#WhatHealsYou

When someone breaks a leg (literally), healing could include surgery, rest, and physical therapy. It could take years for the deep pain of the break to feel like it was almost back to normal. Sometimes, the person might even have a limp for the rest of their life. No matter what you’ve done to heal the leg, it’ll never go back to what is was before.

In a crazy way, that’s kind of how grief and healing after losing a child works.

Obviously, one is physical pain and the other is a lot more complicated than that. But, it’s easier to explain something familiar to an unfamiliar situation. Instead of healing a broken bone in the ways I’ve said, for grief I’ve found ways to soothe myself, I rest a lot, and I go to therapy and support group throughout the month. Shock has fizzled out and there are days were I can feel something else besides deep pain.

I can’t tell the future or how my journey of grief and healing will go. There’s not a right way to live after losing a baby. If we keep on the analogy of breaking someone’s leg compared to grief, at physical therapy a person has to find what makes them want to learn how to walk again. Some like the bike and others like the treadmill. With grief, I’ve had to find things that are gentle on my heart. Those soothers are hard to find when everything looks so bleak, but they’re there… I promise.

For me, it’s a few things.

Leo and Poe can make me smile when I feel like nothing else can. They give me motivation to get up every morning and feed them to start my day. Leo gets himself into crazy antics almost every hour, like jumping on top of the shower curtain. Poe, who usually doesn’t want to be held, will come sit on my lap and let me cuddle on him everyday. His purrs are so loud and deep. They both let me care for them in a way I didn’t think I would ever care for anything again.

Hot tea, reading, and writing have saved me. When I can’t stop crying or when I can’t relax enough to sleep, I go to these each time. The aroma of the tea calms me, reading occupies my mind, and writing gets out all my thoughts. I’ve said over and over that it’s been therapeutic to me and that has been so healing. During those times, I feel like time stops and quickens at once. Getting lost in time is sometimes the only thing I know how to do to help.

Human connection. A huge generalization, but so important. I couldn’t imagine being locked up or stashed away somewhere completely alone. Friends, family, and the loss community have been there in different, but important healing ways. There’s understanding from those who have walked my shoes, encouragement and literally being dragged from places by my family, and a sense of trying to understand from friends. Even though grief is so individual, knowing I’m not alone in this journey through all the facets of my support, have helped me soothe and heal.

The last and most important is Jensen and love. I can’t imagine my life without Jensen being in it, which is probably weird to say since he’s not physically here, but he’s all around me. There are days when the only word that helps me is his name; I write it over and over again. I think of all the days I had with him and how the days were filled with joy. Seeing his face each and everyday calms me. He is all I’ve ever wanted. When I look at his urn with his candle lit, I feel a sense of peace. Warmth floods the room and it feels a lot like love. A mother and child’s love is unbreakable. Sometimes I can imagine it wrapping around my heart and trying to put the pieces back together. Love is what makes my world keep turning. It’s what allows me to get up in the morning to feed Leo and Poe. It’s what flows in and out when I read and write. It’s why human connection is even there. More importantly, it’s all Jensen knows and has.

Love is what heals me.

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I Am.

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The following words were written at 2:11am this morning. I couldn’t sleep at all last night with the whirling of thoughts and words in my head. In attempts to show what grief looks like at all times, I’m not going to edit or change anything I said last night. You’ll even see the scribble out of one word and the underline of another.

I wish…

I wasn’t writing this. I wish loss never happened. I wish Jensen was sleeping silently soundly in his crib. I wish wishes came true, then I’d bring our babies back for you and me.

I remember…

Only hearing 4:25 and feeling something I’ve never felt before. I remember the emptiness when I arrived home. It took place where Jensen had made his home for the past thirty-eight weeks and two days. That emptiness spread from his sacred spot and traveled in my veins to my heart, my brain, and even to my toes. I remember the second that emptiness and numbness turned to unbearable pain, that still hasn’t went away.

I could not believe…

Those six words that came out of the doctor’s mouth. Even worse, I couldn’t believe the confirmation of them with the silence of his birth.

If only…

I knew what I do now. Maybe I could have saved you. If I couldn’t have saved you, I would’ve changed the moments after your birth. If only there were one kiss or sweet whisper of ‘I love you.’

I am…

Jensen’s mom. I am on a raft of love in the sea of grief. I am Danielle and I’m learning how to journey and survive life after loss.

 

Consciously Becoming.

Danielle before didn’t realize how terrible this world could be. Of course there were bad things to happen to her, but not to the magnitude of a child dying… to anyone she knew. She was carefree and loved adventure. If an opportunity arose where she could go somewhere, anywhere, she wouldn’t look back. Maybe she didn’t have her life figured out completely, but it was okay; she had the whole future.

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This was Danielle with Jensen, she felt like her life was starting to fall in place. She was happy and planned her future for her son. In this picture she was in Gettysburg and Jensen was just now moving. Which made her really sick, but she smiled with every movement. She planned on teaching him all she could about the world. There were times where she was scared because she didn’t know exactly what was going to happen, but she knew they would make it through. She was hopeful. Jensen made her feel like she had her place in the world. At the moment in the picture, she was on top of the world. Nothing could bring her down. Danielle was consciously becoming a mother each and everyday. Everything was right.

Then, it all changed when his heart stopped beating.

Danielle after Jensen is still a mother. I’m in survival mode every second of the day. Some days I don’t understand how I’m still alive and it doesn’t scare me to have those thoughts. I don’t want to welcome the upcoming days or listen to the clock ticking. Almost all of me is broken and then there’s a tiny bit of my taping myself back together. Most of the time I’m confused, but I’m working through it.

In this moment, I’m tired. I haven’t wanted to do anything all day, yet I had to. My heart feels like it’s beating really weak. I keep smelling Jensen’s candle, which makes me smile and want to cry at the same time. This is normal and how most things are for me lately. In my mind, I look like a Picasso painting. Some part of me wishes I could draw so I could show others how I think I am, but I can’t. My hair is fluffy from my shower and I honestly look like a new mom, without the baby physically here. I’m probably a mess to the outside observer, but like I said, I’m surviving.

Jensen’s death has changed me, not for better or worse. It just has. I can’t be carefree anymore, not that I haven’t tried. My natural ability to plan everything has just went out the window. I would say I don’t have any fear. It’s my belief that fear comes from being afraid to be harmed or killed. I just don’t find anything to be as scary as what’s happened to Jensen. My scariest day in my life has already happened, what could be worse? Here comes that bad karma my way.

It’s hard to imagine me being Danielle before Jensen now that he’s gone. There are times I wish I didn’t know this pain, but I wouldn’t give up not knowing Jensen for that. Maybe I wish I could have a little part of the carefree attitude back. What do I mean by that? I want to be able to go somewhere without fear of having an anxiety attack. It’d be nice to be able to accept any opportunity given to me without the fear of being judged or second guessing myself. Maybe that’s ignorance and maybe I want that innocence back. But I would still have it if Jensen never died.

With all this pain and heartbreak, I still love myself in a different way than I knew possible. I love my strength for being able to get up everyday, even when I don’t think I can. I love that my body was able to grow and nurture Jensen. I love seeing my feet when I look down because they remind me of his. I love that even through pain and heartache, I can still smile and even laugh. I love that I can allow myself to feel and grieve. I love that I’m not giving myself an endpoint to be done with this all. Most of all, I love being Jensen’s mom.

Through all my life experiences, I’m consciously becoming the person I’m supposed to be, even if I don’t know who she is.

Sounds, Seasons, & Scents.

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Fall reminds me of Jensen.

The smell of the crisp air and the leaves changing from green to red to orange. He kicked me for the first time last fall. I remember that quickening and fell more and more in love with him. When I would walk and have the leaves crunch under me, I’d always press on my belly so I could feel him more. Usually when I’d place my hand there he’d float by real quick. The doctor always had a hard time finding him because he would be rolling in there. But I was able to see and hear his heartbeat every few weeks. It was perfect. This time last year, I was blissfully happy with how the world was turning around me.

I’ll never forgot those moments in my life and the fall will always remind me of them.

This summer I felt him with the waves of the water. He’s in every movement with nature. From the gentle breeze of the wind to the wings of a bird flying around. I get lost in my thoughts when I’m outside, not listening to anything and thinking of him. It’s all the dreams I wish I would have had with him there; raking up all the leaves and having him jump in them, getting dirt everywhere, and being soaked from the rain. In those moments I’m out there, I can just let them flood into my mind.

Music was always Jensen’s favorite thing. No matter the song, he’d literally dance away. His heaven is probably songs playing nonstop. There would be no silence or stillness around him, nothing like the way his body came into the earth like.

When I connect with him and his memory here, I listen to Of Monsters and Men. I’m sure when people are walking by my house they hear it playing loudly and me singing along. That’s what Jensen and I would listen to in the car, with the windows down. I felt they sounded like sweet lullabies to calm him. But when he wanted to dance, I’d put Usher on. He would move all around when he heard Usher. On the days where I can smile, I’ll put that on. It helps me enjoy it more when I can imagine Jensen’s spirit dancing all around me.

Pearls of Wisdom.

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Today marks two-hundred days since Jensen’s birth.

It’s a crazy feeling knowing how many days have passed and comparing it to how I felt when I was two-hundred days pregnant with him. I can remember it like yesterday, but it feels so long. From then to now, I’m a completely different person. Which is completely understandable and it’s okay to just be this person I’m becoming.

But that’s another topic coming up on Capture Your Grief.

There’s so many pearls of wisdom I’ve come to know. I find comfort in E.E. Cummings poems and works. I’m constantly reading Lexi Behrndt’s blog, Scribbles and Crumbs. Emily Long’s books are always at arm’s length away from me. Every morning I read posts from Still Mothers and Still Standing. Those are just a few that are popping in my mind right now. Yet, they all bring me wisdom and comfort, even in the smallest ways. They let me know I’m not alone and many words that I’ve read have expanded my mind. I wish I could go and thank every single person that shares their story. It’s so brave and helps so many.

The past week I’ve been rereading and reflecting on a lot of what I’ve written in the past two-hundred days. There are so many words I’ve written that I forgot about. Just like the quote in the picture above, ‘It’s okay to just be.’ That would be my advice to anyone that has lost a child. Just being is sometimes the best we can do. No matter what you have or need to be in that moment, as long as you’re being gentle with yourself and protecting your heart.

Tonight I have planned something special, just something small. I’m having a little fire and writing Jensen a letter from me. Then I’ll throw it in the fire and have the smoke deliver him my message of love. I’ll be the best mom I can today, that’s all I can do to just be.

Relationships.

Today I’ve been reflecting on relationships that have begun and ended since losing Jensen; both so important to my grief journey and support system. There were moments today where all I wanted to focus on was what I don’t have and others where I could only think about what I’ve gained. They kept twisting and pulling at my heart. I had to take a break from these thoughts and started to do things to heal my heart. Then, I looked across the room and saw the relationship I’ve worked on every day since I could remember.

The relationship with myself.

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Picture from my lovely shoot on October 15th with Eloise’s mom, Abigail.

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Gratitude.

Some days I can’t stand thinking I have gratitude for anything in this world after it took Jensen away. Maybe it’s clouded from the rain or the darkness that has settled in me this evening. Instead of delving into my thoughts, I want to make a list of all the reasons I’m grateful. My mind can’t go any deeper than that tonight.

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I’m grateful for you reading this and saying Jensen’s name quietly to yourself.

I’m grateful for my family and the support they give me.

I’m grateful for this path I’m on, even if I don’t understand it.

I’m grateful for my beliefs and how they keep me grounded.

I’m grateful for the loss community for never letting me feel alone.

I’m grateful for all the pictures of Jensen’s name I receive.

I’m grateful for noise, so the silence doesn’t pull me back.

I’m grateful for the rain as it waters Jensen’s tree.

I’m grateful for Leo and Poe, as they let me be the best cat mom to them.

I’m grateful for the happiness I once had.

I’m grateful for pain and it’s ability to push someone to their breaking point.

I’m grateful for my motherhood.

I’m grateful for the candle’s flame dancing just out of my reach.

I’m grateful for the first time I felt his kicks.

I’m grateful for every picture I have of him.

I’m grateful for his love of chocolate milk, that I still drink to bring back a part of him.

I’m grateful for the thirty-eight weeks and two days I carried him.

I’m grateful for the chubbiest cheeks I’ve ever seen.

I’m grateful for his button nose and pouty lips.

I’m grateful for his curly blond wisps.

I’m grateful for his memory and those who remember him with me.

I’m grateful for the courage he brought me.

I’m grateful for his signs.

I’m grateful for the love that constantly guides me in the right direction.

I’m grateful for being able to carry the most gentle soul and being able to learn all about him.

Most of all, I’m grateful for Jensen.

 

In the Making of Grief Rituals.

Another day, another spin-off Capture Your Grief.

Day nineteen is all about Grief Rituals on big days and how they help. Since I’m just now starting to get to the anniversary dates of certain doctors appointments and finding out Jensen was boy, I’m still learning about the rituals I want to create. I’m thinking about maybe coming back to this after his first birthday and talking about what helped with the first year. For now, I’m still learning what I need to cope and heal with these rituals. Life after loss is a huge learning process, as I’ve said countless of times. Which is why I’m in the making of grief rituals.

Some of the big days, right now, that I have to ‘focus’ on are his monthday, Tuesdays, and some of the anniversaries I have hit. My birthday was a really huge trigger day for me since last year we found out he was in my belly. There were also a few dates in September that triggered me, like the day I first saw him, the fourteenth or one of my first appointments was the ninth. Those days were rough, but I can imagine from next month out I’ll be really focusing on grief rituals and what helps me get through the days.

There’s also days that I never knew would become apart of my rituals like remembrance walks, support groups, and ceremonies for all babies gone too soon. Two weekends ago we participated in our very first remembrance walk, which I blogged about here. It really helped being surrounded with other families going through loss for me, but also my family. They were able to see and know this pain is real for many others. Last night we were so fortunate to be apart of another local walk and that’s what I want to talk about today, our new rituals in the making.

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Toland-Herzig Funeral Home, in Dover, Ohio, had its nineteenth annual Walk to Remember for child loss of any age.  I was able to be involved in this walk by other loss moms letting me know they put it on. It begins with someone in the loss community telling their story and how they help others during this tragedy. Being able to get up in a room full of people, not to mention being – for the other two rooms to hear, is so courageous. I know how hard it is to talk about losing Jensen to small groups of people, but then adding public speaking on top of it… I’d probably have a heart attack.

We then were prayed over and headed outside for the candlelit walk. There was the huge circle in the parking lot and then everyone helped light each other’s candles. It was beautiful and symbolic for me. Being able to help someone with their candle and passing light and love to the other person is up lifting. It’s sad to see how many people are in the circle effected by the loss of a child in some way or another, but how beautiful is it to be so supported.

Not to mention, my flame danced the whole way just as they do in my home. Jensen’s way of letting me know he’s close.

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When we got to Warther’s Museum, we were led to this beautifully lit gazebo. Unfortunately every picture I got of it was so blurry, so I can’t share how breathtaking it looked. Music was being played and we all huddled around, listening and remembering. I’m sure it only lasted moments, but besides the music playing, it was quiet. Not the quiet that I cannot stand when I’m home, but one that settles the soul.

There was another gentleman that shared his experience in hospice and read a poem. Then we were all asked to come to the microphone, share our name, number of walks, and who we were walking to remember. It’s different to actually hear family members share their experiences with the walk and about their loved ones. You can hear the emotions in their voice and their strength as they say their names so proudly. They said, this part of the night was the easiest and hardest… and it was. It’s a big mix of it. Easy as in listening and supporting the person as they share their deepest grief. Hard as in building up the courage to speak in front of everyone and letting that acceptance of your child’s death hit again.

Not that it ever goes away.

I was nervous, but happy to share a small part of our story. There is so much strength in just sharing him with the world and not feel judged. To say Jensen’s name makes me beam with pride. I hate death, but love my son more than anything else in this universe. That’s what makes a parent’s grief so complex.

After everyone who wanted to share finished, we started our journey back. Jensen’s candle extinguished in the moments after saying his name. Just as if he was telling me thank you and I love you. Many times I write to Jensen that I hope he is swaddled in love and warmth in heaven and last night, I felt that same way. With the circle of support, walking with the light of his love in front of me, and saying his name for the world to hear, I knew as we got in the car to leave, this would become one of my grief rituals.

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Sacred Space.

Space seems so scary sometimes.

In the early weeks, it felt like all I had was space suffocating me; the space Jensen was supposed to occupy. Especially when he was first-born and I only had his nursery items and all his clothes. I didn’t have any remembrance items, besides what the hospital gave me, but I couldn’t even look at his prints at first. When I moved into my house, I kept seeing where I planned on having his pack-n-play and swing. The walls were empty and all I could imagine is what his newborn pictures would look like. It was hard in those beginning weeks of creating a home that I imagined my son growing up in, without him. Then I put his big silver J up that was supposed to be in his room.

Seeing his J everyday made me smile and feel like he was where he was supposed to be. From then came his pictures, the Painted Name Project print, and the most perfect footprints all over the walls. Everywhere I look there are pieces of Jensen that belong. I turned my whole house into my sacred space. I’ve added in silver birds and elephants to represent me sending messages to Jensen and how I’m not alone in this grief. My house makes me feel safe and comfortable. Even though he’s not here, he fills our home and that couldn’t make me happier.

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The space that felt so daunting in the beginning brings me so much solace now. It’s what I search for when the waves of grief are pulling me down and what I look at when they have subsided.  His candles are always on, like a lighthouse, leading me to the shore.

I wouldn’t call my home a shrine to him. My house is exactly how it would be if Jensen were here, minus the amount of toys. Although there will never be any pictures that show him growing from the day he was born, I see the progression of his life when he was here and the impact of his life since he’s been gone. My sacred space is all about him, just like it would have been if he was sleeping in my arms now.

This space that seemed so scary in the beginning has become a place I can call home.

Beliefs & Spirituality.

I just want to start off saying, this topic brings a lot of emotions when talked about. There have been centuries of wars started over religion and differences in beliefs. This post was not written to harm others or to push what I believe on anyone. I’m not like that and I value differences in opinion. It’s fascinating to hear what other’s think about the world and their spirituality. There’s no right or wrong in what you believe.

Beliefs, spirituality, and faith are as individual as each person or their journey in life. For me, it’s something that’s constantly changed as I’ve experienced different situations or learned more information. When we were young, we didn’t go to church or were pushed to believe in a certain thing. I mean, we celebrated all the holidays and learned about Jesus, but we were able to explore it all in our own time. That meant learning about any religion I could find and even more ideas about the afterlife. Like I said, I found it all so fascinating,

To put it bluntly, I believe in God and the afterlife. Yet, there’s so much more to what I believe than just that.

Before I get into the details, I want to make something clear. I do not find it comforting for people to tell me Jensen is in a ‘better place.’ There’s no better place for him than in my arms. It’s not comforting to know that God needed another angel and He somehow chose Jensen. More than anything else, it angers me and it’s not fair that he died. Believe me, I know he’s a special boy, but his innocent soul deserved to live so much longer. If you hear me talking about him being in heaven or being an angel, it’s because I can. That sounds ridiculous, I know. BUT, until you’ve walked in my shoes and experienced losing my son, you don’t understand what is comforting to me. It’s okay if I say those things because sometimes that’s the only thing keeping me being here. Knowing he’s protecting me and will be there when I die. As I said, faith and this journey is individual.

Now I’ll get back to the prompt.

Yes, I believe in God, but that doesn’t mean I’m angry with Him and it doesn’t mean that my faith wasn’t shattered. Most days, I’m still so mad and don’t understand why this is happening to me. I find comfort in a lot of verses, not all of them. One of my favorites is below, Jessica, from Lettered Hope, made this for me. It comforts me to pray and put my worries on God. If I say I’m praying for you and/or your angel, I don’t mean it in a bad way. It’s what helps me make sense of this loss. I believe God hears me and tells the children in heaven that they’re being thought of. Then I think they can just hear me too. I remember not praying for a few weeks after Jensen died because I was so angry, which was weird because I did a lot of work in the bible when I was pregnant. It was Jensen and I’s routine every night to pray. I can remember screaming till my throat would bleed asking Him why. Why Jensen? I know there’s not a reason for his death and I won’t know until I’m dead. There’s nothing good that can come as a result of Jensen not being here, but I’m being lead into healing through knowing I will be with him again.

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After losing Jensen, I understand how people don’t believe in God, or well any higher power. It’s not fair, especially when we’re led to believe that He put this pain on us. I get it and your beliefs are justified, just as mine are to my understanding of this.

Another belief I have, is in spirit communities; I’ll try not to go too deep into this, unless you’d like to know. When I talk about this, I literally feel crazy. I believe that everyone has a soul and that our souls are connected with those that mean the most to us. Some know this as soul mates, but I believe in a soul community. These souls stay around each other for all eternity and come back here to earth and find each other again. This can be from partners to children to friends, but we’re constantly searching for one another. I think Jensen and I’s souls have been connected for a long time. As any mother, I had a bond with him when I was pregnant, but I get a lot of signs that I know are from him. In my letters to him, I’ve said that we’re two souls who search for each other, but are continuously just out of our reach. Maybe this goes along with not only wanting to see him again, but one day seeing him grow? Who knows, I’m still working on this belief.

The last thing I want to touch on is heaven. I really believe there is a home for us after we die. Maybe we go there to rejuvenate for another life or we stay there forever, both comfort me equally. I think heaven is different for everyone. Sort of like everyone has their own house and inside is what makes their soul happy. It could maybe even be your house transported into heaven, which I wouldn’t be disappointed about! Sometimes I think my heaven will be walking right into my front door and picking Jensen up from his crib. Then just holding him and studying every detail of that moment. We’d never run out of diapers and food. My heaven is just us together in his nursery, watching whatever’s going on outside his window. Hopefully my other family would be there and so would Leo and Poe. But as I said, everyone’s heaven is different.

I often think about Jensen’s heaven. Maybe his is with me and that’s why I always have so many signs. I think he’s with my grandma being held, I have a feeling that would be apart of hers. Maybe he’s growing or waiting for me to get there so I can see that. I hope I can revert back to twenty-two and we can grow together.

Jensen will always be my heaven and I have faith that he’ll be eagerly waiting for his mother’s embrace.

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