don’t want to keep silent either. I will always say Jensen’s name and keep talking about baby and child loss. It’s really unheard of until it happens to you or someone you know. Believe me, there’s a whole community of parents, grandparents, and other families that are effected by losing a child. Stillbirth results in 1 in 160 pregnancies and baby loss ranging from miscarriage to SIDS happens to 1 in 4. I hope to be able to help every single family out there in just a small way and maybe one day I will.

Today, in honor of Jensen’s fifteenth week in heaven, I want to share a beautiful project that my little Jensen helped to inspire.

Screen Shot 2016-07-18 at 10.11.55 PM.png

Continue reading

Three Months.

Today my son turns three months old.

I’ve been dreading this day. This whole holiday weekend has been so exhausting and has led up to this Tuesday. It seems unreal that I’m here right now. Somehow my body is still walking, breathing, and functioning. Most times it feels like my soul is going to lift right up from my body and just go. I’m not sure where my soul would go, I’d just want to be right there with Jensen’s.

This Tuesday is unlike all the other milestone Tuesdays and changing of the months. Today is just like the day Jensen was born: Tuesday, April 5. The combination of the days together hurts so much more. Not to mention we changed the calendar page, again. It all has flooded me this weekend. I was with family on Saturday, just like I was three months ago. Sunday was a lazy day with Anthony. Then Monday was full of pain and loathing for the next day to come. July is mirroring April. Heck, the weather is just like April.

Then I’m here, barely. My body is a zombie and my mind is just everywhere all at once; replaying three months ago and since then all at once. It hits me how much time has passed.

Continue reading