Tag Archives: Stillborn Still Loved

If You Wouldn’t Say It to a ‘Normal’ Mom, Don’t Say It to a Bereaved Mom.

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Throughout this post, I’d like for you to imagine saying these things to both types of moms. This list has been on my heart for the past few months and I hope it will be able to help the way we speak about miscarriage, stillbirth, baby, and child loss.

‘Isn’t it time to move on?’

Have you ever been in a conversation with a mom whose child just learned how to walk or talk? It’s a pretty big deal. They’ll show you pictures, videos, and give you the whole back story on the event. Before Jensen I would just start nodding my head, like yes I hear you and I am so glad your son or daughter has hit this milestone. BUT I would never say, ‘isn’t it time to move on from that huge, important moment of your baby’s life?’

Why? Because it’s rude and obviously means a lot to the mother. It’s a proud moment for her baby and her motherhood. You wouldn’t say this to a mom at this time or any time in her child’s life. So, why would someone say this to a bereaved mother? We only had a short amount of time with our babies and will NEVER get anymore. Yes, we play the time we had with them over and over. We’re just as proud as our babies and want to talk about them. It’s not right or fair to tell a mom to ‘get over’ their child.

Calling a baby an ‘it.’

There have been plenty times in my life that I pass by a stroller, see a baby, and don’t know if it’s a boy or girl. I’ll look at the mom and say your baby is so beautiful. More than likely, she’ll let me know if the baby is a boy or girl or give me some type of clues to the baby’s gender. Then we go merrily on our way.

Calling a baby ‘it’ is just inconsiderate. IF you don’t know, ask. I’m telling you they will let you know. When a mom is pregnant and knows what the baby is, she will call the baby by his or her name and use the pronouns she needs to. So what makes it different when the baby dies? Jensen is still a boy and definitely not an ‘it.’ Calling him ‘it’ devalues his life and makes a disconnect to his humanness. Believe me, I know it’s sad he died, but calling him an ‘it’ does not make him any less of a baby. I’m still connected to my son and always will be.

‘You’re not going to get rid of or donate their things?’

Of course moms donate and sell some of their babies clothes after they grow out of them, but I’m sure special ones are kept. Just like certain blankets, toys, and shoes are too. These hold special memories to a mom that they want to be able to show their child when they grow up. Whether this be the going home outfit or their first birthday crown. It’s not weird that a mom does this at all.

If a loss mama decides to keep her child’s belongings, it’s not weird. They’re not ‘holding on’ or ‘stuck in’ the past. It’s a happy memory we have with our babies. This could be from the baby shower or the first outfit we bought. Instead of showing our babies who have passed when they’re older, we can maybe show future children or others who ask about our children. A lot of these ‘things’ hold sentimental value just like it does for a living child.

Whispering a child’s name.

‘How are you doing? You know with… Jensen.’

Imagine hearing your baby’s or any word whispered or mouthed to you. It instantly feels like it’s a bad word. One that needs hidden and shouldn’t cross anyone’s lips. The name is said almost secret like, wondering what it’ll unleash after it’s said.

The truth is moms love to hear their child’s name and be able to talk about them; no matter if they’re alive or dead. A person wouldn’t go to a new mom and whisper their baby’s name, they would say it proud and full of excitement. This isn’t any different for me. Jensen is not a bad part in my life nor does it unleash a huge cloud of darkness. If you want to know about him or see his picture, I’ll show you. It lets me show him off and hear that beautiful name I chose for him.

‘The pictures you post are disturbing.’

I feel like this is self-explanatory, but I know there’s some people they don’t understand this one. This is really close to my heart because I am terrified to share Jensen’s picture with the world due to nasty comments.

No one would ever go on to a mom’s post of their new, day old, sleeping baby and tell them that the picture is disturbing. I have never seen a comment on a baby freshly born and crying, that it’s gross and needs to be taken down. Mostly because the baby is alive and well and because it’s just something you don’t do. So, why is it so difficult not to say anything when a baby who has passed is shared? For stillborn babies, these are the ONLY pictures we’ll ever have. It’s not like I chose not to have any pictures of Jensen alive. Believe me. if I could, I would.

My son, like any other child, is not disturbing to look at. He looks like a sleeping, freshly born baby. BECAUSE THAT’S WHAT HE IS IN THAT PICTURE. I have had children look at his picture and not know he is dead and they tell me how adorable he looks sleeping. Some people are surprised to see his picture and realize he’s a fully formed, normal looking baby. Knowing these comments are made to a stillborn baby or a baby that has passed is ridiculous. You wouldn’t say it to a ‘normal’ baby, don’t say it about a stillborn one.

‘Well it’s not like you’re attached.’

‘It’s going to be so hard to leave them for the weekend.’

‘Well it’s not like you’re that attached to your baby, it should be fine.’

Nope. You wouldn’t tell that to a new mom going away for the weekend. Honestly, you probably would get slapped in the face if you did. A mom is connected to that baby as soon as she knows she’s pregnant. Those months you’re pregnant, the baby is literally with them at all times. Obviously, right? No one would say this to a new mom or any mom. It shouldn’t be said to a mom whose baby died.

Saying this doesn’t soften the blow. It, again, devalues the life of a baby that is so very loved and wanted. A mom is attached to their child, no matter if they’re here or not.

 

Love Day.

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Being a mom has taught me endless love.

Not just on Valentine’s Day, but every single second of each day.

When I imagined Love Day with Jensen, I pictured making him heart-shaped pancakes with strawberries (all cut up and easy for him to eat), doing a mini photo shoot with here at home, and having a mommy-son date night. He would be in Valentine’s Day themed pajamas in the morning and jeans and a button up shirt for the evening. I’m sure there would have been a craft we would have done to give to grandma and grandpa. There would be smiles and giggles. All would be right.

I really miss him.

A weird part of this ‘holiday’ is I’m not even being triggered. Maybe it’s because I’m extremely sick and still trying to get better? Or the weird way it seems like a lot of big days have fallen on Tuesdays? Then I think that today’s not really a holiday, but I still wanted to spend it with Jensen and make it another great day for him. I keep telling myself, ‘It’s just a Hallmark holiday.’ But I realize I’m not sad because I’m not spending it with a boyfriend or a guy. I just want Jensen and all the days I should have had with him. Lately, for me, I’ve been missing him in the smallest moments. Ones where I wonder when he would be crying or get mad at me. He’d pout, fake cry, and turn his face so red. It’d be frustrating in that second, but I want that. And there are others when he’d fall and get back up on his own. I wonder how that first time of him getting back up on his own would feel. Like he could do something on his own and didn’t need me; I’d feel so proud and sad at the same time.

Those are the moments I crave.

Honestly, I’m thankful for today. The day I found out I was pregnant was when I knew what love truly was. I swear I felt my heart grow five sizes bigger. It has only grown and radiated. When I woke up today and saw all those hearts and words of love, I just felt it. There has been lovely loss mamas sending me hearts with Jensen’s name and letting me know he’ll never be forgotten. I received his drawn portrait and am amazed with how adorable he looks in it. There’s a love craft planned for tonight that I’m really looking forward to. Maybe I’ll even have a mini date night with myself if I’m feeling up to it tonight.

I just feel so loved today.

It’s amazing to me how in this darkness of grief we can see light and feel love. How even in our worst days there’s something to smile about. That from this great physical distance between Jensen and I, he feels so very close to me. It’s all from this endless love that one little boy continues to bring me.

Which brings me to something I want to share with you guys…

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I’ve been thinking about starting an Etsy shop to spread the love I have for Jensen. The items in it would be customizable to any child; I promise I’m not that crazy to just offer Jensen’s footprints! It’ll be items like the one with Jensen bear and of course other ones too. I thought today would be the perfect day to share with you all and to see what everyone thinks. You all have helped shaped this journey so much for me that I appreciate your feedback.

I hope you all have a gentle Valentine’s Day full of love.

Happy forty-five weeks in heaven, Jensen! Today I’ve felt all the love you’ve been sending me and I hope you’re feeling all the love I have for you. I know you’re hand making me cards for when I join you in heaven and I’ll be so happy to see them. Thank you for giving me this endless love; I’ll cherish it every day of my life.
I miss you. I love you.

The Rise of a Smile Through Grief.

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During this time last year, I treated every day like it was a gift. I marveled how big Jensen was growing and how his kicks were getting stronger. Sweet lullabies were sung to him as I mindlessly worked or planned his baby shower.

Every morning I woke up with a smile.

It was never a conscious decision. I was genuinely happy knowing he was growing safely inside my belly and I enjoyed looking at my pregnancy app religiously every morning after I told him good morning, I love you. Even with the storm of confusion with finding out about Down syndrome and being shuttled to the constant appointments, I was thankful for everyday. Last year’s February and March were the happiest months in my life.

Of course everything changed when April came.

Those mornings I woke up in tears or just stone faced. I couldn’t make myself feel or do anything. Honestly, it’s hard for me to comprehend how I made it through the first three months. The body and brain do an amazing job of protecting itself through shock. I don’t think anyone could take losing a child without the fog that surrounds you (and that continues to protect me most days). Smiles didn’t come naturally those beginning months. They were all an act, I knew when I was supposed to act a certain way during conversations. Not that I even knew what anyone was saying to me, but I didn’t want to seem weirder than I already had felt.

The first time I truly smiled after Jensen was born, I instantly felt guilt. I’ve talked about this before, but I feel like it needs to be said again. In that moment, I let my guard down and was able to feel something; glimpses happiness are very enticing. BUT, how could I smile? My child is dead. What a slap in the face to his death. I’m supposed to be mourning, not laughing and having a good time. I would never see his smile or hear his laugh, so why do I deserve to do all these things.

I started to choose nothingness.

What’s nothingness you might ask? I didn’t want to make myself frown or to be sad. That was kind of inevitable. On the other hand, I chose not to smile. I would hear things that would spark a good feeling, but I honestly did not think I was worthy of any good. So I chose the middle ground. I succumbed to shock and feeling blah. To be fair, I was too exhausted to want anything else. I was feeling every emotion, every second of the day. It felt like being on a roller coaster that has constant loops.

Everything was bland. Food didn’t taste like anything. Even when I would eat Nutella (my favorite) there was nothing. Sleep and I had a love-hate relationship. There would be days I slept for hours upon hours, then the next I wouldn’t sleep at all. The hours of sleep I did get, didn’t make me any less tired. Nothingness felt right in those early days and I’m thankful it helped me make it to today. I can vividly remember thinking this would be the rest of my life. There wouldn’t be a day where sleep would welcome me, food wouldn’t taste terrible, or I could ever choose to start my day with a smile.

Until, I dreamt of his.

Jensen has a unique way of letting me know what he wants for me; whether that be a physical sign or putting a message in my dreams. In the dreams he’s in his blond hair is always a little too long, his cheeks still chubby, and his eyes always searching for mine. When our eyes meet, it’s always an instant smile. I’m telling you guys, it would light up a whole entire city. Maybe even the world. The first time I saw it in my dreams, he probably was the ten months old. Yes, the age he would be now. It was gummy and his nose scrunched up which made his eyes squint even more. I can remember never wanting to let go of that moment and I wanted it to be real. Maybe in another dimension it is.

That morning, I smiled.

Fast forward to last night. After I settled in bed, I felt grief starting to press down on me. It has been a rough two days anyways, but nothingness was fighting its way back to the top. Sleep kept eluding me and I just prayed that I would fall under its spell so I could have some relief. In my dreams, each part of my mind was at war with one another. It was a fitful night of sleep, but when I awoke I knew what side won.

The nothingness that I was scared of drowning me was gone. There was grief, there’s always grief and a tugging of sadness, but it did take me over. Yet, there wasn’t an immense amount of happiness. I felt peace and could only picture a blond hair boy with chubby cheeks urging me to keep going on.

Today I woke up with a smile.

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Happy forty-four weeks in heaven, my perfect boy. The weeks seem to be getting closer together and it’s getting very close to your first birthday. With each passing day, I feel myself getting more and more nervous. I’m going to try to choose to honor each day (but one) with happiness and peace in your honor. You make me want to do better. I miss you. I love you.

Ten Things I’ve Learned in Ten Months of Grief. 

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The past ten months have been the most challenging in my life. A parents worst nightmare is to have their child die, but the nightmare doesn’t end in that moment. Learning how to live after loss is unnatural and soul splitting. There hasn’t been a day that I haven’t cried or felt like my whole world was going to crash around me. On the other hand, there hasn’t been a day where I haven’t felt an immense amount of love I have for Jensen.

This whole journey is a learning experience and I don’t think there will ever be a day where I stop learning about loss and love. Today, for Jensen’s ten month day, I want to share with you ten things that have gotten me to this point in my grief journey.

Loss

I never knew loss before Jensen died. My grandmother passed away before I was two years old and I knew people and had pets that had died, but never had felt this deep loss. From the second I found out his heart had stopped beating, loss overwhelmed me and I didn’t even know how to process that feeling. Then there was the realization that I would forever live with the loss of Jensen. I mean obviously, right?

But at that second of finding out he was gone, my body would not allow me to understand that I would lose Jensen at all the stages. Sometimes I still don’t think I completely have come to terms with losing Jensen at older ages because I’m not there yet. At ten months, I know what it’s like to have loss from the moment he was supposed to be born until his ten month day. I relive that loss each and every day. The Jensen sized hole in my heart is with me with every step and I can literally see him with each step I take.

Loss isn’t ‘fun’ to learn, but I’ve been forced to do so.

Pain

Immense. Abundant. Heaps. Endless. Masses. Enormous. Infinite. Never-ending.

All those words that could describe the oceans amount of pain I have felt. Even with those words, I would still say there’s more. Then with each wave of pain I get, it stings somehow harder than before. This type of pain is mental, emotional, spiritual, and even physical. It is so exhausting to keep fighting this pain and not just succumb to it. Yeah, there is days where it hurts so much I just lay there and take it.

I almost wish this pain was visual, so others could see it coming on to me. There’s only so many ways to describe it, but if it was my leg bleeding out I feel like others would run over to stop the bleeding. There’s no way for others to really ease this pain.

Longing

Just like with loss, I have never felt longing before. Of course there was times I missed my mom and dad when I was away, but I knew I would see them soon enough. There was never a doubt that I would see them and all that missing them would just fall away. This isn’t the case with my longing for Jensen.

I long to see him smile and to hear his laugh. I long to feel his hand squeeze mine. I long to know what his first word would have been. I long to learn the schedule we would have had. I long to read to him one more time. I long for him every morning when I wake up and every night when I go to sleep.

With each new place I go, knowing he’ll never go there, I long for him to experience it with me. I feel as if I’m just being introduced to longing and it will continue to grow as the years pass.

Grief

Sucks…

Just throwing that out there. It really does though. Grief sucks you in and it decides when to throw you out. It’s like a huge black hole and who knows what you’re going to feel when you’re trapped inside.

Is it depression, anxiety, PTSD, or all of them at once? Will it be me feeling completely numb or feeling everything?

Grieving is hard for anyone in any situation. I hate that I have to be a mother grieving her son. It’s not fair, like most things in our world, but this really isn’t how it should be.

Tears

They sound self-explanatory, but I can tell you all the different tears I’ve encountered in ten months. Heck, I’ll just tell you the tears that I’ve had in the past twelve hours.

Big droplets that form from holding them backs. Hurried sobs because you held them back. Silent ones that flow down your face as you try to sleep. Scattered ones from crying in your sleep and they have no idea where to go. The flood from when you open your eyes when you wake up and they just fall out. Then there’s the nameless ones that just are there and you work/live through them.

Heck, I could have filled a kiddie pool full of tears in the past twelve hours. Imagine the last ten months.

Support

I’ve had support all throughout my life, but I’ve learned that the best type of people support you through the worst of times. Through this ten months, complete strangers have become best friends and best friends have become complete strangers.

Support isn’t trying to fix what is wrong. It isn’t necessarily making everything better for the person in pain. Support is listening and letting the person know you’re always there for them. It’s being their greatest cheerleader and seeing the progress on a day where it feels like you’ve fallen way off track.

Most of all (with child loss) it’s remembering their son or daughter with them. It’s saying their and writing their names down, listening to the same stories, and never forgetting.

Smiles

Of course I knew what a smile was before Jensen died, but I never felt how good it could be to smile during grief. Just because you smile and feel happiness doesn’t mean the death of your child is forgotten or you’re happy they’re not here. You’re having a good moment and this smile just comes from the soul. It brightens your day and feels so much better on your face than just a frown and tears. Not that those frowns and tears are bad, but the smile does feel good.

On my bad days where I feel strength, I look for what makes me smile. Seeing Jensen’s face and his drawers full of his stuff makes me smile. Knowing his life means so much lights up my day. Leo and Poe’s antics make me laugh. The support I have can cheer me up and I know they love to see me smile. Seeing how far I’ve come and knowing I’m still taking steps towards living brings me a peaceful grin.

A (real) smile there is lightness throughout this black hole of grief.

Growth

This ones a little more difficult.

I long to see Jensen grow. On each of his month days, I wonder how much he would weigh and how long he would be. I’ve wondered when his first hair cut would have been. Honestly, I could go on and on with this. I won’t today, but you get the picture.

The growth I’m talking about here is the growth in myself. It’s how my strength has grown to not only take on the stresses of everyday life, but to also hold the weight in my heart. My voice has grown to be able to shout from the rooftops all about Jensen and the taboo of pregnancy and infant loss. I’ve probably grown in ways I don’t even know yet, but I feel it. There’s apart of me that screams that I could have grown these ways without Jensen dying, but I can’t change that. It’s not a good that has come from Jensen dying, it’s a positive that has grown through the grief I’ve had to endure.

Motherhood

It’s an invisible motherhood, but it’s my mine. I have been a mom since the moment I knew Jensen was inside of me and I’ll be his mother forever. No one will ever be able to take that away from me.

I’m still learning this type of motherhood, which is strange because it’s my only experience. Yet, I’m still here; being the best mom for Jensen I can be. I know it’s not the same as mothering a living child, but I still mother him in ways all moms mother their children. I have sleepless nights and I worry myself sick wondering if I’m doing all I can do for him. He is my motivation and even though I can’t see if he’s proud of me, I know, deep down, he is.

Love

It always comes back to love.

Throughout the good, the bad, and the ugly, love has always been right there. The love I have for Jensen will never cease. The love I have for my motherhood only grows stronger. My love smiling has come back. I love the support and my tribe of loss mamas. There’s a huge hate-love I have for grief, loss, and all the ‘bad’ that was listed above. I hate it because I don’t want it in my life, but I love to see how through these I’ve grown. Through these I’ve learned to love harder and greater. Would I give that all back to have Jensen? In an instant.

But I love this life I have been given. I love the fact that Jensen will always be intertwined in my everyday life. I love that he will forever walk with me. I love that I can share the love I have for him.

Happy ten months in heaven, my sweet boy. I hope you’re smiling down with your (not so) big ten month day sticker. The sun is shining and I know you’ve given me this day of renewal to keep on growing and to keep on loving. Everything I do, I do for you. I miss you. I love you.

My Wishful Response To: “I Can’t Imagine What You’re Going Through.’

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‘I can’t imagine what you’re going through. If I ever lost my baby I wouldn’t know what I’d do with myself.’

What I say:

Losing him isn’t anything I ever expected to experience.

What I want to say:

Imagine walking into a room knowing it’s the last time you’ll ever come into contact with your child. It will be the last time you can see them, brush their hair, kiss their cheek, and tell them you love them in person. You don’t know whether if your brain is going to soak these moments up or just blur them out so it’s not so painful. As you walk out that door, you’re leaving everything you ever loved behind.

Imagine having to pick whether you want to bury your child six feet under the ground or if you want to cremate them. Before you do that, you’ll have to pick their lost outfit. Then when you’ve done that, you have to sign a paper, through tears, saying that you’re allowing your child’s body to be in a casket forever or be turned to ashes.

Imagine you have to attend your child’s funeral. The pastor reads his or her’s names and the dates they lived and died. They’re singing songs and telling you that we all have a season of mourning. You’re so numb in that moment that the only thing you can feel is the tears running down your face and how you’re gasping for a single breath. This time will be a whirlwind and utterly unbelievable.

Imagine now when you walk into your home. There’s an eerie silence that greets you and like an unwelcome guests, stays for entirely too long (it still hasn’t left my house). The house is too clean and there are flowers brought from the funeral. Flowers that will eventually die and all you can think about is how much you hate that things die. There will be plates upon plates of food in your fridge, but you’ll never remember eating them. You won’t remember because your body doesn’t allow you to get hungry right now. I mean, how can you be hungry when your child will never be able to eat again?

Imagine not knowing the days and weeks passing by because it all feels like a cloud. You literally feel dead on the inside and quite honestly, you feel like you want to die to be back with your child. Loneliness sets in and you don’t feel understood by anyone that did before.

Imagine the months that follow. It seems like everyone else has had their closure and are ready to get on with their days. They start to wonder when you’re going to ‘get back to normal.’ Some ever tell you they miss the old you and would do anything to get you back. They question why you’re so sad all the time, like they don’t see the absence that you feel so very heavy in your heart. But with all your questions you start to feel insecure and like you’re not grieving right.

Imagine having to live the rest of your life, never being able to see, hear, or talk to the little one you made. The little one that you gave life and cared for so very much.

Now imagine this… through all of these things, you’re being told you can have another child and that they’re in a better place. You’re told that you should be getting sleep because there’s no child to keep you up through the night. There are people who say they don’t know how anyone can keep going after their child could die (my only other choice is choosing to die). When you talk to others, they don’t understand why you’re still sad. To top it all off, they say they can’t imagine what you’re going through.

No. You can imagine it. It hurts like hell, but you can imagine it.

You just won’t.

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Picture from Saying Goodbye

Today marks forty-three weeks since Jensen has been born; Sunday will be ten whole months. There are days I wake up and I still don’t want to imagine my life being like this. Yet, this is my reality I’m forced to live with. I didn’t choose this and I would NEVER wish this pain and longing on another person.

Although I know people who say they couldn’t imagine living without their child would never mean to hurt me, it hurts me. Believe me, I know it’s literally the worst thing a mother could imagine, but so many moms are living it. It’s not that I want you to imagine the pain, but I want you to halfway understand what I’m going through. Instead of saying you can’t imagine, please just say you don’t want to.

Jensen Grey, you are so very loved. Thank you for giving me the strength every day to keep going on. Even during my hardest days, you send me signs to let me know you’re right here. With each of your cheers, I can hear them within my soul. This life isn’t want I expected, but I would ALWAYS choose you. I miss you. I love you.

Anxiety Adventures: Substitute Teacher Edition.

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One of my promises to Jensen was to become a teacher. It was my dream to be able to have a good job and spend the evenings with him after school. Of course I work from home and I’d be with him all the time, but I wanted to become the best version of myself for him (and me).

This past month I was able to make another step towards that dream and received my substitute teaching license. After a friend of mine got me into contact with her principal, I sent my paperwork in, interviewed, and was asked to start as soon as I could. Today was my first day.

At the end of last week, I was genuinely so excited. I couldn’t wait to be able to go into the classroom and help students learn. I know it’s not as impactful as a full blown teacher, but one day could change someone’s life forever. Plus, I was really excited to be able to begin this promise to Jensen. The excitement started slowly swaying to anxiety as Monday started getting closer.

I’m going to do terrible.

The kids are going to hate me.

What am I going to do if I have a mental breakdown?

If I start crying, how do I regain my strength? 

A hundred percent,  you’re going to fail.

Anxiety is not nice to me one bit. These thoughts kept coming to mind and the worst scenarios played out in my head. I could just see myself crying in front of all these children and I storm out of the room to hide away in my car.

Deep down, I know anxiety was the culprit to these thoughts, but I had to do something about it. Being productive helps me fight it off. So I did what any semi-sane person does in this situation: Pinterest ideas about how to be a successful substitute teacher.

Have a goodie bag full of treats for good students. Check.

Bring a clipboard to keep paperwork straight. Check and double checked for Jensen colored washi tape to keep me calm.

Always have pencils ready for you and students. Checked and sharpened.

Pack snacks, lunch, and headache medicine. Check, check, and check.

Wear comfortable clothes and shoes. Outfit planned and laid out, check.

Sounds silly, right?

I also set six alarms, had my makeup set out and in order, repainted my nails, and even had my cats’ food on the counter so I could quickly get it done in the morning. It would be a foolproof morning for me to get ready and have a successful day. I was still so nervous. Anxiety kept telling me that even when things are so perfectly planned that they can go up in flames. Would it be to the effect of losing Jensen? Of course not, but I just wanted it to go perfectly.

My last foolproof way to make the day go better was to go to sleep early, which we all know it a huge feat for me. I wrote my letter to Jensen and asked God to help me sleep well tonight and for strength to have a really good day for tomorrow. Sleep welcomed me right after I said goodnight to my sweet boy and blew his candle out.

What seemed like seconds after I fell asleep, a buzz awoken me.

We’re on a two hour delay. 

I thought, oh good. This short day will be a great first day of subbing for me. Then an hour later I heard another buzz…

Snow day!

The universe has a funny way of letting me know I shouldn’t always listen to my anxiety.

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PTSD: Part Four

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During the last few months, I’ve been talking about Post Traumatic Stress Disorder (PTSD) and how it affects me a loss mother. I am the type of person that has to make sense of everything that is going on with me. Probably a little controlling on my part, but that’s how I’m wired. Depression, anxiety, and grief have flooded my life the past (almost) ten months and I thought there was something more going on with different experiences I’ve had since Jensen was born. That’s when I started researching. I came across Post Traumatic Stress Disorder and rolled my eyes thinking only people who’ve went to war or are in horrible accidents have this disorder…

But the more I was researching, here, about PTSD, I found a lot of the symptoms I had were very similar to what was being described. Even when as I read the fourth one just now, it’s exactly how I am in certain situations. Again, I am not a therapist or psychologist. The symptoms I researched just made sense to me and my situation. It is a way I can understand my grief and what I’m feeling. Speaking to other loss moms, I know I’m not alone in feeling these different things. This little four post series is just letting you know that if you do have these feelings, there are others that are facing them as well. For a symptom refresher, here is the list one more time.

  1. Reliving the event.
  2. Avoiding situations that remind you of the event.
  3. Negative changes in beliefs and feelings.
  4. Feeling ‘keyed’ up or being on the lookout for danger.

With each on of these posts about another symptom, I find myself just marveling how I am facing each one when I’m writing. I pulled of the VA’s website again to really see what feeling ‘keyed’ up is like. Two things jumped out at me immediately, having a hard time sleeping and not being able to concentrate. This would make much more sense if you were sitting with me at this moment. Although this will be posted in the afternoon, I’m writing at 1:30 in the morning. I never sleep. It’s so hard for me to really settle down and relax. Honestly, I’m afraid of having horrible nightmares and I’m just on edge. There’s a fear that something bad is going to happen tomorrow. Because why wouldn’t it? The paragraph also talks about being jittery and always alert. This really distracts me from sleeping. I’m constantly moving while laying in bed. No wonder why I can’t peacefully fall asleep. Then comes the concentration… I can’t think long enough to make myself just sit still. Like me writing right now, there’s a hundred different places I want to go with this post. Yet, my train of thought gets cut off and something else jumps in its place. Which causes me to get angry and irritated myself; I guess that means ‘keyed’ up.

Maybe that just my severe anxiety?

But, another part of this symptom talks about outside triggers. They talk about being surprised by a loud noise or a surprise. For me, it’s babies crying and a rhythmic beeping. Although I am thankful there are babies crying out in the world and that another mom doesn’t have to deal with silence, it hurts. It sends me up the wall because all I want to know is what Jensen’s cries would sound like. I want to be able to pick those babies up and just cuddle them and make them feel better. But then I don’t. It sends me spiraling to all the what ifs and sadness. Then I get mad at myself because I want Jensen. Panic ensues and this is all triggered by one cry. The beeping noise is a little weirder. Let’s say when I’m at the grocery store and the cashier is scanning all the items, that beeping morphs into a heartbeat sound. Just thinking about those beeps and the silence of that last ultrasounds triggers me. It’s not something I’ll ever be able to prevent, but I can feel it coming. Sometimes they’re louder than the other, but that’s real.

It also talks about sitting with your back to the wall at a restaurant or anywhere you go. For me and my situation, I would say I’m hyper aware of where I sit or stand in public. I’m always scanning. In those moments, I’d be able to tell you how many babies are there and where they are. It’s almost like I’m trying to prepare for that cry. I want to have all my guards up so I don’t feel like I’m spiraling to a complete panic attack. It’s rough. I know it’s not really a lookout for danger, but it is a lookout for a trigger. A baby is harmless. They are innocent, sweet, and deserve all the love in the world. But for me, it’s more complicated than that. I see all those things in a child, but I also see the space Jensen should occupy. Feeling that loss every time you see a beautiful, little baby breaks my heart. I don’t want to see them and instantly go into a panic attack, but I can’t control it. Now that I’ve really thought about being keyed up in situations, it’s perfect to explain it.

Living with PTSD after loss is a part of my life now. I face almost every symptom every day. There are days where I can try to be so strong and only let a few get to me, but I’m working on it. Losing Jensen has a ton of different layers of pain and healing. These four symptoms of PTSD are four big ones. It’s impossible to tackle the realization that my life will never be what I planned, grief, anxiety, depression, PTSD, secondary losses, and so much more all at once. If you’re going through all of this, please know that you’re not alone in this. I know how overwhelming losing a child is and everything else that we have to face. Sometimes it feels that no one will ever understand all of this feeling, but there will be people (like me) that can relate and just listen.

If you’re reading this and you’re a support person… first of all, thank you. You have no idea how much it means to be there for a your loved one. Second, be patient. As I said above, we can’t tackle this all at once. No matter if its weeks, months, years, decades, or even a lifetime, the best thing is to just have someone listen. If you see your loved one is struggling and are being triggered, ask them what they need. Everyone is different in that way and sometimes they just need to escape that situation.

This concludes this four-part/symptom discussion about Post Traumatic Stress Disorder. There’s a huge possibility that I come back to this or even symptoms of depression and anxiety in the future. I think it’s crucial for people to talk about mental health and how it’s normal for people to battle. It helps us know that these aren’t crazy thoughts, in the most crazy time of our lives.

The Places We’ll Go.

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“So be sure when you step, Step with care and great tact. And remember that life’s A Great Balancing Act. And will you succeed? Yes! You will, indeed! (98 and ¾ percent guaranteed) Kid, you’ll move mountains.”

Dr. Seuss 
Oh, the Places You’ll Go!

I don’t know what I want to say today. My mind is fuzzy and, quite honestly, I’m exhausted. Some Tuesdays make me feel like this. The past weekend, I haven’t felt like I have succeeded. My depression was telling me that I was worthless and no one could ever help me. That I was alone and feeling all of these emotions because I deserve it. I thought of Jensen and could only think how poorly he would be thinking of me. I wouldn’t be the role model I had always wanted to be for him. And there were moments this weekend that remind me of those first few days after getting back from the hospital. Ones where I didn’t feel good enough to keep fighting… to keep living.

It’s scary to feel like ‘A Great Balancing Act’ isn’t tipping in the right direction. Maybe I’ll be the unlucky percentage once again.

Then there are moments and decisions that bring the scale back with a great force. Ones that make you smile and feel so strong that you’ll actually move the biggest mountains. They’re the ones I feel I could hear Jensen cheering for me. I don’t have to watch my step carefully, I can blindly jump in these times and take the good feelings in. It’s when I actually feel like I’m doing my best for him and that these bright moments will always outshine the dark ones. Just like love overpowers grief.

Yesterday I had this moment. But instead of blindly jumping, I was intently focused on one little boy’s foot.

 

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At forty-two weeks, Jensen would most definitely be experimenting with standing and trying his very best to stumble walk. I would encourage him to keep standing and have him practice walking with me by putting him on my feet. We would take big steps together. He would learn to walk and I would beam with pride. Before, when I looked down, I saw my naked feet and the empty floor. I don’t have him looking up at more or I can’t help him learn to walk. It was empty just like everything else feels. Now, and forever, he’ll be walking with me through life.

I will always take the steps that he was never able to.

Just as he would be getting to a point where he would start learning how to walk, I’m at a point in this grief journey that I’m starting to get better with my stumbling. I never expected it to be a straight and narrow journey. In fact, I thought it would just go downhill from the second he was born. How would there ever be a way I could smile when my child died? I’m not saying I’m full of smiles all the time. Heck, I was just at a spot on Friday where I thought my life didn’t matter. But I will tell you, if there is anything that gives me strength it’s Jensen and knowing that I’ll forever be his mom.

Now, with this new tattoo (which is my third for Jensen), I feel that with each of my decisions that the scale judges, I can literally see him making them with me. I can see those steps. He’ll be on the upward hills and the downward spirals. Through each, he’ll be there with every step, cheering me on. Yesterday and today, I find myself just staring at my feet and marveling his footprint. Of course it makes me laugh because he had my feet. I can see my little mini-me mimicking my every move. But it’s heartwarming to know this is just another way I can honor him. It’s another way I can bring just a little more of him into this world and leave his footprint everywhere I go.

Cue all the feet pictures in the future.

Happy forty-second week in heaven, Baby J. You are beyond loved and missed every second of the day. All I wish I could do is pluck you from heaven and hold you in my arms. I hope with the big decisions I’ve made today that you are cheering me on. My soul feels you close to me and now I can see it with each step I take. And oh, the places we’ll go. I miss you. I love you.

Football Sunday.

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While I was growing up, Sundays always meant football. We would hang out on the couch, eat, and watch games all day. My dad taught me all the hand motions and what position did what. I learned when to cheer and when to yell at the screen. Football was a big part of our family. It’s even how I ‘officially’ announced to my whole family. Little football socks and a note exclaiming: We’ll be getting another little football fan in April.

Jensen’s life was pretty surrounded by football as well. The day I found out we went to a preseason game. On Friday nights we went to watch my high school play under the lights. We went to a few Steelers game throughout the winter. He kicked every time I cheered, but never an uncomfortable kick. I paced around watching the Steelers play the Bengals last year and yelled at the screen. His tapping of his feet calmed me down. I unintentionally picked the Super Bowl champs colors for his nursery, even after my dad said he should have had a Steelers room. But most importantly, every Sunday of last season, I sat and watched the games with him like I did growing up.

We talked about the game just like always and in my mind I hoped he was listening, getting all the answers early on.

There’s certain days throughout grief where you know it’s going to be hard; like Tuesdays and the fifth of every month for me. Then there are other days, where it pushes you on the ground. Days where you don’t think it will bother you as much and yet that hole in your heart seems to just scream out at you. Those are Sundays for me. The ones where I’m watching the game and my family is surrounding me. Yet, there isn’t a little boy dressed in black and yellow crawling all around. My dad will never be able to teach Jensen all the calls and let him know when to yell at the refs. I’ll never be asked to buy him so-and-so’s jersey. Heck, I don’t even know what team he’d really love (even though I think he’d like the Steelers as well).

When I woke up this morning, I was looking forward to tonight’s game. It’s given me something to focus on other than this intense grief I have each and every day. I went into his room and sat on the futon when I first woke up. Sitting there I realized how instead of just sitting there, I would be dressing him in a little sweat outfit. We’d do our daily routine and head over to my parents house. Then it’d be like all those Sundays I had always had. The Sundays I dreamed of Jensen having during football season.

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I think about how different this picture should be. How there should be a smiling (almost) ten month old in this picture or someone taking a picture of me holding him. We’d probably be matching. He’d probably roll his eyes at me when he would be older with all the pictures I’d have taken of him by then, even more if we were matching. In these little moments I never have, I can smile. I smile of knowing he was able to experience parts of this life I wanted him to while his was growing inside of me. Imagining his happiness makes me smile. Knowing he wants me to smile on these days full of grief, makes me want to smile for him.

Jensen, I hope you’re shouting ‘Go Steelers’ while waving a huge, bright yellow Terrible Towel today and that you come to sit beside me on their couch. I would do anything to have just one Sunday of football with you, but I know I’ll find moments today full of you. Those are the moments I live for.

The Birth Plan.

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This time last year, I told my OB-GYN my birth plan.

There was no way I was going to be induced. From thirty-seven to forty weeks, the ridges on the brains get deeps. Plus, I just wanted Jensen to come out when he wanted to. He was supposed to be safe inside my belly. I didn’t want an epidural, I felt like I need to be this strong woman and give birth naturally. His cord was not to be cut right away. In my birth research, I read when you delayed cord cutting the blood in the placenta would make its way back to the baby. They really needed that blood and I’m sure I could have given you the scientific reasonings while I was still pregnant. He was to be placed on me right after he was born. I wanted that skin to skin contact and him to know I was his mama. Those are crucial bonding moments I did not want to miss you on. Plus I wanted the first thing he heard to be me whispering, ‘you are so loved,’ in his ear. His eyes were not to be wiped with that goop stuff. There was nothing going to damage them and I didn’t want his eyesight to be even more blurry than it would have been. There was only to be a certain amount of people in the room when he was born and afterwards. I didn’t want to be bombarded and wanted Jensen to spend his first days of life relaxed. There was a few more on the list, but these were the really important ones.

He actually hadn’t been prepared for me to tell him all of this, but I needed to make sure he knew what I expected. I can remember the first thing I told him was the only thing I was scared of was bleeding out and dying… because then I wouldn’t see Jensen grow up. There was never even a little part of me that thought anything would go wrong with Jensen, just that I would mess up.

After I told him all of this, he laughed at me and said these things sometimes don’t go as planned…

Well, my birth plan didn’t go as I planned.

I’ve talked about flashbacks before, a lot actually. Mostly about the time between I found out he didn’t have a heartbeat until I went home from the hospital. In all, that time frame is about twenty-nine hours. Oh my gosh, that’s horrible. In just a little over a day, I had found out my child died, gave birth, was released from the hospital, and back home. Like it was just a routine day at the hospital.

To say my birth plan didn’t go as planned is an understatement. There’s only two things that went ‘as planned.’ One, I asked for the epidural too late. I only got the little test tube of it. Before she could put the whole dose in me, I was already pushing. So, I still felt everything and it didn’t even hurt. Maybe it did? But the pain of knowing my child was dead hurt a lot worse. The other thing? There were only three other people (besides me, the nurses, and my doctor) in the room with me for when he was born. Two of them left for chunks of time. Then I only had three other visitors. Three of those people I’ll never talk to again. One of them didn’t even speak to me at my son’s funeral.

Heck and here’s another kicker, the one thing I was so scared of didn’t happen. Man oh man, am I glad I didn’t hemorrhage and die so I couldn’t see Jensen grow up. How was that the only thing I was afraid of? Was I really that selfish of a person to only worry about myself dying?

The birth plan doesn’t matter. Worrying about all those little things mean nothing. How mad would I have been if he would have lived and not one of those things was done just as I wanted? And for what? Temporary blindness? Extra blood? Instant bonding? Feeling like a ‘strong’ woman?

Looking at it that way makes me want to cry, laugh, and scream at myself. God, my birth plan should have just been get him here alive. That’s it. It doesn’t seem like such a difficult plan. Women give birth to living, healthy babies every second of the day. They have their birth plans and they get followed perfectly and their baby is fine. Why I couldn’t have I been her? Can someone please just wake me up from this horrible nightmare and put Jensen in my arms.

I don’t want to be brave or strong anymore. I want to be the girl who had her screaming baby placed on her chest. I want to have made sure everyone followed what I needed to be done. I want to live the life I should have had. I don’t want to know this world that I have been so forcefully shoved in.

But these things don’t go as planned.

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As I tried to calm myself down after writing this post, I came across this picture. During Jensen’s baby shower I had my guests write ‘Advice for Mom’ and ‘Wishes for Baby.’ I took a picture of this one and the last line made me stop.

You are so loved.

Although, I didn’t get that part of my birth plan, I know Jensen knew how loved he was. He was surrounded by love for everyday in his thirty-eight weeks and two days. His life was beautiful and happy. It’s the one gift I was able to give him.